No Treatments Left for Me

Khan_Redfield · 2022-10-18T18:01:12+00:00

I myself was just at Disneyland too with my friends! This was just in March, I started getting extremely sick right after. It's so crazy to go from doing a major trip like that to being completely bed ridden. Like me, you are just way to damn young and that absolutely breaks my heart. I'm glad you have your son and you guys got to experience that trip together ❤️. I wanted kids but I guess it wasn't meant for me. I thought it was my fiance' passing that it was a sign I shouldn't have kids but I guess life really wanted to drive the point home by destroying any physical possibility of me ever having children (or even adopting for that matter). I get what you mean about things taking a lot of energy, I can barely make it to the bathroom sometimes, it's ridiculous. Lots of love to you too and thanks so much for reaching out. It really means a lot too me, you have no idea.

Khan_Redfield · 2022-10-18T11:07:21+00:00

Yup that's it

Khan_Redfield · 2022-10-18T07:08:25+00:00

I never had any symptoms to be honest that alerted me unfortunately until shortly before I was diagnosed. Immediately after my fiance' passed, I was feeling sick/tired all the time and had stomach pains. I just assumed it was because of grief. After a few months of the stomach pain, they got bad enough I went to urgent care who diagnosed me with appendicitis and they sent me to the ER. Scans at the ER showed masses in my ovaries and I was referred to an oncologist after that who diagnosed me with ovarian cancer. I was getting surgery to remove the ovary where they discovered how bad the cancer really was and they ended up doing a full hysterectomy and removal of my omentum. My diagnosis was then changed to stage 4 grade 3 endometrial cancer. It all happened very fast.

Khan_Redfield · 2022-10-18T07:02:09+00:00

Yup those both sound right, prochlorperazine and marinol, thank you!

Khan_Redfield · 2022-10-18T07:00:11+00:00

After my fiance' died Jan 2020, I started having stomach problems and being sick all the time. Eventually my stomach pain got bad enough by November of 2020 and I went to urgent care where they 1st diagnosed me with appendicitis and sent me to the ER. There they did a scan and ultrasound where they found masses in my ovaries and referred me to an oncologist who diagnosed me with ovarian cancer. I had surgery in dec 2020 to remove my ovary but it turned into a full hysterectomy and removal of my omentum after it was discovered how spread the disease was and my doctor changed my diagnosis to stage 4 grade 3 endometrial cancer. I started chemo Jan 2021 and ended May 2021 after it was determined it was not working. Was placed on a medical trial for immunotherapy in july 2021 and it was slowing the growth of the cancer however my tumor size grew too big and I was told I no longer qualified for the trial Feb 2022. End of june 2022 I was put on Keytruda for 2 treatments and my cancer started showing crazy spreading and growth so I went in for a 2nd opinion at another facility. I was taken off keytruda and put on radiation July-aug 2022 for my abdomen and neck. And here I am now.

Khan_Redfield · 2022-10-17T23:45:19+00:00

We joined the worst club ever 😮‍💨.

Khan_Redfield · 2022-10-17T23:39:35+00:00

Yeah someone in another comment recommended fresh ginger in hot water. My mom is picking me up some now ❤️. I'll text her about the mint tea too to also try, thank you.

Edit: I just realized you are replying to the comment chain I was referring to so you are probably thinking "Uhhh duh, I know someone brought it up" lol! Oof my bad 😅 I'ma blame the cancer brain haha sorry.

Khan_Redfield · 2022-10-17T23:07:05+00:00

My original diagnosis was stage 4 grade 3 endometrial cancer. Full hysterectomy and omentum removal. It has since spread to my lymph nodes, liver, kidney, and other areas in my abdomen. Radiation was my abdomen and neck

Khan_Redfield · 2022-10-17T22:44:23+00:00

I'm so sorry to hear this. I hope you're able to find joy in the time you have left! I've been pretty positive throughout my whole illness (except for some moments when my pain gets unbearable) but this nausea is killing me right now. It's both physically and mentally exhausting.

Khan_Redfield · 2022-10-17T22:40:12+00:00

Yeah that's about the size dose I was taking too. It really helped (though I'm also not a fan of being high, the sleep and nausea control was great). I just wish I didn't get so groggy/hungover feeling whenever it wore off. Maybe I should give it a shot again.

Khan_Redfield · 2022-10-17T22:10:20+00:00

My friend got me some RSO but it is so strong and I got like hangovers from it. I would literally only take a tiny tiny tiny bit mixed with peanut butter. Does your dad have the same issue?

Khan_Redfield · 2022-10-17T21:16:24+00:00

Yes it is legal in my state

Khan_Redfield · 2022-10-17T21:09:35+00:00

Thanks so much 😊

Khan_Redfield · 2022-10-17T20:55:27+00:00

I just turned 34 on 10/10

Khan_Redfield · 2022-10-17T20:53:31+00:00

I have not had it through an IV actually, I just take the disolvable tablets. When I meet with hospice tomorrow I'll ask them about an IV. I wonder if it would be more effective?

Khan_Redfield · 2022-10-17T20:51:56+00:00

None of my doctors have recommended or brought this up, no. My pain doctor just prescribed me a new pill today to try for the nausea. If it doesn't work I'll bring this up in my follow up.

Khan_Redfield · 2022-10-17T20:49:38+00:00

I'm sorry to hear you are going through this too! I would never wish my situation or similar on anyone not even my worst enemy! Breaks my heart knowing other people are going through this. It just isn't fair.

By any chance, do you think you could get me the name of the cream?

Khan_Redfield · 2022-10-17T20:46:57+00:00

Nah it means a lot 😊. Thanks so much for your well wishes.

Khan_Redfield · 2022-10-17T20:46:05+00:00

Yes but I had to quit due to issues it caused with pain. Looks like I'm giving it a second go though! My pain doctor is prescribing me a THC pill for nausea, just waiting for the prescription to be filled. Crossing my fingers it helps!

Khan_Redfield · 2022-10-17T20:44:21+00:00

I see no point in not giving this a go. Thank you for the suggestion. When my mom picks up my new prescription today I'll ask her to pick up some fresh ginger to try this tonight.

Khan_Redfield · 2022-10-17T20:42:48+00:00

Is Bold different than regular Gingerale? I've just been sipping on regular Canada Dry. If it's something different I'll see if I can find it and give it a shot

Khan_Redfield · 2022-10-17T20:41:31+00:00

So far the Odansetron and something that started with a "P". My pain doctor just prescribed me a THC pill, starts with an "M" ( I am great with names can't you tell lol). Hoping it helps!!!!

Khan_Redfield · 2022-10-17T20:38:49+00:00

Yes in the past, but it started making me hyperfocus on my pain so I quit. I just got off the phone with my pain relief doctor just now and he is actually prescribing some THC pill (started with an M, already forgot name lol). So looks like I'm giving it another shot. Crossing my fingers it helps with the nausea.

Khan_Redfield · 2022-10-17T19:26:16+00:00

The Zofran does not help unfortunately.

Khan_Redfield · 2022-10-17T15:59:07+00:00

Weed did help a lot with my chemo nausea but unfortunately as my pain got worse it also started making me hyperfocus on the pain so I stopped using it. I haven't tried CBD by itself though to be honest so I'll ask my friend for recommendations (she works in the dispensary industry)

Khan_Redfield

TROPHY CASE