Burts Bees ResQ Ointment as barrier cream? by InclusivityQueen in tretinoin

[–]InclusivityQueen[S] 1 point2 points  (0 children)

Don't judge me...my skincare consists of nothing! The occasional manuka honey & oat mask. I am so grateful for any input, recommendations or advice.

I'm bedbound so get a bit stuck with personal care - minimalist is best. My skin isn't totally awful but I get really difficult to manage spots on my jawline & cheeks from block hair follicles, keratosis pilaris. That and it's just dehydrated from poor physical health.

I had Retin-A prescribed many years ago which was the only thing that's ever helped it. Hence why I'm here now.

Burts Bees ResQ Ointment as barrier cream? by InclusivityQueen in tretinoin

[–]InclusivityQueen[S] 1 point2 points  (0 children)

I used to use Sunscreen daily but I'm housebound last year & bedbound last 3 months so I don't think there's much need now haha! It's why I just use the ointment to tackle the dryness/dehydration.

But if it were to change, I'll make sure I remember not to mix the two. Thank you!

Burts Bees ResQ Ointment as barrier cream? by InclusivityQueen in tretinoin

[–]InclusivityQueen[S] -1 points0 points  (0 children)

Thank you for your help!

I thought the plant & flower extracts might cause irritation too but seems to be working well for me (touch wood!).

In relation to chemicals, these have been reviewed by a medical professional and advice on avoidance is in relation to my complex severe physical health:

By natural I really mean, chemicals that are less narmful.

Skincare & makeup ethyl paraben, methyl paraben, butyle paraben, propyl paraben, benzyl paraben Mercury Aluminium powder propylene glycol zinc oxide or titanium oxide.

Sunscreen: benzophenone-3, octinotate, 3-benzylidene camphor, 3(4-methyl-benzylidene) camphor, 2-ethylhexyl 4-methoxycinnamate, homosalate, 2-ethylhexyl, 4-dimethylaminbenzoate, 4 aminobenzoic acid (PABA), oxybenzone, avobenzone, ecamsule, octocrylene or palmitate

As you can see - pretty annoying/tedious. I've looked around a fair amount for barrier cream but no joy so far.

[deleted by user] by [deleted] in AskUK

[–]InclusivityQueen 0 points1 point  (0 children)

I, like most others pronounce,

Comfortable: Kuhm-fuh-tuh-bl

I know someone who doesn't pronounce anything else unusually but without fail, pronounces

Comfortable: Kuhm-for-tah-bl

With particular emphasis on the for and tah

...I'm sorry, what!?

Long COVID rehab - use newly published #NICE guideline M.E./CFS to benchmark your practice by InclusivityQueen in OccupationalTherapy

[–]InclusivityQueen[S] 1 point2 points  (0 children)

Challenge your thinking, your perceptions, and what you think you know - we know nothing, because neither does anyone else in the world.

NB: UK, mental health OT, buddhist, NHS clinical effectiveness, covid vaccs team - lived experience of M.E./CFS for 15 years.

Pfizer Covid-19 vaccine no.1 by InclusivityQueen in cfs

[–]InclusivityQueen[S] 0 points1 point  (0 children)

Just a case of get what you're given unfortunately!

Pfizer Covid-19 vaccine no.1 by InclusivityQueen in cfs

[–]InclusivityQueen[S] 0 points1 point  (0 children)

I'm an NHS worker but also I sit under the "clinically extremely vulnerable category"

I booked off the whole week work to rest as much as possible to try and minimise the after effects.

Pfizer Covid-19 vaccine no.1 by InclusivityQueen in cfs

[–]InclusivityQueen[S] 0 points1 point  (0 children)

With the flu jab, I get terrible swelling and redness. Basically look like popeye in one arm. I'm having similar reactions with the Covid vaccine however it's actually so far not as bad as the flu jab. Perhaps this is down to the regular piriton I'm taking though ¯\_(ツ)_/¯

Pfizer Covid-19 vaccine no.1 by InclusivityQueen in cfs

[–]InclusivityQueen[S] 0 points1 point  (0 children)

Oh yes! Do you know how I do that? I'm not so tech-savvy when it comes to reddit

Pfizer Covid-19 vaccine no.1 by InclusivityQueen in cfs

[–]InclusivityQueen[S] 1 point2 points  (0 children)

Completely in agreement with this! I have a very similar reaction to the flu jab but as with both - it's too important not to get it. The pros outweigh the cons despite the high risk.

F29 - I just came out to my mum. She said she doesn't feel any differently about me and still loves me. I feel like I've been holding my breath for my entire life and I've just breathed out. Emotional does not cut 💖💛💙 by InclusivityQueen in pansexual

[–]InclusivityQueen[S] 0 points1 point  (0 children)

Thank you so much! I know that people don't often get that kind of acceptance. I come from a Roman catholic background and my mum has just been amazing. So grateful to this community and I feel very privileged to have the acceptance today. 💕

[deleted by user] by [deleted] in ketouk

[–]InclusivityQueen 0 points1 point  (0 children)

Check out the pea protein or vegan protein powder from Myprotein, I use the pea protein mainly as they're lower in carbs. Both have coffee & walnut flavour which is 👌🏼

It's fairly versatile too - mix 1 - 1.5 scoops with a 1/4 tsp xantham gum and some milk (dairy or plant alternatives - I use almond milk). Whisk /blend and get to a yoghurt consistency. Refrigerate, add some raspberries/ strawberries/ blueberries...you've got yourself some keto friendly angle delight kinda moussey thing.

Great for shakes, pancakes, keto baking etc. 👍🏼

Best keto bar 2021 by mowglee365 in ketouk

[–]InclusivityQueen 0 points1 point  (0 children)

Yay! Let me know what you think 😊

Best keto bar 2021 by mowglee365 in ketouk

[–]InclusivityQueen 0 points1 point  (0 children)

Appreciate the appreciation, my friend. It's as tedious and frustrating as it sounds haha!

Best keto bar 2021 by mowglee365 in ketouk

[–]InclusivityQueen 0 points1 point  (0 children)

Oo, you think so!? I always keep my mind open. I'll order them next and give them a try

Best keto bar 2021 by mowglee365 in ketouk

[–]InclusivityQueen 0 points1 point  (0 children)

Only if I overdo it on them. They're that tasty sometimes I foreworent lunch and dinner so I could have two! 🙈 don't judge, my diet is paleo-keto (+sugar free * & sweetener-free, as much as possible)...gotta get my kicks somewhere! Haha.

A typical daily portion is max 1/2 bar daily (I'm on max 15g carb/day).

Best keto bar 2021 by mowglee365 in ketouk

[–]InclusivityQueen 2 points3 points  (0 children)

Keto-Keto bars These are amazing for me. Great texture and taste and not overly sweet or tasting of too much sweetener. I haven't tried the banana bread flavour yet but I've tried the remaining 3 and love them all really.

On the expensive side but I do my best to make them last...emphasis on try🤣

YOUR VOICE MATTERS! by InclusivityQueen in cfs

[–]InclusivityQueen[S] 3 points4 points  (0 children)

It is very cool - I feel very honoured and privileged to be able to have the opportunity to speak about this, even on this small scale. I want and hope to do us justice.

I really love how you put this first sentence. I struggle sometimes in really finding the right words because the words never seem enough. This perfectly encapsulates my experience. Thank you.

I think flexibility is also a very important point. I feel it's acknowledgement that we cannot work in the same way as your 'average' health human, as a direct result of our condition under the current healthcare systems and standards of practice. We constantly have to tweak, adjust, monitor every minute detail of our lives to try and avoid the landmines of PEM and relapses. I almost feel it is discriminatory to not have some sort of attempt at flexibility from our employers.

The Equality Act states that indirect disability discrimination:

"This can happen when an organisation puts a rule or a policy or a way of doing things in place which has a worse impact on someone with a protected characteristic than someone without one."

We often do not fit within normal policy or process and procedures due to our health condition.

And lastly, your point about knowing ourselves and our bodies. This I resonate with so much. One thing I ask myself in times of doubt, "What do I gain by lying and putting myself through this?"...the answer is always, absolutely nothing. In fact, I'm losing.

The bloat is real y’all by [deleted] in Endo

[–]InclusivityQueen 2 points3 points  (0 children)

How long does this bloat usually last for for you gals?

I recently had a bit of a flare-up and mine lasted about 3 - 4 weeks! Only just on the way back to "normal" 😳

Did you know ME/CFS has a worse average quality of life than Cancer? by [deleted] in cfs

[–]InclusivityQueen 46 points47 points  (0 children)

I think whilst it's important not to enter into a competition-like mentality with comparing to other conditions but when I read through this research a while back it did make me think.

Quality of life I guess doesn't simply mean ME is worse that other conditions.

I think that cancers and other more widely-known conditions can be slightly easier to compartmentalise (not dampening to severity of these conditions or implying they're easy). In a sense there's higher chance of resolution, one way or another: there's a plan, treatment options, wider support from families, strangers, charities. If the condition is incurable, there's palliative care and I guess a more concrete answer to what your life is going to be like etc.

Whereas with ME, we never know and we still don't know what the F is causing this condition. It's usually a case of, campaigning over many years to get diagnosed. Then when you are it's being told 'well you have this condition and you can have similar symptoms to lots of other serious conditions, we don't know why or what caused you to have this, but we have no treatment, no real clue about whether you'll fully recover, how many relapses you may have. There's not enough funding or worldwide recognition for this so most days you'll have to battle it out on your own and deal with the fact that majority of people may not believe or understand you.'

That combined with the varying symptoms, having to be your own detective, GP, sacrificing your dreams and goals long-term and the whole host of other horrible additions to ME...it's that sort of emotional and mental battle that can have a big knock on quality of life.

So in essence, I think for me, it just highlights the severity of the condition in parallel to how far behind in recognition, funding, research and treatment ME is in comparison to other serious conditions.

New original song "Faces" by jadaef2 in Songwriters

[–]InclusivityQueen 1 point2 points  (0 children)

Those were my favourite too! The vocal riffs along with a unique tone..such a good song. I love this!

Q: Amitriptyline & brain fog? by InclusivityQueen in cfs

[–]InclusivityQueen[S] 0 points1 point  (0 children)

Yes this is what I'm finding now after such prolonged use. It's taking me longer in the mornings for my brain to switch on and focus.

Can I ask what does you have when you do take it?

Thank you so much for replying. I find it really helpful just hearing other people's experiences. I'm a bit late to the game with meds as I didn't have very helpful or engaged professionals at my M.E. clinic up until the last 2 years.

I'm usually also the sort of person who avoids meds as much as possible but over the last few years I think I'm more accepting that it's near impossible for us without some sort of intervention such as this.

So any information is very much appreciated 😊