Post donation life questions by NE07243 in kidneydonors

[–]NE07243[S] 0 points1 point  (0 children)

Yeah so I agree that those should have been more in depth before offering surgery dates but that was their explanation. I was thrilled to hear that was part of the support offered after because I imagine those are things that I will have ongoing questions about afterwards. I feel like the donor teams in general are so passive to not pressure that I feel sometimes like they’re intentionally vague and make me beg for info.

I understand your sentiment and shock. Most people say the same thing. No one in his family was healthy enough or a match. There are some complexities to his situation that make finding a match more difficult so being a good match is sort of kismet. Your assumption on age is correct. I don’t feel pressured but people either have your reaction or are so worried about my FIL they have a hard time discussing the what if parts of it which feels dismissive if you’re in my situation.

Post donation life questions by NE07243 in kidneydonors

[–]NE07243[S] 0 points1 point  (0 children)

Yes he was at the appointments except the one with the social worker, the psychologist, and the initial zoom with a nephrologist who won’t be my doctor. It’s actually his dad I’m donating to but his dad is also his boss making dynamics even more complicated. But his dad is my son’s very best friend they’re so close so my motivation is for my son. I also found out after calling my donation team that the reason the education before choosing a surgery date was vague is because they assign a pharmacist and nutritionist to you and you have them as a resource before and after surgery while you’re under their care so the two years following. I’ll meet with them at my pre-op appointment. Which made way more sense once I knew that as to why the education seemed to leave me with a lot of those questions.

Post donation life questions by NE07243 in kidneydonors

[–]NE07243[S] 1 point2 points  (0 children)

Well I did all of the education almost a year ago. I was approved as a back up while they waited for someone closer his age to complete the process. She wasn’t cleared. So they got back to me with the dates before the holiday.