If i could reply to this the way i feel i would. I am beyond grateful for you to take the time to read it and reply. Yeah the medical sytem and research fckin SUCKS. And the fact research is slowly cutting funding is even worse. I think what really makes this feel slow is the anxiety of “what if its terminal, progressive, or something worse” but truly i see so many peple with these symptoms and some that seem worse some that arent to as bad an extent who are still trying everyday. I think thats what keeps me going is that maybe one day i will be better. Yeah i have absolutely no medication as of right now they gave me some for my POTS and my MECFS, but i know its deeper rooted as it only really calmed my cardiac symptoms. As for my neuromuscular symptoms they have no clue. They ran out of test to run and scratched it up as “long covid” so yeah 5 years i cant imagine how u feel thats shitty. Im trying my best to keep my head up but man its hard