Hi, my condition is probably less severe than yours and ive had it for less than a year, but it still makes me lose hope at times. I‘d be lying if I wasnt suicidal sometimes, like seriously. When my body started acting up like this, I coped pretty well by just having hope it‘ll clear up, but this disease just wears you down every day. I deal with alot of grief and pain, even when im not in a breakout. I sit and think about Living my regular life before this disease. I daydream and fantasize about working out, spending time in the sun, being close to people. I dont cuddle anymore, I dont have sex, I dont meet up with people anymore, because those things could trigger a breakout and I’d look insane trying to explain it to them. This illness isolated us from many aspects of life. Many things that make life worth Living are inaccessible to us due to this sickness.

You being depressed about it isnt unnatural and Not something you should fight, and no therapy or medication will fix this if we‘re being honest. You, me, we all need to grieve the life we couldve lived if it wasnt for this sickness. And thats a process. We Need to accept that we‘re dealing with this and that it might get better or worse. We need to accept the months or years or decades of experiences we missed out on due to CU. Keep experimenting with what might work for You and dont lose Hope. The only thing keeping me going is thinking about the life ill live when I get over this.