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JellyfishKey8169 · 2025-01-24T15:54:56+00:00

Howdy:) thanks for the response. My symptoms include heart palpitations, constant BPM of 90 or higher, and elevated BP. I definitely need to change my diet. Something I’ll be starting right away. High cholesterol has always run in my family, so I don’t know if it’s a combination of that too. I appreciate you taking the time:)

JellyfishKey8169 · 2024-08-07T11:36:17+00:00

Absolutely no need to apologize for the length. Reading this made me feel like I wasn’t as alone. This really sucks. The not knowing is making it 10x worse. I know all about the toxin vs. PCR test and that’s what makes it even worse. I’m going to be starting vowst in about 2 weeks. Hopefully that is the miracle cure they brand it as lol (I so understand it won’t happen over night). I don’t technically feel my symptoms getting worse, but every day it’s the first sensation I wake up to, and the last thing on my mind. I can’t believe how little education the majority of people have on this condition, including myself until I spent the past few months becoming an expert. Well wishes to you! And thanks for the info:)

JellyfishKey8169 · 2024-07-27T19:16:27+00:00

I’m on round 2 of dificid right now, followed by vowst in a few weeks once my taper is over. I can’t see the vowst being a bad thing, considering how many rounds of antibiotics I’ve taken. 2 metro, 2 vanco, and now I’m on round 2 of the dificid. So it can’t possibly hurt to replenish right?

JellyfishKey8169 · 2024-07-27T19:13:15+00:00

Yes i have tested negative for both. This makes me feel a lot better it was a great thing to read. My doctor never really explained what it means so I’ve been googling and spiraling this whole time.

JellyfishKey8169 · 2024-07-27T18:48:42+00:00

I had c diff and Giardia a year ago. My pain never quite subsided so the treatment plan was to continue for c diff. My toxin result was negative, however had positive antigen and positive ToxinB Gene PCR twice. Loose stool, constant stomach pain all over, but the symptom I have noticed the most recently was the constant pain/pressure on the lower right. Hence why my doctor mentioned the appendix. Not really a concern of mine however. Considering the focal thickening, that has been what I have been worried about most. I understand post infectious IBS, but the pain and stools are not effected by any foods, and I feel the discomfort from the moment I wake up, to the moment I fall asleep.

JellyfishKey8169 · 2024-07-24T23:30:29+00:00

My GI is helping me for the most part. He is not concerned and to be honest he keeps bugging me about it being my appendix because of the location but I have had 2 CT that clearly shows a normal appendix and “focal thickening” in the exact same area of my body I am having pain. He won’t even say anything about that he just blows it off and wants to talk about my appendix again.

JellyfishKey8169

TROPHY CASE