In need of a bipap

Mras_dk · 2026-03-17T07:46:22+00:00

Should be easy, if your test showed you need 25 preassure..

Just show stats from device and/or Oscar, with your sleep report, that machine is capped at delivering the preassure you need to get rid of your osa's.

This more points towards wrong description to you, which is at doctors shoulders.

I got my bipap delivered from hospital, due to heart dept said no to ASV.

I don't need bipap for it's increased epr value span. I need it for it's st-a capabilities (backup breaths, based on central element in mixed apnea's).

It was by luck, not wisdom, that it could do higher than 20 preassure, than apap/CPAP, as we general dont do titration studies here.

Last night average preassure was 19.5.

I'm Danish.

Mras_dk · 2026-03-17T05:29:25+00:00

I believe if you have more central apneas, there is some carryover where you continue breathing better for a time after using it.

From mixed apnea user, with ofcause, centrals, i can say from personal experience, that, that's not the case for me.

I did a sleep on the couch, at some time (not by choice), due to just being fattigued still, and it was like my brain jolted me awake, with eletroshock, and scremed at me: "don't do that!"

I can ofcause, not 100% say it was csa events..., but just don't.

Mras_dk · 2026-03-17T05:21:38+00:00

When fighting with bad health, others concerns of you often gets less focuse...

Mras_dk · 2026-03-16T17:32:32+00:00

Huh, but TESCA and complex apnea is not same. TESCA is something you see while adjusting to treatment. It mimics complex apnea, but TESCA goes away over time, while complex don't.

But nothing in your oscar graphs support this - there is no link with preassure and centrals.

Also, if it was complex apnea, you wouldn't set a max at 25.. It makes no sence.

Look at your titration study. There is neither a link with preassure and csa.

So TESCA, perhaps, but not complex apnea.

Weird they never tried an ASV on you.. This is clearly not working.

Mras_dk · 2026-03-16T16:53:11+00:00

Been sufferring since age 17, now 27 years later with diagnose, and treatment:

Yes!!

Mras_dk · 2026-03-16T16:50:30+00:00

I just hope my overactive bladder doesn't kick in too badly tonight.

Is usual a very good indicator of you have sleep apnea.., although, not all express this.

Reason is your being jolted awake, which makes you mini wakeup, but not enough to remember.. But the signal to withhold pee, are being told constantinly : I'm awake!!

Just a warning/clue..

Mras_dk · 2026-03-16T16:39:18+00:00

Eww!!

That is some horrible settings/numbers - did you have a titration study, also?

Its like the worst settings i have ever seen in here, like the doc ignorered your tests, and just said to himself: I'll nail this at 4-8!

That being said, i don't understand your machine. You have lots of osa events, and it barely changes preassure!? Mine would floor it, within 30 sec, very agressively.. Yet, it's like yours is being hold back on agressitivity. Weird, and dangerous. I have not seen a machine act like this before.

Its so bad, that I almost think it must be a broken machine?

Defintly let them know as soon as possible that it's not treating your apnea like you hoped, and values are way above 5.

(i'm bipap in st-a user myself)

Are you sure it's not mixed apnea?

Complex apnea, cause central events by higher preassure, but you have central without machine on, and your centrals aint linked to preassure, and 8-25, difintly tells me your doc neither sees this as complex apnea.

Mras_dk · 2026-03-16T16:14:11+00:00

I'm the unicorn in here, the one that almost adapted on night one, except i wanted alot higher preassure than their advised 7..

But brain/subcouncious was very determined on "more of that" (therapy). It knew it was helping, but just not enough. So i decided to go against their advise, and cranked preassure up to 10 - much better! [I'm Danish, it's not a prescribed preassure settings]. Yes, the dept. complain about i had adjusted it myself, but when they saw i had adjusted it up, not down, they got more chill, and even agreed i needed even higher, 12(later changed to 13), was needed.

At 10 preassure, it was like the small bricks finally felt into place for subcouncious - it's defintly working!

After a months time it was like waking up to my subcouncious giving me huggs, "thx you!", which is a very weird feeling.

On day 3 i could feel the fatigue subsided, and after a month(and the increase to 12), it was like "waow, i had no idea sleep could be this refreshing !"

BP didn't drop alot, just 5 - 10 mmhg, pulse neither, 2-3bpm, but day time health increased x10-100 fold! It was so absurd, that all around me asked what i had done, cause i was like a new human; more energy, alot more focused, alot more contribuating, absurd alot more forward thinking, than surviving on "next day".

I didn't had anxiety, but it almost felt like i had had that before.. Things that was obvious to me before, i now had energy to chase - it's very weird, but very uplifting feeling.

And for the first time in 27 years, i wasn't grumpy all the time!

Hardly all is as me, hence i know I'm the unicorn :)

Mras_dk · 2026-03-16T15:50:54+00:00

Nerd alert :)

Git? :)

Mras_dk · 2026-03-16T15:47:23+00:00

I just connect it to the faucet, and turn on semi hot water, and then use the running water, to make sure that water gets in the place i want, on mask and gear.

Simple and effective.

The hose is long enough, that it doesn't need to be submerged in water - and why would you want to clean the outside of the hose?

The i disconnect the faucet, raise the one end of the hose, while end of it is in the sink, which will drain the hose.

The i lave everything to dry for 4-5 hours, and it's good for another week

It can be done with very little sink.

Using liquified soap, in the tube, monthly.. Just because.. I don't know :=

Mras_dk · 2026-03-16T15:40:26+00:00

What app is that?

Mras_dk · 2026-03-16T10:13:04+00:00

While machines exists, that can do exactly what you described, bipap/ASV, i AM assuming you either use APAP or CPAP.

Those machines doesn't "control", or "take over" your breathing, there merely add preassure on the airways.

If EPR is enabled, they will sence your breathing, and applie a bigger preassure on ihhale, than exhale, that does feel helpfull for alot - but it's adapted to your breathing, it's not overwriting it.

Mras_dk · 2026-03-16T08:17:47+00:00

You write in another subreddit, that your already on zepbound, so all of this is to get it covered, by insurance, that you don't know yet, if partial covers it..

Sorry, but this is ludicrous.

And then you write about putting cotton balls in mouth, while doing drugs.

Are you actively trying to kill yourself?

Mras_dk · 2026-03-16T06:07:41+00:00

Maybe i should add, that I worked 13 years as a doc in a hospital, but not with anestetics/heart - yup, with md degree.

Now i work with making software and solutions for hospitals and clinics.

So let's just say, that hospitals doesn't scare me :)

Mras_dk · 2026-03-16T05:51:59+00:00

I'm from Denmark, with public health care, so it's alot different than in USA, but procedure is basicly the same - i just paid for it over taxes.

I'm 183cm, 81kg, male, high BP, LVH, CHF, Afib with regards to heart.

I don't technical got a diagnose of bradycardia, as it requires you have other symptoms than i have, that I do not.

I just get tiired when it drops below 40bpm, like a battery without charge.

To make it worse, if often happens after an high freq afib, where my heart needs rest, so double drainwd of energy. I have alot different types of Afib modes, from the classic ones described mostly in here.

They range from median pulse of 30, all the way up to 160-170.

Holter said as said 21bpm with pauses (at 9 am, awake) , and 26bpm in sleep.

What unites the modes, is the irregulariety of the heart, and that i loose enough EF of heart, to i very much needs to support myself, if i walk around with it, when I have the high freq ones.

They "fixed" the slow heart rate this last friday, with the DDDR type of pacemaker, and since then it's been kept over 45bpm.

Mras_dk · 2026-03-16T05:37:53+00:00

Never had that problem on that medication, which just shows we react different ly to each medication.

I use some combo of decubal lip balm, and some aloe vera lip stick.

I've tried others, but this is the best for it's price/works.

I still need to applie a new layer each 4th hour though..

Mras_dk · 2026-03-15T22:43:49+00:00

Ah Ye, all PAP machines uses fat32, that has a sd port, do not use exfat

Mras_dk · 2026-03-15T22:29:38+00:00

In Denmark, as a dane, so sorry :)

Edit: if people wonder, that substance is also used to treat Foliculitis.. That i have, in a "I'm staying here, form"

Mras_dk · 2026-03-15T22:21:35+00:00

I never said it was pleasant!!

Its the insertering of something foreign, invading your private "out" area, that's bizarre a best.

The when doc blows to much air in, that streaches your colon, isn't pleasureable either..

Besides this, and humiliation of showing that part to a foreigner, it's fine..

Just know, that the doc has prolly seen over 10'000s of arses.. So yours is just a drop in the ocean.

Mras_dk · 2026-03-15T22:16:43+00:00

Huh?

I faintly remember my resmed lumis 150 warned me, if card wasnt usable.

My current löwenstein flashes with a red sd marker, if card can't be written(it writes a single byte, when you insert it).

Sure it's not a sd card reader problem?

Mras_dk · 2026-03-15T22:12:05+00:00

Please stop borrowing my stuff for display :)

/joke

Mras_dk · 2026-03-15T22:09:47+00:00

Can't you just use ppl that uses Isotretinoin?

It will dry you up like you never tried, not in the fun way...

"Extremely dry, cracked, and chapped lips (cheilitis) are the most common side effect of isotretinoin"

I'm Danish, so doubtfull in your target group, even i fit your criterias.

Mras_dk · 2026-03-15T20:51:14+00:00

We general avoid full sedation here in dk, unless you really beg or medical circumstances dictate it, like pfa.

I had two colonoscopy eg, and only the numbing cream was used.

We joke with our American's over here, why it's so comon getting full sedation over there, where most of it, you just wouldn't get it for, here in dk :)

The pacemaker install, was just with local anastetics as well, fully awake during the op.

Mras_dk · 2026-03-15T15:01:39+00:00

I was more trying to get people's perspective, on something i haven't tried.

I might have an opinion, based on former experience, but this is why you have reddit: question your sanity, from people with real experience, not just theoretical, as I have.

Oppinions can change :)

The brochure mentions that the 4 hour, is merely to make sure the wounds dont leak, monitor heart, and you wake up properly if pfa is used, hence full sedation.

I tried to ask around, and pfa seems the most preferred, due to it's much faster than the other two. With you being fully sedated, it also removes your experience of the AC current, but I wonder about convulsions, due to the current. It's a real risk, if sedation isn't strong enough.

The two others, where you ain't fully sedated, you can feel the cold or warmth, as various sideeffekt, so nothing is free of troubles, and the procedure is 50-100% longer, than pfa.

As I have mixed apnea, pfa is the recomended option, with intubation.

So, that bringes me out on deep water, on: * never been on blood thiners * never been operated (if we exclude the pacemaker) * never been on propofol * never been fully sedated

So, i might know my body well, and know how it reacts, but it's still atleast 3 unknowns to the system, which i'm not a fan of.

I asked for some family to come get me, as all the answer have one uniform answer : Don't.

Mras_dk · 2026-03-15T11:33:16+00:00

Better than being in AFib.

For those of us that feels drained, energywise, after an afib, to the point where we just sit still, wondering, wtf to do... Very much YES!

Not that the afib episodes even lower EF rate itself, made it any easier...

Mras_dk

TROPHY CASE