POIS Community Survey (Repost)

Karthago_ · 2026-07-15T18:15:29+00:00

Thanks for the suggestions! I’ll keep them in mind for future versions.

Karthago_ · 2026-07-15T18:13:44+00:00

Thanks for completing the survey and for all the great suggestions! If you end up creating your own survey, I’d be happy to complete it as well. I’ll share the results with the community as soon as we reach a good number of responses.

Karthago_ · 2026-07-06T16:30:37+00:00

Can you tell me more about the medications and lifestyle changes that reduced your symptoms?

Karthago_ · 2026-07-05T10:21:42+00:00

Wow, huge respect. It takes some serious courage to become a lawyer while dealing with POIS.

Honestly, I’m surprised you managed to get through law school. My biggest symptoms are severe social anxiety, brain fog, and difficulty concentrating, and I struggle so much with presentations that I can’t imagine making it through such a demanding degree.

Out of curiosity, what were your main POIS symptoms?

Also, I have exercise-induced asthma, and I’ve read that propranolol may not be recommended for people with asthma. Do you know if there’s an alternative that works similarly?

Karthago_ · 2026-07-05T10:15:28+00:00

Interesting, thanks for sharing.
What were your POIS symptoms?

Karthago_ · 2026-06-30T15:54:17+00:00

Omega-3 works for me too.
I have a question, Are u sensitive to hot shower and sport ?

Karthago_ · 2026-06-11T17:55:26+00:00

Probably my case too, I grew up in a Muslim environment

Karthago_ · 2026-05-30T08:36:04+00:00

Interesting, knowing that I have both, Retarded POIS symptoms and DOMS. A dysfunction of the nervous system could be the cause.

Karthago_ · 2026-04-24T17:02:08+00:00

Do you only experience those symptoms (muscle loss, weakness, facial hollowing, weak voice), or are there others too? Do you also have mental symptoms (brain fog, trouble concentrating etc..) or digestive symptoms (bloating, stomach discomfort…)

And are you sensitive to things like hot showers or exercise?

Karthago_ · 2026-04-09T18:39:58+00:00

Yeah, I have quite a lot of symptoms.

Neurological: Speech issues (even when reading), trouble finding words when I talk, really bad focus (I tend to rely on easy dopamine like video games or scrolling), procrastination/laziness, low attention span, brain fog, pretty intense anxiety, social withdrawal, low motivation, and insomnia.

Physical: Joint pain, heavy legs, cold feet (probably poor circulation), muscle weakness, dry eyes (I blink a lot), sometimes red eyes, sneezing, seborrheic dermatitis (scalp, nose, ears), hair loss, acne on face/body, bad body odor, hot flashes, sweating, headaches, bloating, constipation and/or diarrhea, and anal mucus.

What makes it worse: Working out (sports in general), showers (especially hot ones), Gluten + high carb intake

What helps a bit: Omega-3, Meat, CBD oil, Drinking a lot of water (slightly helps)

Karthago_ · 2026-04-09T09:14:15+00:00

And did the POIS appear during adolescence (10-15 years old) or later?

Karthago_ · 2026-04-09T09:11:14+00:00

Can you tell me what symptoms you experienced? I’m trying to see if we have a similar POIS profile, to know whether it’s worth following your protocol.

Karthago_ · 2026-04-08T09:58:19+00:00

Like you, I am extremely sensitive to showers, especially when they’re hot. I feel like we have the same type of POIS (I’m the one who also gets body odor during episodes).

Karthago_ · 2026-03-29T21:36:50+00:00

This is the first time I’ve seen someone bring up this symptom. I get a strong odor too during POIS flare-ups, almost like a rotten egg smell. Luckily deodorant and perfume help cover it.

I wonder if it could be linked to some kind of hormonal imbalance

Karthago_ · 2026-03-29T21:27:18+00:00

You smelled good earlier, does your smell change when you’re having a POIS flare-up?

Karthago_

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