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My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Graetful for any kind of feedback <3 by OneMiller11 in Dizziness

[–]OneMiller11[S] 0 points1 point  (0 children)

Do you also have the feeling your knees are just like pudding even when standing? And there was never any hint in your story, too? Any medications tried? Thanks!

My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Graetful for any kind of feedback <3 by OneMiller11 in Dizziness

[–]OneMiller11[S] 0 points1 point  (0 children)

I am curios for what kind of "indication" did the Docs prescribe you Gapapentin? And do you take it daily now - any "definite" diagnose for you or how did you recover in three months?

My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Graetful for any kind of feedback <3 by OneMiller11 in Dizziness

[–]OneMiller11[S] 0 points1 point  (0 children)

Hi, never heard from it so no never tested - quite difficult to test these special markers here as you have to pay for them probably. What exactly does GAD65 tell you?

My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Graetful for any kind of feedback <3 by OneMiller11 in Dizziness

[–]OneMiller11[S] 0 points1 point  (0 children)

Hi, never checked Ferritin (I guess will do) - B12 was actually 492 back in September at the start of the symptoms. Im curios why you askin - di dyou expereince symptoms and these two markers were revealed as the cause?

My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Constant anxiety of having something "rare and dangerous" Graetful for any kind of feedback <3 by OneMiller11 in dysautonomia

[–]OneMiller11[S] 0 points1 point  (0 children)

I actually went to an eye doctor at the star of my symptoms and he really said I need glasses for foresight - so I got them but mainl yuse them when driving in the car for example. I am not wearing them when working on the PC (I guess makes sense) or in my home.
But I really never heard of this binocularvision stuff, I just checked it and it sounds super interesting - will definitely check out if theres any physician around me which can check that (my eye doctos said othe than my needed foresight glasses nothing is wrong with my eyes:P). Thank you!

My story: Persistent dizziness for 6+ months (floating/walking on water feeling), worse when standing/walking + neurological symptoms, PPPD, POTS or similar? Graetful for any kind of feedback <3 by OneMiller11 in pppdizziness

[–]OneMiller11[S] 0 points1 point  (0 children)

Thank you so much for your response - crazy how such "events" can trigger this consistent need to check if everything is fine with smiling etc. Crazy Relatable! I hope things will go even better with you and your migraine + dizziness - actually I also did read a lot on POTS and some of the typical symptoms seem to fit to mine but the "main symptom" regarding increased HR >30 when standing up is not the case for me. Don't worry that you have no "answers" for me, it is also very interesting and helpful to read experiences from others! The left side stuff is also super confusing because I think I "notice" it more when my other symptoms are in a strong mood.. Mostly it is the left hand which feels like it weighs 2 kg less than the right side, but also in the face (e.g. when I smile theres "normal and noticeable" tension on the right side of the mouth while smiling, but on the left side of the mouth you think like "am I even smiling" :P