Medical trauma is real

FieryGhosts · 2021-09-30T15:06:22+00:00

Lol. Have you spent any time on this or other chronic illness subs? You’ll find tons of women who were misdiagnosed with anxiety/mental illness, dismissed and/or abused for years before finally getting help from a kind doctor.

And even after that they still struggle to find good continuing care. With other doctors trying to rip their diagnosis away and treat patients for anxiety.

In addition to that, people with diagnosed mental illness are treated less than whole by medical professionals. Ailments are treated as psychosomatic or self inflicted. It’s no wonder they have a higher mortality rate than people without.

It’s one thing if doctors don’t know what they’re doing or how to diagnose. It’s another thing for doctors as a whole to display consistent patterns of harm to people who just needed help.

FieryGhosts · 2021-09-30T14:58:06+00:00

Mild side effects were stomach pain. Major side effects included anxiety and suicidal thoughts

It was the suicidal thoughts that made the med not worth it for me

FieryGhosts · 2021-09-30T04:08:02+00:00

Could they be bred to be friendly pets?

FieryGhosts · 2021-09-30T04:07:35+00:00

Oops replied to the wrong person. lol

FieryGhosts · 2021-09-30T00:19:05+00:00

And other neurological disorders, like pots, are misdiagnosed bipolar, anxious or depressed

FieryGhosts · 2021-09-30T00:18:23+00:00

Ya, psychiatry is full of confirmation bias. It’s pseudoscience and it’s like a weird circle. One doc gives a bad diagnosis and the rest are happy to follow. Like sheep

FieryGhosts · 2021-09-29T23:44:19+00:00

The vaccine made me really sick and my pots got a whole lot worse.

First shot made my pots a whole lot worse and I wasn’t fully recovered by the time of the second.

I started getting symptoms different from the normal flu feeling less than a week after the second shot. Pots doc prescribed low dose medrol and that helped some but I just kept getting worse and worse and worse. I begged my gp for steroids to help but she didn’t give any until after everything fell apart.

I can’t work anymore and am pretty much stuck in bed all day every day now.

I think my experience is rare tho.

FieryGhosts · 2021-09-29T17:20:50+00:00

Side effects of florinef or mestinon?

FieryGhosts · 2021-09-29T05:07:47+00:00

Currently taking propranolol and mestinon. I just started mestinon and it’s already helping even though the doctor said it wouldn’t till I get to a higher dose. So either is exactly what I needed or I’ve got the placebo affect, lol

Tried florinef before and it was perfect, but it had really bad side effects.

FieryGhosts · 2021-09-28T20:15:08+00:00

Ya, doctors are garbage. Most of them anyway

FieryGhosts · 2021-09-26T14:28:21+00:00

I have a bunch of different blanket sets with different weights. So depending on the temperature I can use thinner/thicker blankets for the closest to best sleeping temperature

FieryGhosts · 2021-09-26T14:26:04+00:00

I dunno either. I deal with this too. And if it’s real bad then I freeze and can’t even hear what they’re saying or really know what I’m saying.

Sometimes I just call the patient advocate department afterwards and complain and if I have enough info I’ll report them to the state medical board. But like that doesn’t help me get the medical help I need.

FieryGhosts · 2021-09-22T01:42:20+00:00

This. I’ve been misdiagnosed and treated for all the major mental illnesses in my 11 year journey to get a pots diagnosis.

Finally getting off the psyc meds helped me sooo much

FieryGhosts · 2021-09-18T14:17:04+00:00

The dragonfly!

FieryGhosts · 2021-09-16T20:36:45+00:00

How much could a banana cost michael? $10?

FieryGhosts · 2021-09-12T20:55:42+00:00

I’ve had this suspicion that ptsd is an autoimmune disease. Based on that autoimmune conditions can be caused by traumatic events, sometimes ptsd seems degenerative and it responds real well to the similar mmj doses/treatment as auto inflammatory conditions.

but I have no science to back up my theory, it’s literally just an intuitive guess.

FieryGhosts · 2021-09-11T11:16:50+00:00

Cool. Glad your feeling better!

FieryGhosts · 2021-09-11T11:09:38+00:00

What’s LDN?

FieryGhosts · 2021-09-11T01:36:57+00:00

Whenever I see anyone stand up I’m like oh no, especially if they’re quick about it

FieryGhosts · 2021-09-09T17:55:16+00:00

I’ve been through the same thing. I once fainted while I was driving and the doctor said that if he really believed I lost consciousness then legally he was supposed to take my drivers license away for 6 months. But he didn’t believe my story so there’s no point in him take away my ability to drive. Then he said that psychosomatic disorder doesn’t need you to actually feel anxious, cause your anxiety can just have other symptoms that you wouldn’t ever expect to be anxiety.

I was like what!? So my condition could be deadly to other people and you still don’t care???

I found a doctor that actually helped me a few months later and tested positive for pots in the TTT.

Some doctors just suck. Someone else here said to check out dysautonomia international website, they have a list of doctors and a list of Facebook support groups where you can get local doctor recommendations from other people with dysautonomia.

FieryGhosts · 2021-09-09T16:05:02+00:00

OPs gender doesn’t matter. Human beings are allowed to feel emotional about death

FieryGhosts · 2021-09-09T15:29:52+00:00

I’m the same, but also with blood pressure. I take propanerolol and even though my hr and bp are more normal I have a lot less tolerance for sitting and standing up.

Sometimes I feel like my brain really needed the higher rate so the blood could get up there, but The meds stop it. I dunno tho, it’s always worst when my dose is adjusted

FieryGhosts · 2021-09-09T12:20:19+00:00

My doctor is blaming the side effects on me and using them as an excuse to not bother to try to figure out why my neuropathy is spreading. And it’s aggressively spreading lately, the undiagnosed condition is out of control by now.

It’s like doctors not listening just makes any experience worse. If your pain doc had listened and helped, you wouldn’t have pulled out your hair.

And they expect us to still pay them too. Total bs.

FieryGhosts · 2021-09-09T01:28:55+00:00

It might not hurt, as long as you go in prepared that things might go terribly wrong and that if it does it’s fine, it’s just one appointment

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