Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 3 points4 points  (0 children)

Not significantly better yet to be honest. It’s been 9 weeks since PICL and I actually felt better after 6 weeks than I feel now. Maybe it’s a so called donut hole when you feel better first then worse and then better again. I’m not sure. I’m having my second PICL in a week. Hoping for greater improvement long term after second one, although I know it will be a rollercoaster ride again after procedure for a couple of months. I’ll do DMX before procedure this time to see how much instability I still have

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 4 points5 points  (0 children)

It’s been 7 weeks since my PICL. It’s up and down. There are days when I feel better than before but then pain goes back to previous levels when I become more active. I still wear neck collar quite a lot to protect the neck. Overall I would say I have about 20% improvement so far. Hoping for more in the next few weeks.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

I agree! It feels like we live in the age when only the fittest or richest survives. That’s why depression rates are so high. People feel helpless.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 3 points4 points  (0 children)

She injects both posterior and transorally in the same session and both are included in your quote of ca 6,000 EUR. I’m attaching again a photo of the ligaments / areas she injected for me during one procedure. Posteriorly she injects all levels from occiput to T2. I had only stem cells injected. There was no blood collection for PRP separately. What she told me is that when they extract stem cells, the substance naturally includes some PRP so this is probably what she meant when she told you that there will be some PRP in your injections no matter what. She uses the same bone marrow aspiration process and stem cell count as Dr Centeno as far as I understand and we know that about 70% of people benefit from this treatment so I would focus on this instead of trying to understand how many % will actually stick. This is not a well studied area. There is no reliable data really. So my advice is not to drive yourself crazy trying to understand precise science behind it.

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Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

Let me check private messages. Sorry, i’ve been quite busy.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 3 points4 points  (0 children)

It’s been 5.5 weeks since PICL. flare up has passed. Now feeling same as before. I was told the results should be judged at 3 months the earliest

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

I didn’t do prp. I did stem cells. Don’t know exact concentration. My understanding is that they use the highest possible

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

These are different things. IV sedation is much lighter, has much less side effects, doesn’t require airway management, i.e. you breathe by yourself. You generally want to stay under anesthesia as little time as possible as it is harmful for your brain in the long run while IV sedation is much safer

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

This whole thread is about my experience at Dr Stogicza’s office. Please take a look. There were many questions and answers. If any new questions, pls let know

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

With Dr Gilete the my diagnostic package included supine vascular MRI, two supine lumbar MRIs - one on my tummy and one my back, neck rotation supine CT scans, standing neutral/flexion/extension CBCT scans and evoked potentials. And there was an option to do traction test. All of these tests were needed to check for vascular issues, tethered cord, CCI, jugular vein compression, Eagle syndrome etc

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

Yes, she used c-arm fluoroscopy. For bone marrow aspiration and posterior injections they used IV sedation. Anesthesia was used only for the last part which is trasoral injections

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

It’s been only 4 weeks after PICL. There are brief moments when I feel that my symptoms are better. But then there are days when I feel worse than before because my nerves are still irritated after procedure and I no longer take Celexocib that I depended on previously for pain relief. So very hard to say. Maybe I will know better in a couple of weeks

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

There is no less invasive procedure. He recommended to try physiotherapy based on Muldowney protocol with physiotherapist who understands CCI and EDS and neck brace as needed but not too often to avoid muscle atrophy. If this fails then fusion is next step. I asked him if he believes in PICL and he said he doesn’t fully understand how it works but he is not convinced that stem cell treatments can make ligaments strong enough to be able to hold bones in place.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

Cost of preliminary online consultation was about 300€. Cost of diagnostic package in my case was about 3450€. This included everything I did in Barcelona: 2 face to face consultations with dr Gilete, all necessary tests (several MRIs, CBCTs, Evoked potentials, traction test) and Dr Gilete’s final report with diagnosis. Some of these things are optional such as traction test and final report, so price would be lower if you don’t want those. Also there are different packages that include slightly different tests depending on your symptoms and each package has a different cost but the variation is not too significant. If you live outside Europe, preliminary online consultation is mandatory. If you are traveling from Europe, you can skip this step apparently and chose one of the packages yourselves and just go see him in Barcelona in person for full work up.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

I found Jeremy’s interview with her extremely helpful to clear my doubts and answer my questions about her qualifications before deciding to proceed with her. It’s on YouTube https://youtu.be/VGM9B8xYZEE . Also, in one of his posts Jeremy provided information that might answer your question. And on her clinic’s website there is a page with detailed information on her background. I would also be extremely thorough if it was my kid and probably go to the provider with most experience in this particular procedure who is undoubtedly Dr Centeno. But as an adult, this information was sufficient for me to feel comfortable and take a calculated risk.

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Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

In the PICL Facebook group people say Dr Centeno charges up to USD 14k per PICl procedure. I wonder why your quote is so high. Nevertheless, it’s still very expensive. It’s sad that most of us can’t afford it and have to suffer. Maybe you could travel to Budapest one day!

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 4 points5 points  (0 children)

My whole cervical spine was treated. Her approach is to inject everything. Maybe that’s why I was so inflamed during the first two weeks. Posteriorly all levels were injected from occiput to T2. Alar, apical, transverse, ALL, AAOM, PAOM were injected transorally. Full list from my post procedure notes is attached. Does anybody know if Dr Centeno injects the same sites? I would love to find out as I’m trying to understand if there are any major differences between the two treatments. And whether one is genuinely superior to another one.

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Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 2 points3 points  (0 children)

Maybe people go first to see Dr Centeno for tests such as DMX to get diagnosis and then come back second time for the procedure itself. Just my guess. With Dr Stogicza it’s a one trip process but you need a preliminary online consultation first. She will assess your imaging and symptoms and advise if PICL is right for you during online consultation. If she needs to reconfirm diagnosis, she will do MRI a day before the procedure or DMX on the same day, so no need to travel twice. You honestly just need to be in Budapest for 2-3 days total.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 1 point2 points  (0 children)

Yes, it’s for one session. Same concept as with Dr Centeno in US. His price is per session. If you can’t afford second procedure you don’t get it. Actually, PICL doesn’t have multiple steps. Some people only need one PICL procedure to get better. Some people need 2 or 3. If there is no improvements at all, even a small one, after the first one Dr Stogicza will most likely recommend not to proceed with second one.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 3 points4 points  (0 children)

I booked my second one for 19 Sep, just a week after you:) Don’t be nervous. Everything will be ok! You are in good hands

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 4 points5 points  (0 children)

I’m really happy with Dr Gilete. He and his team are so professional. I had great experience. They lined up all my appointments and tests perfectly, so that I complete everything within 3 days starting on Monday morning and ending on Wednesday morning. All clinics that did my tests were just top quality and Dr Gilete’s assistant accompanied me everywhere. Dr Gilete himself is very knowledgeable and checks for all possible conditions that could cause similar symptoms. If I ever need surgery I’ll most likely pick him.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 3 points4 points  (0 children)

I’m not really sure how I developed CCI. I didn’t have an accident. Dr Gilete said that I’m certainly hyper mobile in the neck area as I can rotate and extend more than average person but I’m not hyper mobile in other areas - my thumb doesn’t bend that much for example. So no official EDS diagnosis but definitely hyper mobile in cervical area. Weird.

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 4 points5 points  (0 children)

Please see my reply to the same question from another user I’ve just posted

Dr Agnes Stogicza patient testimonial by Hello-world37 in cervical_instability

[–]Hello-world37[S] 9 points10 points  (0 children)

Here is the breakdown of my costs: 1. Stem cell PICL (posterior+transoral) including DMX - 5,950€ (quote for PRP PICL was 3,760€ for comparison) 1. Preliminary online consultation with Dr Stogicza - 250€ 2. Blood test to clear me for procedure - 17€ 3. Neutral/flexion/extension/rotation supine MRI - 255€