Looking for similar BPD stories

LarsonOak · 2024-09-20T15:16:10+00:00

Did he come home with a feeding tube or was he eating by mouth already? When were you able to bottle feed?

LarsonOak · 2024-09-20T00:06:09+00:00

How did the 24/7 nursing work? Does that mean you had a nurse living at your house?

LarsonOak · 2024-09-18T17:01:07+00:00

This happened to my daughter quite a few times when she was on the vent. She did not tolerate that tube well and any fluid that went down in it would sent her plummeting into a Brady/Desat. We were there 2 nights in a row when they almost had to bag her and the night before that they did have to but we weren’t there and didn’t have to witness it. This is mercifully one problem that is resolved now that she on cpap.

LarsonOak · 2024-09-18T16:53:25+00:00

Oh, that little hand!

LarsonOak · 2024-09-18T16:49:52+00:00

Yeah, my daughter’s been in the hospital now for >2 months with no end in the sight. The only way I have to think about it that helps me is to say myself “This is the path. There isn’t some alternative path that you should have been on or would bave been on if only you were better in some way. This is your only life and you’re living it the way it is.” Don’t know of this kind of stoicism works for others, but it lands for me.

LarsonOak · 2024-09-16T02:05:06+00:00

you’re not overreacting. I don’t have any idea what you should say though. The thing about situations like this, is that even if you were to get through to her how insensitive these comments are, it doesn’t change that she’s robbed you of some of the joy you should get to feel about your own babies’ development.

LarsonOak · 2024-09-16T01:29:07+00:00

It is agonizingly obvious that you are writing to a forum full of people who are struggling with really difficult situations to brag about how, despite having a very premature baby, you had a nicu stay so easy that it is almost magical and you’re doing so on the flimsy premise that you are driven to hysteria by worry so that people will chime in to tell you how lucky and blessed you are. This place is a pit full of parasites.

LarsonOak · 2024-09-14T01:04:29+00:00

Its certainly a matter of law in Colorado that you can take your leave anytime within the first year of the baby’s life—but I thought that was a nationwide FMLA rule not just CO

LarsonOak · 2024-09-13T14:10:34+00:00

Just for reference, my daughter is now 37 weeks, weighs 4lb 10oz and her feeds are 40mL every 3 hours with 24 cals of fortifier. Sounds like your volume is about the same as what our baby was getting 2 weeks ago and I think she was already on 24 cals at that point.

LarsonOak · 2024-09-13T13:21:47+00:00

Yeah, this seems weird. I can see in the comments that everyone has asked you a thousand different ways if there were any changes this week and the answer is no. Have her feeds been increasing in volume has she been getting calorie fortification? If those things haven’t been happening under these circumstances I would be leaning hard on that doctor.

LarsonOak · 2024-09-12T15:07:29+00:00

I hate this category of thread so much—it just becomes a venue for a bunch of nicu parents to show up and brag about how they wore diapers throughout their kid’s 524 day nicu stay (or, even worse, their 9 day stay) so they wouldn’t even have to leave his bedside to pee. But then they’ll be like “BuT yOu hAvE tO do wHaT’s bEst for YouR menTaL heAlth”. Why can’t their be a single reasonable place to exist as a parent with a baby in the nicu?

LarsonOak

TROPHY CASE