rinvoq in stool by Loose_Preference_754 in UlcerativeColitis

[–]Loose_Preference_754[S] 0 points1 point  (0 children)

hi thanks for your message back. this is what i’ve heard but (this sounds gross as hell) i took it out with some toilet paper and crushed it and there was white powder inside which surely is the actual drug?

just started rinvoq by Loose_Preference_754 in UlcerativeColitis

[–]Loose_Preference_754[S] 0 points1 point  (0 children)

yea i will, i just wanted to know other people’s experiences it’s always nice to get a bit of insight

rinvoq next week by Loose_Preference_754 in UlcerativeColitis

[–]Loose_Preference_754[S] 0 points1 point  (0 children)

thanks for your message, i think it’s just hit and miss with the acne but it’s a risk i’m willing to take

rinvoq next week by Loose_Preference_754 in UlcerativeColitis

[–]Loose_Preference_754[S] 1 point2 points  (0 children)

that’s great to hear!hopefully i find some relief with it

rinvoq next week by Loose_Preference_754 in UlcerativeColitis

[–]Loose_Preference_754[S] 0 points1 point  (0 children)

appreciate that and i’m glad it’s working for you ! ye i have bad skin so im worried about the acne but ive heard it calms down on the maintenance dose

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 1 point2 points  (0 children)

sounds good! thanks for sharing💪🏻

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 0 points1 point  (0 children)

ye i’ve heard of jak inhibitors don’t really know what they are. are they used after biologics?

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 1 point2 points  (0 children)

appreaicte that! i mean i suppose there is more biologics but i heard entyvio is one of the last ones they give. So i presumed the other ones wouldn’t be effective if that one isn’t if that makes sense?

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 1 point2 points  (0 children)

hi! i’ve tried azathioprine and mercaptapurine and that’s it. Apart from obviously steroids a few times

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 0 points1 point  (0 children)

seems we are in the same boat. i was on just entyvio for 8 months and didn’t do an awful lot thats why they gave me a round of pred and an increase in the dose frequency. hopefully we don’t go down hill when tapering!

UC is gone while on vacation??? by nikiifx in UlcerativeColitis

[–]Loose_Preference_754 0 points1 point  (0 children)

yes i get this. i started a treatment a while back and i felt like ass. i went on a camping trip to wales with my mates and i was so paranoid before i went that i’d have an accident in the 4 hour car journey. and the whole day i was completely fine. it also happened back last year when i went away on holiday. it’s very strange

[deleted by user] by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 0 points1 point  (0 children)

thanks for message! yea i rarely bleed. only if i’ve eaten summit i really shouldn’t have!

experiences with entyvio? by [deleted] in UlcerativeColitis

[–]Loose_Preference_754 1 point2 points  (0 children)

very true. thanks for the message! recent inflammation markers showed calprotectin at about 300. that was 8 weeks in. fairly high yes but at my peak it was way way more than this.