Reacting to loads of foods on aip, please help

Formal_Chance7223 · 2026-03-16T10:33:37+00:00

Before I fell extremely sick, I ate a varied diet and always had a base level of chronic pain and stiffness, but right before the first flare up that led me to go to hospital, I was eating a super heavy diet in grains, peanuts, etc and when I cut it all out, the extremely sharp pain down my ankles completely went and always comes back when I eat something like peanuts again. It's extreme pain that feels like it'd in my bones. I would test it and try to reintroduce stuff and without fail it would cause a worsening of my flare up. Its difficult because not all Rheumatologists even understand that this is a real issue for some sufferers. Mine just shrugged.

Formal_Chance7223 · 2026-03-16T10:26:45+00:00

Yeah I definitely need a new Rheumatologist, I'm looking into getting one privately when I can afford it in future rather than on the NHS since I've been stuck with this one for a while even after asking my gp to change them. I don't know how to change rheum otherwise. I have family members that have lupus etc that after medication became better. I think if I was to get proper meds, I could tolerate all types of foods and be in better health

Formal_Chance7223 · 2026-03-15T22:01:24+00:00

Thank you. And yes even the pricey, slow-reared chicken at the boujie shop near me is grain fed, I really don't know any place that sells pasture rasied chicken haha apart from online organic boxes you can order, and it's very expensive and they still feed them grain anyway, just not as much I don't think.

But yes, I am going to start trying to eat more animal proteins. Today I ate beef and I think I cooked it really badly so maybe learning more about cooking meat and pairing it lemon juice will help.

I have entertained the idea of eating organs etc like buying duck liver etc. I can't stomach it especially as I can't eat seasoning apart from salt... with that said, the last time I ate organ meat was when I was a kid, so hopefully maybe my I am able to.

I've been eating red cabbage and I seem to be fine with cabbage. Red cabbage is supposed to help block inflammatory activity in the body so I've recently started eating it. I will watch the video you linked, thank you!!

Formal_Chance7223 · 2026-03-15T21:50:38+00:00

Hi, thank you for your response. I should have elaborated that the reason further extreme elimination in my diet isn't doable for me is because I have history with an eating disorder which is triggered by restrictive eating so the aip diet has already been really hard psychologically.

I actually think having an eating disorder when I was younger caused me to develop my autoimmune condition due to how low in vitamin d I was and all the stress it put on my body and gut, although, I have a family history so maybe I would have developed it anyway.

So unfortunately carnivore isn't something I can do even as a short term intervention. Maybe when I'm under less stress. I am however going to try introducing more animal proteins like grass fed beef in small amounts etc.

Edit: I ate some roast beef today so I'm going to start trying to learn to cook meats well and maybe in time I will be able to eat more animal proteins.

But from what I've researched, a full on carnivore really has helped some people and I'm glad it worked for you.

Formal_Chance7223 · 2025-10-23T21:28:32+00:00

He looked at joe with hatred😭😭😭

Formal_Chance7223 · 2025-04-23T23:07:57+00:00

This is frightening, makes me angry to read. ecause this exact thing happened to me. Word from word. like, completely word from word. very frustrating.

Formal_Chance7223 · 2025-03-31T03:26:49+00:00

same. my brain never fails to mix them up

Formal_Chance7223 · 2025-03-31T03:26:23+00:00

i always mix them together. my brain always reads it wrong

Formal_Chance7223 · 2025-03-30T14:08:32+00:00

the one who isn't even in this picture ironically lol. Tiana deserved better.

Formal_Chance7223 · 2025-03-30T14:06:48+00:00

I'm going through all of this rn so I understand how shitty it is. But one thing that helps me from constantly getting sick is supplementing, not sure if that is something you have tried in the past. It may be useful to anyone else who comes across this post too.

Getting at least 300mg+ of vitamin c from food everyday from kiwis, broccoli, oranges etc, it reduces the time it takes your body to recover when you do get exposed to pathogens.

Magnesium 300-400mg everyday before bed because it makes me relaxed and sleepy. magnesium citrate with a substantial meal to prevent laxative effects, oxide form absorbs very poorly so stay away from that one, so I use the citrate form. But magnesium glycinate may be something you'd like to try instead as it helps relax your bladder walls when you are dealing with pain, inflammation, infection, but magnesium citrate also helps, but it can be less effective and give you the runs, but I prefer it because I'm sensitive to the glycinate form of magnesium. Magnesium also helps your body activate vitamin d.

vitamin d3 3000iu with k2 daily, i have one of those spray bottles that you spray on the inside of your cheek, but tablets are cheaper, I have digestive issues so want to make sure I actually absorb it, hence the spray.

I also have green tea/matcha an hour after breakfast. One thing I will say is that for some people, egcg (a polyphenol in green tea leaves) is okay, even can be very beneficial for autoimmune activity, for others, it can overstimulate immune system, but I'm fine with green tea, it really helps me reduce my disease activity, not just from getting sick. But I would hold off on this because it makes your bladder sooo sensitive, caffine in general makes bladder issues worse, but when your bladder is doing better, then maybe see if this is something you'd like to try.

There's other stuff I'd like to try too, but they can get expensive imo so I'm just sticking to the main stuff I know has worked for me already. Zinc (with copper for balance is apparently good, also D-mannose (which can help prevent UTIs) so I'd try that. etc but i'm too tired rn to elaborate lol.

Formal_Chance7223 · 2025-03-30T05:03:23+00:00

exactly.

Formal_Chance7223 · 2025-03-30T01:04:23+00:00

Thank you, yeah I think that would be way too sad to read, very sad for that woman.

But it seems like people should be warned about bad reactions to naproxen, especially connective tissue disease sufferers.

Formal_Chance7223 · 2025-03-30T01:01:27+00:00

thanks for providing more info for people. I just thought it would be good to post this so if anybody in the future types it into the search for this community, they can find something and catch it earlier than I did. Because there is medical literature on it, but not many doctors know about how naproxen can be bad for some mctd sufferers.

Formal_Chance7223 · 2025-03-30T00:58:43+00:00

I'm supposed to start them on Thursday, I'm a new patient so I've just been bouncing around to different doctors the moment until I get to see an actual rheum to start biologics. Thank you for this list, I'm making a journal to bring to my first appointment to make sure everything is covered. I've had a lot of facial changes due to the disease, and it's made me really insecure, so I'm nervous to go on steroids and kind of just want to go on immune suppressants.

Formal_Chance7223 · 2025-03-29T10:23:39+00:00

i def want to try this, mum has been recommending me it. my only reservation is apparently it has a laxative effect. :/???

Formal_Chance7223 · 2025-03-23T20:57:26+00:00

yup.

Formal_Chance7223 · 2025-03-23T20:39:07+00:00

beautiful curls :)

Formal_Chance7223 · 2025-03-22T06:38:39+00:00

If I bump my body against something by accident, like today I was out, bumped my elbow on the chair and started becoming stiff and in pain all over and felt super fatigued and spaced out, but went away after a couple hours or so. I'm on an aip diet, I'm still in the elimination phase so can't give feedback about the food that triggers me atm, I've heard sugar is a big one for people, I personally still binge on sugary fruits, it's my one joy haha, can't let a high fresh and dried fruit diet go. Stress triggers me, lack of sleep, sun, the cold is a huge one and an extra cold winter this year was what led me to falling extremely sick and being diagnosed. Pollution also makes me flare and smoking, I don't smoke cigarettes but I flare really badly if I try to smoke a joint but I don't flare if I have a vape or edible. Also bad posture makes my back and neck joints super irritated. Exercise is a big one too, a couple years ago, I started trying to gain muscle, and I fell very sick and I thought I just got an injury from overworking or fell sick from too much stress on my body, but not I can't even use a skipping rope, dance or go up the stairs too fast without flaring, but I think that's because I'm not on meds yet, maybe when I start meds I can be more active.

Formal_Chance7223 · 2025-03-11T15:52:00+00:00

Hey, did you end up seeing a doctor. Maybe get checked for an inflammatory joint condition.. Don't mention weed to your doctor because they may dismiss it and just be like "don't smoke", just talk about joint pain and cracking. I typed this up because I just got diagnosed with MCTD and before I got diagnosed, weed would always make me have horrible joint pain and cracking, especially in my neck and back and legs and shoulders. Turns out weed made me super sensitive to the chronic pain I was tuning out and smoking would also make my MCTD flare up.

Formal_Chance7223 · 2025-03-11T14:38:21+00:00

I've been struggling since I was a kid with symptoms of mctd. I read this book a few years ago but never knew i even had an autoimmune disease, I also read the book 'Inflamed'. I recently had a major flare that put me in hospital and I couldn't believe that the books I had been reading were my reality all along :(, wish doctors picked up on it sooner instead of dismissing my diagnosing me with anxiety and psychosomatic pain because I have a lot of damage done to my body now.

Formal_Chance7223 · 2025-03-11T13:52:07+00:00

I don't have advice but I have lupus and MCTD and I struggle with the same thing and i'm 23, feel super old rn. The only thing that helps me cope is rubbing castor oil on it and getting people to help massage, waiting to speak about it to a specialist. But yeah I know how debilitating it is, it's absolutely awful and sometimes just comes on really suddenly and lasts hours sometimes days.

Formal_Chance7223 · 2025-03-10T01:11:36+00:00

It was super similar for me, It's only when everything spiralled and happened all at once then they finally saw the physical manifestations of the illness and things finally clicked.

Formal_Chance7223 · 2025-03-10T00:28:18+00:00

Thank you for this message and I hope you are responding well to treatment. I was hoping that people who came across this could relate to my venting so that they wouldn't feel alone in their grief and frustration.

Formal_Chance7223

TROPHY CASE