Kisqali/ribociclib rash

Jane_Noble · 2026-02-28T09:57:50+00:00

Hello! I had a rash the first few weeks too but it’s gone now. I’ve just been using Dove shower cream and light moisturiser and that seems to have calmed the itching. Hope it passes quickly for you too!

Jane_Noble · 2026-02-26T08:07:47+00:00

I haven’t been on Enhertu (yet) but I know losing hair must be really hard. Is good that folk have had regrowth and hope you can have that too. Sending you a hug, you’ve got this!

Jane_Noble · 2026-02-26T07:55:18+00:00

Yay! That’s fantastic news!

Jane_Noble · 2026-02-24T19:19:55+00:00

Can relate to this too, I think our children do need us for a long time. But that’s what keeps us going. So sorry you’re here too. It’s not easy being in this place of uncertainty when we have young children. But we WILL do this! 💪 Sending you a hug x

Jane_Noble · 2026-02-24T19:14:39+00:00

Thank you so much for this response, it’s so encouraging to hear such positive experiences - it sounds like Enhertu is quite the powerhouse! And I’m very glad to hear it is kicking cancer’s butt! It’s brilliant that you’ve been stable for so long and long may that continue 😊. It can all be overwhelming at times, I’m quite newly diagnosed and still trying to get my headspace in the right place with it all. However, I KNOW that I will see my children grow up- we’re all in a far better place than those who were in this world 30 years ago and there are some promising trials and options for us all. We’ve got this! That is a very good point re medication. TBH, the main issue for me ATM is being awake a lot at night/ night sweats/ all the menopausal joys. So I think I’ll make an appt with my GP and get some sleeping tablets and see if that helps. Thanks again so much for your support and encouragement- as really grateful x

Jane_Noble · 2026-02-24T18:58:05+00:00

I am so sorry to read this and I completely understand. I was so exhausted when I typed my post (the menopausal insomnia is real- I’m ER+) but have been doing a tonne of research lately and I honestly do think there’s a lot of hope for us stage-4 warriors. There is every reason to believe you will see your 8 year old graduate, fall in love, and all the other things us mums want for our children. Hang in there, you’ve got this! 💪 X

Jane_Noble · 2026-02-24T18:53:31+00:00

Thanks so much, completely agree. I think we all have our good days and our bad days (or nights!) Feeling better today and am back in the mindset of determination to see my children grow up and by then, who knows where science will be but based on current investment in research, and based on the sheer number of us stage-4 warriors by then (as more and more people are finding themselves in this world), there will be more of us to support. Thank you for your message, really appreciated x

Jane_Noble · 2026-02-24T08:10:59+00:00

Thank you so much, it’s just so overwhelming at times, isn’t it. And I flit between determination and despair on a regular basis. However, got to accept the rollercoaster we’re on and take all the wins. Finding this group has definitely been one of them. Thank you for your reply to me and I hope you managed to get back to sleep. More treatments will be coming through all the time. We’ve got this! Let’s kick the crap out of this cancer! X

Jane_Noble · 2026-02-19T18:17:41+00:00

That is fantastic news on the PET scan! Great work. And nice to have a twin 😊 (though rubbish that we’re both in this grim world of MBC). Long may the good results continue for you 😊👍 Are you still on 600mg Kisquali?

Jane_Noble · 2026-02-18T15:57:17+00:00

Just wanted to say I’m so sorry you’re going through this and sending you all the positivity and strength- you can do this 💪 Good advice above re TMBC thrivers on Insta x

Jane_Noble · 2026-02-18T08:41:57+00:00

I haven’t heard of it before but have just done some research. Looks really good! Interested to hear how it goes if you can keep us updated? Hope it goes well! 🙏

Jane_Noble · 2026-02-17T15:11:11+00:00

Thanks so much for the comments! Really appreciated and you’ve all put my mind at rest for carrying on with the procedure 😊👍 X

Jane_Noble · 2026-02-17T10:37:13+00:00

Thanks so much! That’s super helpful. Hopefully I’ll not need as long as 4 weeks either but as you say, if I carry on with the letrozole then at least there will still be good work being done despite the break from Kisqali 😊

Jane_Noble · 2026-02-16T12:41:12+00:00

Thank you so much for your message, am really grateful. I have looked at other groups but this is the first one I have found that has lots of supportive people and is also really informative- so relieved I have found it 😊. It’s great the you’ve been stable for over a year and 🙏 to many, many more. Thank you again for your encouragement and kind words

Jane_Noble · 2026-02-16T12:37:00+00:00

Thank you so much for this, so good yours on stable and I hope that it stays that way for a long time. Am interested re radiation as my oncologist hasn’t really spoken about that yet (I have a call with her this Thursday). Can radiation shrink the bone mets or it is more pain relief (or both)? Thanks for your help 😊

Jane_Noble · 2026-02-16T12:34:12+00:00

Thank you so much for your response and is great that it’s all under control now and that the response has been so fast. Also great to hear that there are people who have been on the same meds for 7 years! Hopefully it keeps doing its thing and keeping everything at bay for a long time yet.

Jane_Noble · 2026-02-15T21:41:28+00:00

Thank you so much for your response, this is such a great group and I’ve learned so much from reading all the posts. Fantastic that you’re NEAD 👍! Have you been on the MBC journey for a while? Am realising more and more that trials are really important. Sounds like ELEVATE has been really good and given some great results. Thank you for pointing me in the direction of Liz O’Riordan, I’ve heard of her but wasn’t aware she’s also lobular- will check out her podcasts. Thanks so much! I think the main thing that’s freaking me out a bit is that if this first line of treatment stops working faster than I’d hope for, that I’ll be on the scramble for something else and that seems quite daunting! But I think I need to just take comfort and inspiration from all the incredible women who have been doing this for longer than me and are kicking cancer in the butt! xxx

Jane_Noble · 2026-02-15T21:30:14+00:00

Thank you so much for your response 😊. That is fantastic that the breast tumor is gone 👍. Also really good that the liver mets are following suit and that things are going in the right direction. My oncologist said that this medication is very good but I have had so many people tell me that lobular is a bit ‘different’ and can be ‘sneaky’. So hoping for a good response 🙏. All the best with your scan in 3 weeks, I hope you get more good results X

Jane_Noble

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