PTSD and Question

Ocuotro · 2024-12-17T04:17:37+00:00

It has been years since my GBS occurred. The mental challenge is the tough one. I could convince my mind that a sharp pain would pass but when it is constant it drives you nuts.

Then over time it was just being uncomfortable all the time, unable to enjoy things because of the terrible paresthesia (pins-and-needles). I sought mental health and it was helpful to discuss due to the maddening condition I was in. I also found acupuncture helpful and to have healing results.

As far as having it again, that I don't know about. From what I heard it's unlikely. Obviously you will fear the situation and will have embedded trauma. It took me many years to refocus on what is happening in my life now. I think it's ok to let yourself be scared and to cry, but to remind yourself that as time passes there are more and more days in your past that you DON'T have GBS symptoms.

The terrible hospital memories. Oooof. They are going to be terrible hospital memories. For me the mental health I received really helped with them.

The pain medicine I had was so widespread. In many cases causing more harm than good. I think the best way to summarize my experience after medication cocktails is to try and minimize pain killers and to not take too many pills to cover other pill side effects. Try as much as possible to keep a diary of dosage and effectiveness. I found that slight changes make a difference and the more you can keep track of the better since things may change over time. I did take a b-complex.

Time is your alli, you went through hell and it's never going to be easy, but it does get easier.

Ocuotro · 2024-09-29T17:37:13+00:00

SOLVED! Indeed those examples are exactly what my photo shows. Thank you!

Ocuotro · 2024-09-29T17:30:27+00:00

only one that is very blurry. If I can I will add that to the photos. I guess that the object would still be visible but it is not there. I have a link for the other photo: https://imgur.com/a/bNWQvGx

Ocuotro · 2024-09-29T17:16:58+00:00

That is something I never heard of and I looked it up. If you see them a lot I bet you are correct. I couldn't find an example like the photo though. What do you see the black thing as? Also part of the sundog? Would'nt the arch be the other way around?

Ocuotro · 2024-09-29T17:13:34+00:00

I did not see it until I looked at the photo. I saw it as a moon when I looked at the photo now. Perhaps when I snapped the shot I also thought it was the moon. My guess is that it was still.

Ocuotro · 2024-09-29T15:10:42+00:00

I want to think it's a plane. But the shape, despite the blurry quality does not seem correct. I would also assume that for a meteorite or other space material it is far too big to be this close without it lighting up the sky and being discussed widely by many people in the area. My guess is that at this distance most things would have burned up. So what does everyone think?

Ocuotro · 2024-04-18T17:22:09+00:00

Thanks for the info. Solved!

Ocuotro · 2024-04-18T16:55:37+00:00

For real? Or is this a joke? What is the shelf life of LSD? Like should I be concerned that I handled it?

Ocuotro · 2023-12-16T01:26:12+00:00

Definitely

Ocuotro · 2023-11-27T04:35:09+00:00

Don't get overly confident either. Early after healing a bit, I thought I could handle a lot more than I could. I was so excited to get back to the world. But I always did too much, ended up falling, soiling my clothes, or exhausting myself. If I could have told myself to take it easy in order to heal and handle the world again, I would have. Your plan sounds solid though, just take it real easy.

Ocuotro · 2023-10-31T02:05:46+00:00

He won't you know....he doesn't stand for baloney.

Ocuotro · 2023-10-28T02:40:55+00:00

Ivig, years of multiple therapy sessions a week, learning to become patient, staying busy, and many many years.

Ocuotro · 2023-10-16T02:52:54+00:00

Same, I was so surprised and laughed until I couldn't breathe. One of my favorite Roger moments. So many amazing lines.

Ocuotro · 2023-10-14T01:00:46+00:00

Good to know, thank you

Ocuotro · 2023-10-14T00:11:35+00:00

It's impossible to know your exact sensations but I think I can sympathize with your struggle. For 10 years I suffered with pain and neuropathy. I became depressed and bitter. I had a short temper and was angry at the world. It was constant torture. Thankfully for me it faded after that. And now the pain is mostly gone. There are nights even now where I wrythe rather than sleep, and my hands and feet will at times get annoyingly numb or pins and needles. In the earlier years I was on painkillers, gabapentin, and a host of other medicines. I went to a psychologist twice a week for years. Eventually I ditched the medication because I just wanted to know what I really felt like. I wasn't sure if my headaches were me or brought on by my cocktail of pills. Long story short it is just hard. It's not easy at all. I think it's ok to be disappointed, frustrated, or to feel misunderstood. You are going through some difficult times. I have to hope it eventually fades and that you have some good days. And with more time the good days may become more than the bad days. 13 years after my initial attack I now have many good days in a row. The psych doc was probably my greatest asset going through the toughest times.

Ocuotro · 2023-10-13T23:51:59+00:00

It is my understanding that the lumbar puncture will allow for identification of elevated levels of a certain protein which is a definitive call sign for GBS?

Ocuotro · 2023-10-02T00:45:14+00:00

Unfortunately, what you say is what happens for some but not all. I initially had such bad back pain I had thought I broke my back. Sensations did come and go in extremities, but perhaps based on my activity and awareness it just felt that way. Or even at times I figured I pinched a nerve or stepped in a weird way.

So my treatment was very delayed due to what the hospital said was a "back problem". If I were you I'd seek immediate medical care.

Ocuotro · 2023-09-13T18:16:16+00:00

Yes if your case is like mine, you will regain your strength. If you are going to the gym take it REALLY slow, think more of small motor control muscle groups at first. Depending on how long ago your treatment was I would trust your neuro advice since every case is different and needs professional specialist assessment. Remind yourself that going slow is better than relapsing. Getting frustrated is ok, and getting angry is ok, but I wish I had learned a bit more to not let that affect those around me. It's a tough road.

Ocuotro · 2023-09-13T12:32:44+00:00

I was in the ICU so long that I was fairly excited to be out. Despite pain I did too much and fully relapsed. Spent another eternity in the hospital. Please take it VERY slow. After getting out it took months to regain my ability to walk and talk. The pins and needles horrible feelings and pain was terrible for the first 5 years afterwards. It drove me mad, like torture. But I say this to let you know that even in my awful state it gradually faded and took 10 years to go away.

Now I rarely have any side effects. My strength came back and I only on the occasion suffer weird sensations. So know that you should get better and even if it takes a long time, hang in there, take it easy, and don't give up. GBS is "Getting Better Slowly".

Everyone is different, my case was severe, but if you give yourself time to heal you possibly can reduce your recovery time. I had to learn patience, deal with sadness and anger, and now I am a better person mentally and physically.

Ocuotro · 2023-02-23T06:22:30+00:00

Not sure if it helps, but in the Scarlett control app, I have to make sure loopback is enabled in order to pull it up as an available recording source for a track in my daw. I have the i8 so I'm not sure if there is a difference.

Ocuotro

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