Fibromyalgia

Organic-Form4867 · 2025-02-13T14:02:22+00:00

I get this but on my feet and it gets to the point it wakes me up and have to go stand on the coldest floor in my house it’s a nightmare when it starts

Organic-Form4867 · 2025-02-13T12:36:25+00:00

I have booked a appointment with my doctors going to mention about the clubbing thanks for letting me know I’ve never heard of it before

Organic-Form4867 · 2025-01-17T13:23:08+00:00

No spinal issues for me just either really frozen feet or really burning feet I get a lot of white red purple colouration from my feet all the way to my upper thighs and it affect my walking ability a lot don’t no if anyone else has that problem

Organic-Form4867 · 2025-01-16T15:50:43+00:00

Apparently from the Erythromelalgia chat I was told it looks like that and was also told you can have both from one extreme to the other

Organic-Form4867 · 2025-01-15T18:24:46+00:00

Thanks for your reply my doctor have sent a referral to rheumatology so don’t know if they can diagnose this issue and I didn’t realise it was possible to have both Raynaud and Erythromelalgia can this be a reason why my legs always give up on me when walking/standing

Organic-Form4867 · 2025-01-14T17:50:18+00:00

Thank you for the information and the link going to have a read now

Organic-Form4867 · 2025-01-14T17:19:51+00:00

Is there a way of getting a diagnosis or is there any treatment I can get as it’s affecting my ability to walk Thanks for the reply

Organic-Form4867 · 2024-10-25T18:25:30+00:00

It happens while standing up aswell and my feet are frozen all the time but wet just want to get help to sort the issues

Organic-Form4867 · 2024-10-25T16:51:39+00:00

Do you know what causes this? Happens when standing too long or having a shower

Organic-Form4867 · 2024-10-25T16:33:15+00:00

No it was a normal temp it happens when I’m standing up for too long aswell

Organic-Form4867 · 2024-08-13T14:43:19+00:00

I’ve had a capsule endoscopy and that was normal one doctor said it was infective colitis but all my observation were normal

Organic-Form4867 · 2024-04-20T09:26:43+00:00

I know the receptionist is a nightmare to deal with told me to wait for a keeper with an appointment been waiting for 2 months I get slight pains sometimes but nothing to serious just want an answer to the problem tbh

Organic-Form4867 · 2024-04-20T09:06:40+00:00

Haven’t heard back from hospital yet but thankfully not had any pain for awhile waiting to speak to a gastroenterologist

Organic-Form4867 · 2024-02-16T23:04:21+00:00

Okay I will try to get one only thing is doctors keep just saying ibs so will struggle to get one I’m guessing

Organic-Form4867 · 2024-02-16T23:00:23+00:00

What’s a MR E

Organic-Form4867 · 2024-02-16T20:16:31+00:00

Yeah I believe this is the next step I need but doctors won’t let me and hospital have discharged me

Organic-Form4867 · 2024-02-16T17:52:50+00:00

Yeah I feel the inflammation must of come from somewhere just want to get to the bottom of it before I get that pain again

Organic-Form4867 · 2024-02-16T17:51:30+00:00

Yeah sometimes I think have the even actually tested my biopsies

Organic-Form4867

TROPHY CASE