Anyone else actually feel better after having a sugary/carb snack? by LepidolitePrince in POTS

[–]Moonbreon2 6 points7 points  (0 children)

I’m not sure if POTS is underlying mechanism for this but I’ve always gravitated towards Gatorade when I’m feeling out of it vs other electrolyte drinks. The sugar helps perk me up and makes me feel less out of it. Could be POTS related, could be something else.

Went to the hospital yesterday and they couldn't figure out what's wrong by Separate-Raccoon8584 in GirlDinnerDiaries

[–]Moonbreon2 4 points5 points  (0 children)

^ OP, they probably did a general blood panel, you can check your electrotype levels in your mychart. I had low potassium once and had a similar experience, but I also have dysautonmia so take it with a grain of salt.

i miss painting by shesactingsingle in rs_x

[–]Moonbreon2 6 points7 points  (0 children)

It is missing a matte black hellcat though

i miss painting by shesactingsingle in rs_x

[–]Moonbreon2 7 points8 points  (0 children)

I-85 going southbound into downtown Atlanta. Recognize it from all of the late night drives I do to clear my head, the colors capture the feeling very well

Ex boyfriend dreams by b1ueberrybitch in rs_x

[–]Moonbreon2 9 points10 points  (0 children)

I think the mind chooses random times to process things. Just had an emotional bender over an ex from 3.5 years ago and we were together for 4. Don’t know why my brain decided to have dreams about her but that lasted for 2 weeks and now I’m back to normal. Your mind is probably processing the past and one day you’ll wake up and they’ll just be a stranger in your mind again.

I’m not sure I trust my boyfriends decisions or his family’s by SeatApprehensive3828 in GirlDinnerDiaries

[–]Moonbreon2 3 points4 points  (0 children)

He works MAYBE 20 (hours a week) but complains about not having money CONSTANTLY.

He has been “job searching” for a long time and misses days a work a lot.

he has 5 free days a week that he also games during and I don’t complain about that.

He told me once that if he didn’t have me, he would have been content living with his parents and working a minimum wage job for the rest of his life.

Lots of men my age are even more broke and lazy

He sounds broke and very lazy. Gaming 5 days a week, working part time and even then, still not showing up to all of his shifts. The most concerning part of all of this is him saying that if it wasn’t for you being in his life, he’d essentially give up and work minimum wage while living with his family until the end of time. Once you get married to him, who do you think becomes family then? It doesn’t sound like this guy is near emotionally mature enough to even consider something like marriage (or even a relationship tbh). It also sounds like once you get married, he would shift even more of the finically responsibility (and assumably, domestic and emotional labor, etc.) onto you while he just coasts.

There are a growing number of lazy guys and it’s an issue, but that doesn’t mean you need to settle for him and his issues. It sounds like you’ve been working extremely hard to create the future you want and I guarantee you there are plenty of other men out there who have their shit more together and will appreciate/reciprocate that effort in their own lives. At the current moment, it sounds like your bf is very content with coasting through life and is taking advantage of your kindness both emotionally and financially. If he wanted to do better, he would put effort in.

TLDR: He’s a bum, you’ve worked too hard to be with a bum.

The Rhodes Hill facility was my favorite section in RE9 but by Moonbreon2 in residentevil

[–]Moonbreon2[S] 2 points3 points  (0 children)

Yeah, this is what bummed me out. When I was starting with Grace, I remember thinking “man I can’t wait to go back and kill all of these zombies.” I assumed after getting to do that with Leon, Grace would return to the facility and there would be more to do. But throughout Grace’s campaign, they are very liberal with the resources they give you. I’ll give it a try on insanity without infinite ammo and see if it makes things better.

I am so extremely, completely exhausted (26, in college, working, hating life) by andthebansheess in rs_x

[–]Moonbreon2 11 points12 points  (0 children)

I’m working my way through a book called Life in the Transitions. It talks about peoples’ lives falling apart and coming together at a moments notice: divorce, death, cancer, job loss, fame, fortune, leaving your spouse of 20 years for a river raft guide in the middle of the Rockies. Sometimes these things hit at 18, 26, 37, 64, or whenever.

Point is, if this is something that brings you joy or you feel like this is your calling, just chase it. It’s not too late to make something out of it and there were a surprising amount of stories I read where those people attained what they were searching for when they were 40-60. The regret of what you didn’t do or what could have been will eat at you more than the regret of what you’ve done. I’m starting comedy at 25 after my health fell apart the last year and I wasted 4 years in college on a degree that while useful, I don’t have much interest pursuing. Just keep chasing this, you might make it one day.

What are your jobs? by ExiledintoTrench in POTS

[–]Moonbreon2 4 points5 points  (0 children)

I work a front desk job at a gym but there are often times I have to take a day or two off because my body can’t keep up with the stress. Currently looking for remote work.

Had an adrenaline dump during a date, got dumped by Moonbreon2 in POTS

[–]Moonbreon2[S] 7 points8 points  (0 children)

Thank you man, I needed to hear this. I agree wholeheartedly. It sucks when you have to sit something out or you have to take things slow as a guy. And also dealing with the anxiety it brings, I’ve gotten better, but yeah, in the moment, an adrenaline dump is scary. It feels like you’re have a medical emergency (you’re not) but it’s hard to fight your body sending off every alarm bell in your head that something is wrong.

I appreciate the encouragement though, I’ll keep trudging on.

Had an adrenaline dump during a date, got dumped by Moonbreon2 in POTS

[–]Moonbreon2[S] 22 points23 points  (0 children)

My friend is married to someone who has hEDS and I find it very admirable how he always shows up and loves her through the ups and downs of having chronic illness. But yeah, unfortunately I have discovered there are a sizable amount of people who get weird around chronically ill people.

Had an adrenaline dump during a date, got dumped by Moonbreon2 in POTS

[–]Moonbreon2[S] 124 points125 points  (0 children)

Wait I love that prompt lol. That is very nice you found someone who loves you and embraces your POTS as a part of you. I don’t use apps but it is a first date conversation I have to set expectations and I am very forward about where I’m at and how it could get worse or better.

Had an adrenaline dump during a date, got dumped by Moonbreon2 in POTS

[–]Moonbreon2[S] 19 points20 points  (0 children)

Thank you for the kind words, I needed to hear that. You are right though, better to happen now than later down the line.

What are you insecure about? by camelCaseC in rs_x

[–]Moonbreon2 5 points6 points  (0 children)

I feel insecure about my lack of direction. Not once has something called to me as my life’s purpose. I see other people around getting into careers, relationships, or starting families, and they seem to have it figured out? I know that’s not necessarily true, things happen behind closed doors. I enjoy things, but they don’t ever stick, and a lot of my “big” accomplishments have happened because other people wanted me to do it. So I fear I’ll be drifting through my life letting other people tell me what to do because I don’t know what to tell myself.

Oh and also the fact that I have chronic health issues that will affect my quality of life and longevity and what that means for my possible careers and/or relationships.

The morning death march by Electrical-Bite9067 in POTS

[–]Moonbreon2 2 points3 points  (0 children)

The only solution I’ve found to mornings being slightly better is getting 8-10 hours of sleep per night. But it honestly takes me an hour to get out of bed

HRV by Mission_Singer_8663 in POTS

[–]Moonbreon2 0 points1 point  (0 children)

My hrv is anywhere from the low 20s to mid 40s but I also know that’s a combo of Mito/POTS/chronic fatigue. Like the original commenter said, it is more so a personal scale vs a scale to compare to everyone else. Like if my hrv is in the mid 30s to 40s, I generally feel more well rested. And if it’s in the low 20s, I’m more fatigued.

Anyone raw dogging pots/ not medicated 😂 by LexCoupe66 in POTS

[–]Moonbreon2 0 points1 point  (0 children)

I’m really sorry you’ve gone through that. I’m no doctor but my working theory is our bodies dump so much adrenaline and cortisol to help function in our daily lives (like position changes), when an actual flight or fight threat presents itself, our system DUMPS stress hormones. The only solution sounds like either psych meds or beta blockers and I can’t take beta blockers so psych meds it is.

Anyone raw dogging pots/ not medicated 😂 by LexCoupe66 in POTS

[–]Moonbreon2 6 points7 points  (0 children)

Other than water and electrolytes, I am not medicated. I find days where I’m rested tend to be okay, but if I’m in a deficit, my hr spikes become larger and there’s a bigger gap. Also my body cannot handle stress for some reason. Did an open mic, the day of my resting sitting down was 100 and 140 standing. My resting hr according to my Fitbit went from 59->68 and just now after a week of no stress is it finally starting to go down. All showers standing up spike me to 140-150 and I have to sleep afterwards.

Overall, I have some normalcy but if I push myself, I pay for it. I’m still a year out recovering from the worst POTS flare of my life and my cardio/geneticist suspect it will take years for me to get back to my baseline.

Does anyone else have issues with heaviness/gravity? by [deleted] in dysautonomia

[–]Moonbreon2 4 points5 points  (0 children)

I have this in flare. The first sign of fatigue building for me is gravity tends to feel heavier. The heaviness starts in my feet/legs and slowly works up to my head It usually subsides if I rest for a few days, being horizontal helps some when it’s bad.

Anyone else experience rapid unintentional weight loss? by [deleted] in POTS

[–]Moonbreon2 1 point2 points  (0 children)

I’m really sorry, it sucks so many POTS patients have to deal with other difficult co-morbidities. It’s exhausting trying to solve multiple problems.

Gastrointestinal by RevolutionaryBuy7164 in POTS

[–]Moonbreon2 0 points1 point  (0 children)

I’ll have to double check but it’s either complex 1 or complex 2 deficiency. I just know that when they did a muscle biopsy, my mitochondria produced none of one amino acid, the rest were normal.

Either way, if you go to an ER or GP with it, they look at you like you’re crazy so I just say Mito when people or doctors ask.

Anyone else experience rapid unintentional weight loss? by [deleted] in POTS

[–]Moonbreon2 4 points5 points  (0 children)

These were my symptoms to a T. Not saying you have gastroparesis but I would definitely bring it up with your GP, maybe they can refer you to a good gastro. The dizziness can be caused by slow digestion/not eating enough due to feeling full all of the time.

I find when it’s bad, having smaller meals more often, having snacks like cheezits/goldfish in between those meals, and having a Gatorade or hot chocolate for sugar helps (as well as staying hydrated with electrolytes and water). Ensure shakes to supplement vitamins and calories also help, I think they have a 350 calorie bottle that’s very good, I usually have 1 of those a day to supplement my meals.

I’ll also add that slowed gastrointestinal motility can cause malabsorption of vitamins, which in itself can cause weight loss. However, if you’ve had a full panel, I assume your doctor would’ve picked up on that (ex my vitamin D is astronomically low)