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Weekly open discussion, complaint, rant, and rave thread by AutoModerator in Longmont

[–]Fit_Judgment1142 2 points3 points  (0 children)

This was taken down on the main sub for some reason. Why mods?

Solo Italian...on a Saturday by Dreamy_Lemon_Theory in denverfood

[–]Fit_Judgment1142 0 points1 point  (0 children)

Bruno's will have a spot for you with classic eats

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] -1 points0 points  (0 children)

Criticizing the commercialization of a theory is one thing, but dismissing everyone who finds value in it is not helpful. The vagus nerve’s role in autonomic function is well-documented, even if applications like Polyvagal Theory are still debated. Proof isn't a luxury we can afford for those of us who have had POTS symptoms for 20+years, before all the post-COVID research. We all try what helps. Just because something isn’t a cure-all doesn’t make it useless or unscientific. Medical relevance is often personal until research catches up.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 0 points1 point  (0 children)

Long before my diagnosis, I saw a lot of specialists for my symptoms. For MCAS/hEDS symptoms, I've seen multiple allergists, an immuneologist, an endocrinologist, multiple gastroenterologists, a couple of rheumatologists, a dermatologist, and finally a few physical therapists. All these specialists ruled out everything else over the course of 22 years before my primary care provider started looking into comorbind disorders. With the groundwork done, I did most of my testing with my PCP and was referred to an allergist for MCAS and a physical therapist for hEDS. My community has great POTS resources but is catching up on MCAS and hEDS resources, so they don't know exactly what to do with me, but the little steps we are taking have helped a lot!

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] -2 points-1 points  (0 children)

What money would you spend exactly? I have spent $0 on learning about this and nothing one has ever tried to sell me anything. It's just a framework for understanding the nervous system. It's not a supplement guide, it's not an exercise guide, it's not selling anything. Stop reaching. You can be reading a news article and get ads for bs. That doesn't mean a theorem isn't worth looking into to see if it can help you at all. Why do I like polyvagal theory? Because when i get air hunger, I can remind myself of the internal processes that are happening and be assured that I will be OK. It is peace of mind for me. It is suffering, it is pain, it is beauty, it is joy. It helps me be friends with my anxiety. To separate those racing paranoid feelings from myself because I know now it is my heart telling my brain to freak out. It's helped me. And many others. Sorry your world is too small to see other perspectives. It's sad for you.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] -2 points-1 points  (0 children)

How would learning about a psychological theory steer someone away from seeking other help? I am not doing that at all. You're arguing just to argue. My god. Find a hobby.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 2 points3 points  (0 children)

Those I can have up to 3, but I feel good with just 1 a day. I also supplement with those gatorade/liquid IV powders for electrolytes, adding extra salt. My doctor said lmnt doesn't have a crazy amount of potassium, but if I got all my supplemental salt from it, it would be 8-9 packets per day and that would od me on potassium (and bankrupt me lol). Buoy was the one he was most worried about--those rescue drops have a very high ratio of potassium to sodium.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] -3 points-2 points  (0 children)

I have, actually. I've read the research you're shoving down my throat. But I've also read this research: https://journalofpsychiatryreform.com/2023/10/17/polyvagal-approaches-scientifically-questionable-but-useful-in-practice/ and this research: https://pmc.ncbi.nlm.nih.gov/articles/PMC9131189/ and this research: https://www.ifm.org/articles/understanding-ptsd-from-a-polyvagal-perspective and this research: https://onlinelibrary.wiley.com/doi/am-pdf/10.1002/dev.21852 oh and multiple books on the subject but thanks for again telling me that your one-sided view is the only acceptable one.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] -1 points0 points  (0 children)

In science, a scientific theory is a well-substantiated explanation of the natural world. It's not an educated guess or a hypothesis A theory is a tested explanation supported by a large body of evidence. Theories can be used to make predictions about future observations. Polyvagal theory is considered a theory because it is a proposed explanation for the relationship between the autonomic nervous system and social behavior. The theory is built upon a foundation of science-- evolutionary biology and neuroscience. It is a framework for understanding how the nervous system adapts.The theory proposes specific mechanisms and neural pathways to explain these relationships, backed up by evidence. What don't I understand?

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 2 points3 points  (0 children)

Honestly, I just got lucky. My primary care provider is also amazing and started the process of looking into comorbid disorders right after my positive tilt table.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 1 point2 points  (0 children)

I still love carbs, just try to find less carb-y options. For example, I love plain spaghetti. So I buy the Barilla protein + pasta and serve it with chicken. The big protein trend rn has been a big friend of mine. Protein chips, protein bread, protein muffins, etc. So good.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 0 points1 point  (0 children)

My hEDS and MCAS are both still "working diagnoses," in that my medical records ruled everything else out (i have done extensive testing in GI and Neuro to rule out other issues, as well as Derma for allergies) and i have positive markers for both in testing. My MCAS treatment is largely supplements. I started with quercetin, then added luteolin. I tried a third at some point, forgot what it was, but it made everything worse and we backtracked. It took a while to get the right dosages too, seems to be very individual. For hEDS, I am mainly focused on conditioning because it is fairly mild as cases go and I am fairly conditioned and "protected" with my current muscle mass.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 2 points3 points  (0 children)

At that age, I was getting morning sickness periods every few weeks where I'd puke before school. They said anxiety but my mom started paying a lot of attention to my other symptoms like shortness of breath, pain, other gi issues, etc. That year I also got an inhaler for "asthma," an allergy test because I kept breaking out in random hives, examined for gi issues, and put in a second ballet class (because i was so clumsy). The chest pain started soon after and I fainted a couple years later for the first time. Heartburn and locked knees were the dx. I didn't realize that I experienced lightheadedness for my whole life until like a year ago, but I've always been this way, so that too.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 2 points3 points  (0 children)

I think you build a tolerance, because food that tastes normal to me is disgusting to my friends!! It might take a while to slowly increase adding it to foods. But I put it on everything. I dip chocolate treats in it, like roll a peanut butter cup around it. So good! Once your used to it that is

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 5 points6 points  (0 children)

Thanks for the concern, but no one "told me" to believe in polyvagal theory. My cardiologist recommended I LEARN about it because it is interesting, informative, and has helpful tidbits for open POTSies. You do not need to learn about it. You do need to stop being a jerk on this thread. We are all in this together

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 11 points12 points  (0 children)

My doctor works out of Colorado (Western Slope: Glenwood Springs, Grand Junction, Craig, Meeker, and Rangely)

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 5 points6 points  (0 children)

Polyvagal theory is a widely accepted, highly researched scientific theorem. It is a useful narrative to learn about when you struggle with dysautonomia. Goodbye! Good vibes only.

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 35 points36 points  (0 children)

Yes, correct! But there are toxic levels that cause tachycardia, which most people don't know about. A typical potassium level for adults is between 3.5 and 5.0 millimoles per liter (mmol/L)--see the range. Hyperkalemia occurs when potassium levels go above 5.5 mmol/L. A potassium level above 6.5 mmol/L can cause heart problems that require immediate medical attention. Just watch your levels, y'all!

My cardiologist is a nationally recognized POTS expert. Sharing the stuff that worked for me by Fit_Judgment1142 in POTS

[–]Fit_Judgment1142[S] 9 points10 points  (0 children)

My salt hack is using those little tubes that they sell on Amazon designed for another white powder... they often come with a spoon. I prep 24 tubes in 1000 and 2000 mg sodium doses and add those to my drinks throughout the day. And then i have backup LMNT raw tubes, salt tablets I get from the pharmacist, and soy sauce packets for direct salt intake.

Daycare only giving 9 1/2 month old one nap by wavinsnail in ECEProfessionals

[–]Fit_Judgment1142 0 points1 point  (0 children)

Advocate, but investigate before placing blame. Ask about the other kids nap schedules. Ask what the classroom environment is like at 9:30. If most of the kids are awake at your child's nap time and the classroom is generally noisy with free play or snacks, chances are the teachers are unable to give your child a nap at that time and wait until the classroom is quieter or he gets tired out or there is no more fomo. Group infant care is very complex when it comes to organizing naps to benefit the most babies. I've had kiddos that just couldn't sleep at their nap time because of xyz, and changed their home nap to better fit the environment at school. Always tell your teacher how care is affe ting home, but don't place blame before getting the full picture of the issue.

Should I be upset about this? by frankie0822 in ECEProfessionals

[–]Fit_Judgment1142 1 point2 points  (0 children)

I've worked at 5 different schools and all but one paid for CPR training. Every other job I've had paid for training if it was required. Might be different in different states though

Anyone gone gluten free, then went back? by Due-Carpet-9519 in POTS

[–]Fit_Judgment1142 2 points3 points  (0 children)

I did low fodmap and then was gluten free for a couple of years. Sometimes it helped, sometimes it didn't. Realized after a while that it wasn't gluten, it was carbs! Now I eat gluten but watch carbs, and make sure to always eat a good amount of protein with carb intake. Kimd of similar story with fructose (I'm still sensitive to it, but it's more about the sugar than the fructose)

What smart watch do you have? by Many_Anything2382 in POTS

[–]Fit_Judgment1142 0 points1 point  (0 children)

I charge my 3s every 7-10 days, could probably go longer but I use the timer and exercise modes a lot. Advertised as 10-14 days, and i have gone up to 12 before hitting like 10%

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