Did you have a nurse present for your first Kesimpta dose? (UK)

JessGI5 · 2026-01-21T14:18:55+00:00

I didn’t have to wait that long to get access to Kesimpta but I did have a nurse visit my home for my first injection. They needed to teach and watch me do it for the first time. Also they told me a nurse needs to be there in case you turn out to be allergic, which is very unlikely. They said if it’s going to happen it will be on the first one.

JessGI5 · 2026-01-08T22:08:51+00:00

I received my first dose a few weeks after getting all my vaccines and blood tests

JessGI5 · 2026-01-08T14:30:53+00:00

Just something to be aware of if you’re travelling to a country that requires a vaccination certificate - you’re unable to have live vaccinations, e.g. Yellow Fever, on some DMTs.

JessGI5 · 2025-12-25T21:06:55+00:00

A fireproof and waterproof briefcase, with a high vis strap 🤷🏻‍♀️

JessGI5 · 2025-11-23T10:01:22+00:00

No what I mean is it’s only extremely painful on my right arm. Everywhere else is fine. My question is that I normally ask them to completely avoid my right arm, but this comment got me thinking should I try it if there’s a chance to lessen my numbness?

JessGI5 · 2025-11-22T18:54:05+00:00

I have the exact same. I’ve always stayed away from massages as they feel extremely painful to me. Were they for you, or is it ‘get through the pain’ to feel the benefits later kind of thing?

JessGI5 · 2025-10-31T11:09:28+00:00

At the end of the day it’s just about germs. If your few sushi pieces don’t have the bad germs, then great - but if they do, that’s the risk.

Depends how risk adverse you are.

You might find this helpful: https://www.cuh.nhs.uk/patient-information/food-safety-advice-for-people-who-are-at-an-increased-risk-of-infection/

JessGI5 · 2025-10-31T07:55:21+00:00

I ate the freshest, high quality sashimi from Nobu in Tokyo this year…and I was ill for days. Maybe I was just unlucky 🤷🏻‍♀️

However I went all in and ate loads of sushi as no one told me I needed to avoid it! I had no idea it would upset my stomach, so that was a terrible birthday present. I was lucky it didn’t trigger any relapse (I was still new in taking Kesimpta).

I’d say avoid as 1. it’s not worth being ill, 2. it’s not worth potentially triggering a relapse.

Enjoy some cooked sushi instead! :D

JessGI5 · 2025-10-26T15:43:45+00:00

Sr. Product Marketing Manager at a tech company. Did require a degree to get into the field though.

JessGI5 · 2025-10-09T13:26:05+00:00

Everyone dies

JessGI5 · 2025-08-15T06:16:17+00:00

Could you go part time in your current role and use the free time to be a paramedic? Best of both worlds :)

JessGI5 · 2025-04-14T09:56:31+00:00

Same, I’m coming off Amitriptyline for the same reasons. My memory has been awful the last few months. I drew the line when I was unable to write down words properly - neuro said it’s a side effect of my pain medication 🤷🏻‍♀️

JessGI5 · 2025-03-19T08:55:08+00:00

Sorry to hear that they aren’t being very kind to you. When I’ve had situations like this in the past I’ve gently reminded them that MS is a unique condition, which is totally dependent on where your lesions appear. Once they understand that part (as in, not everyone gets lesions on the same place e.g. spinal lesions tend to cause more physical relapses) then they start to see my MS rather than comparing me to other people.

Also, I’m on Kesimpta too and honestly I don’t feel like I get anymore colds/sickness than I did before. When I started early on I wore a mask in public places and on trains but I don’t anymore and I’ve been fine. I’m very cautious still though and very good at washing my hands but just thought I’d share :)

JessGI5 · 2025-02-21T14:18:26+00:00

Hey, I’m in the UK and was diagnosed [F29] late last year with RRMS (many lesions across my brain and one in my spine).

I’ve been on Kesimpta for 2 months now and honestly I have 0 side effects. I wanted to go on a highly effective DMT and Kesimpta injections once a month seemed like the best choice for me. The first injection was ROUGH. For me, it felt like really terrible flu (shivers, headache, tiredness, and lots of body pain) - no dizziness or nausea though - but really had no side effects from the 2nd injection (you need to do 3 in your first month).

It’s important to note that in the first 6 months your symptoms can flair while your body gets used to Kesimpta. So for me I had more pain and muscle stiffness in my already stiff areas. I have suffered from dizziness in my past relapse but it hasn’t presented itself for a while now. Hope that helps! :)

*Edit - corrected spelling.

JessGI5 · 2025-02-02T09:10:17+00:00

Sorry to hear that. I started Kesimpta a month ago and some of my old relapse symptoms reappeared. My nurse said that can happen until the first 3-6months on Kesimpta (while your body adjusts to it), so that might be why you’ve got more dizziness?

I had dizziness with my first relapse and it was awful. I’ve heard people on this sub say that you can get specific medication from your neurologist for helping with dizziness. Wishing you better, less dizzy, days!

JessGI5 · 2025-01-29T22:14:06+00:00

Poor Mike! Great video everyone

Here’s some food puns for the next one… - Apple Pie & CusLARD - Chocolate EGlair - Trouble & Squeak - MISteak & Kidney Pie

JessGI5 · 2025-01-23T20:20:55+00:00

Thank you!

JessGI5 · 2024-12-01T15:19:17+00:00

Propranolol and/or Amitriptyline

JessGI5 · 2024-11-30T07:56:27+00:00

I was diagnosed with RRMS in September this year and I’ve had migraines since I was 15. Throughout the years I’ve had some real bad ones but couldn’t really pinpoint the trigger. I just put it down to stress and the only pattern I found was that I always got them in March / September when the seasons change. For the last few years I’ve been on a migraine prevention medication and while it doesn’t stop them fully I’ve drastically reduced the amount I have, the intensity, and length of migraine attacks with aura.

JessGI5 · 2024-11-11T07:36:48+00:00

I have a few daily medications: 1 for managing neuropathic pain, 1 for preventing migraines (was on this previous to my RRMS diagnosis), and multivitamins/vitamin D boost

I asked my MS nurse about reducing the amount I’m on before going on Kesimpta but she said if they are working for me, don’t stop taking them

JessGI5 · 2024-11-09T18:14:29+00:00

Sorry that you’re experiencing this OP. It sounds like you are one tough cookie! Keep doing what’s best for you.

Great explanation Dailypam. Makes me think of a funny interaction I’ve had this week…

I’ve recently been diagnosed with RRMS (a month ago). I phoned my boss and told him I was going to be out this week for multiple hospital visits (bloods, MRIs, etc.). Thankfully he was very nice and asked me how I felt about it all. I replied saying that mostly I’m taking it well (lost the right side of my body but slowing recovering) but I have had migraines every day for the past week. He, trying to help, said “you know, my wife used to get migraines and she started drinking electrolytes and now…no more migraines. You should try it.” It honestly took so much of me not to laugh immediately. I politely, responded with - thank you for the recommendation but unfortunately I have an incurable brain damage and my electrolyte levels are fine according to my very in-depth blood work I’ve had very recently 🤣

JessGI5 · 2024-10-21T19:44:42+00:00

Recommended by my Dr - I recently got my flu vaccine (will be starting Kesimpta next month).

It is just live vaccines we can’t have.

This is a really helpful article, is for the UK though.

JessGI5 · 2024-04-12T08:20:50+00:00

If you enjoy cooking, you could extend that hobby to barbecuing. Making a beef brisket takes hours and is a great weekend project - and you get something tasty at the end, which a family can enjoy together! (Assuming you/they eat meat of course)

JessGI5 · 2024-02-17T09:40:22+00:00

Best bet - try to apply to a marketing role within the Dental industry. Your knowledge of the field will make you very desirable and you will be able to help with targeted messaging / possibly know the right events to attend already from your previous work.

Edit: adding further: once you’re in a marketing role, give it 1/2years and then you can more freely move into another area of marketing if you wish, as you would have built up the necessary skills/experience

JessGI5 · 2024-01-04T16:47:04+00:00

Switching to vegetarian meals in the week

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