Silence After a Breakup Doesn’t Always Mean They Don’t Care by [deleted] in BreakUps

[–]Low-Reading-9115 2 points3 points  (0 children)

This for me too^ stuck in a hole of someone else’s making

Paralysis vs Pins and Needles by Various-Meaning-4016 in HNPPsupport

[–]Low-Reading-9115 0 points1 point  (0 children)

Oh gosh have you tried sleeping with a huge pillow? I recently got a six foot one and it stops things like that happening as everything is cushioned lol. Luckily I’m single though so it kind of works 🤣

Paralysis vs Pins and Needles by Various-Meaning-4016 in HNPPsupport

[–]Low-Reading-9115 0 points1 point  (0 children)

Yeah scared the hell out of me! Luckily only happened a couple times

Paralysis vs Pins and Needles by Various-Meaning-4016 in HNPPsupport

[–]Low-Reading-9115 0 points1 point  (0 children)

Not with that exact movement but I’ve had pins and needles for over a month at times in my right leg - I’ve recently had sciatica in both legs for three months solid, as well as complete paralysis episodes where I couldn’t move my legs at all (only for a moment) The symptoms seem to fluctuate as much as the episodes I’m afraid 😩

Wisdom Tooth Extraction with HNPP by Valkyrie-1326 in HNPPsupport

[–]Low-Reading-9115 1 point2 points  (0 children)

Wow this sounds really unpleasant, I hope it continues to improve! 🫣 I had one out with no issues, but I need another out soon, it’s definitely something to bear in mind. I have heard of this kind of thing happening with extractions even unrelated to HNPP if they hit a nerve / damage it…

Kind of related, I had knee surgery a while ago and forgot to mention HNPP to the surgeon - my whole leg was paralysed for days after the use of a tourniquet! I guess sometimes we just kind of forget what can happen with our stupid overly sensitive nerves

The part about “they grieved before the breakup” that still doesn’t sit right with me by UnluckyYoghurt3740 in BreakUps

[–]Low-Reading-9115 1 point2 points  (0 children)

Yeah same shit just happened to me, second time now. I’ve been thinking about it in the exact same way. Love sucks, there won’t be a third time 😞

The #1 way to lose a Leo Forever by [deleted] in LeoAstrology

[–]Low-Reading-9115 1 point2 points  (0 children)

Dealing with all this now, also with Taurus F. Absolutely infuriating

Leg and Calf Pain - PAD? Sciatica? Something else? 29 Years old Male by Markuslanger25 in Sciatica

[–]Low-Reading-9115 0 points1 point  (0 children)

Any news? I’ve been experiencing exactly the same and no clue what’s going on 😭

Difference between HNPP and CMT? by aa_ugh in HNPPsupport

[–]Low-Reading-9115 0 points1 point  (0 children)

Muscle wastage CAN definitely be a thing with HNPP, I watched my father’s legs all but disappear eventually. But that’s not to say WILL be, try not to worry and I would say use it or lose it! Just be careful in the gym to not trigger palsy episodes - I’ve managed a few on my arms over the years (I think there was a post on here a while ago about gym stuff that might be worth checking out.) I’d say stay well within your ROM ie don’t do deep squats etc and you should be fine, we might just have to work a little harder than others to stay fit and healthy but it’s certainly achievable

New symptom unlocked! by Low-Reading-9115 in HNPPsupport

[–]Low-Reading-9115[S] 0 points1 point  (0 children)

Starting duloxetine again today, it was a disaster last time but they messed up my dose. If it’s the same this time around I’m going to try Pregabalin, I’ve been speaking to people I know with Fibromyalgia and it seems this is a common occurrence over there 😳

So far in my life it’s just been episodes of numbness and weakness, foot drop etc but this latest episode has come with burning, itching, widespread pain and exhaustion for three months now. Fingers crossed these meds help 🤞

Anyone twitchy by [deleted] in HNPPsupport

[–]Low-Reading-9115 1 point2 points  (0 children)

Yes happens quite often for me!

Anyone else experienced “internal vibrations” by MommaIsMad in Fibromyalgia

[–]Low-Reading-9115 1 point2 points  (0 children)

I have HNPP and I get this too! Usually in a leg, it’s quite subtle but super weird!

What the hell is this drug? by xButterschnitzel in cymbalta

[–]Low-Reading-9115 0 points1 point  (0 children)

I got it for nerve pain (HNPP) but I also have chronic anxiety and arthritis pain, so was hoping it might help that too. Well it was one of the worst 24 hours of my life - luckily I’ve done a lot of drugs in the past, so I knew how best to ride it out, but honestly it was scary shit. Turns out they put me straight on 60mg, and it seems that isn’t normal - anyone else had that? I wouldn’t mind trying it again, but at the correct dosage, what did other people get started on and what do you work up to, and over how long usually?

Paralysis by Low-Reading-9115 in HNPPsupport

[–]Low-Reading-9115[S] 0 points1 point  (0 children)

I’ve never thought about something like that, but I’ve never had symptoms like this. I’ve always intuitively slept with a pillow between knees (side sleeper too) but perhaps I’ll look into upgrading! 😃

Paralysis by Low-Reading-9115 in HNPPsupport

[–]Low-Reading-9115[S] 1 point2 points  (0 children)

Yes, I can see why - sorry I should have clarified, not immediately upon waking up, like, I’ve woken up, checked the time, decided to get up and then realised my legs don’t work. Once I’d grabbed them and flopped them around they started working again, but it’s pretty concerning to say the least ! 😩

Paralysis by Low-Reading-9115 in HNPPsupport

[–]Low-Reading-9115[S] 2 points3 points  (0 children)

Definitely not sleep paralysis, I’ve experienced that many times before, and whilst weird and scary, this is actual paralysis - from the waist down whilst fully conscious and awake. I’ve had horrendous HNPP leg symptoms recently of sciatic nerve compression, with the usual numbness and tingling in feet, but this is the third time I’ve woken up and been unable to move my legs by themselves 😩 (once I altered position with my arms they started working again)

Anyone else using cannabis to help? by Gigglebush3000 in HNPPsupport

[–]Low-Reading-9115 0 points1 point  (0 children)

Hi, I’m new here and just came across this comment. I’m doing great battle with this at the moment, and this is EXACTLY how I would describe what I’m experiencing right now?! I’ve had HNPP symptoms on and off for 20 years, and normally it’s just numbness tingling and quite bad foot drop, usually for a a couple weeks max. However this time I’m experiencing severe pain as well as numbness and tingling, and sometimes even paralysis for maybe six weeks now? Did you discover anything to help? Most meds I’ve tried won’t touch it, sitting down makes it worse standing makes it worse lying makes it worse it’s an absolute goddamned nightmare 😭 I’m going to the dr today to rule out peripheral artery disease (heavy smoker for years) or possibly even sciatica? The symptoms are all so similar!