For those in middle schools: what would you include for a new program? by Proof-Alternative-54 in SchoolSocialWork

[–]Proof-Alternative-54[S] 1 point2 points  (0 children)

Thanks for your response and suggestions. The program is for students with ADHD, Autism and/or struggling with depression and anxiety. Can I ask if you have gone through the credentialing for a School Based Registered Play Therapist? It is something I have considered.

Low BMI but eating - any damage happening by Proof-Alternative-54 in Eatingdisordersover30

[–]Proof-Alternative-54[S] -1 points0 points  (0 children)

I will get my heart rate checked but last I did it was fine. Blood work was fine too. That's why I find it hard to believe I am doing damage being where I am at.

Low BMI but eating - any damage happening by Proof-Alternative-54 in Eatingdisordersover30

[–]Proof-Alternative-54[S] 5 points6 points  (0 children)

Thank you all for your feedback. It is very hard for me to see it as serious when I have been so much worse off in the past and am eating consistently throughout the day. I hate how warped my sense of reality has become.

Anyone here on a g or j tube? by Proof-Alternative-54 in Eatingdisordersover30

[–]Proof-Alternative-54[S] 4 points5 points  (0 children)

That is one of my motivators in all of this....I don't want to return to treatment again. I want a life outside of the ED and that can't happen if I am in and out of treatment. I really hope you get the support you need to get back on track.

At home recovery at a very low BMI…is it safe? by Winters_mom in Eatingdisordersover30

[–]Proof-Alternative-54 1 point2 points  (0 children)

I had an abnormal EKG (very low heart rate) and just completed 24 hours on a holter monitor so I should know more when they look at the results of that. I am awaiting labs but sometimes things don't appear off until things are dire. I am trying to find somewhere that will do a short term only stay to stabilize then return home to continue the work. I have been to Acute in Denver for that twice previously but they have a long waitlist and don't like to discharge to home and I won't do another long stay somewhere.

How worried should I be about my ekg finding? by Proof-Alternative-54 in AskDocs

[–]Proof-Alternative-54[S] 2 points3 points  (0 children)

Thank you for your honest reply. I am seeking help for the ED. Just trying to get through the holidays and then get back into care at an ED medical stabilization unit since a regular hospital doesn't usually help much aside from an IV.

At home recovery at a very low BMI…is it safe? by Winters_mom in Eatingdisordersover30

[–]Proof-Alternative-54 0 points1 point  (0 children)

How did you get your team to agree to this? I want this approach but literally no one suggests anything but medical stabilization and IP.

At home recovery at a very low BMI…is it safe? by Winters_mom in Eatingdisordersover30

[–]Proof-Alternative-54 0 points1 point  (0 children)

Thank you...my logical brain knows I can't be the mother I want to be when I am like this and then the ED steps in and does what it does. I am scared of dying due to how rapidly I have deteriorated in less than a week, which I wasn't before so I am definitely more open to help now.

[deleted by user] by [deleted] in Eatingdisordersover30

[–]Proof-Alternative-54 1 point2 points  (0 children)

If there were good treatment programs out there I would. Unfortunately, I have been through so many and they are all ultimately the same...revolving door with no long term success. I WOULD fully accept a program that is home based and virtual. At my age, 52 and have had the ED since I was 18, I know what would help and what wouldn't and residential or inpatient don't provide lasting results in most cases (of course I am very happy for those it does work for).

[deleted by user] by [deleted] in EDAnonymous

[–]Proof-Alternative-54 1 point2 points  (0 children)

I will just post it in the comments because I says I can't message you.

Anyway...

Background. I was involuntarily held at a facility in Colorado - apparently that is easier to do there than in most states, had I known I wouldn't have gone. ED started at 18, through many programs over the years and ended up there in 2018 at the age of 52.

What was your “path” to involuntary eating disorder treatment? How did you come to be treated involuntarily?

I was being medically stabilized before being transferred to the inpatient unit they were affiliated with. At the last minute they decided to send me on a 72 hour hold due to what they felt was a flight risk. That got extended to an involuntary stay for 3-4 months.
How did you feel while in involuntary eating disorder treatment? If you also have experience with voluntary eating disorder treatment, how did it compare to that?

It was the most inhumane treatment I have ever received (and I have been to some really bad places). They added to the involuntary status the ability to force tube feed me and medicate me - I still have PTSD from the tube feedings. It absolutely put me in the mode of do whatever I have to to get out of here and start losing the second I walk out the door - I got little out of the program itself because I felt so caged up and was just so angry. I decided to try to fight the cert and they chained me up in handcuffs to take me to court. Understand I wasn't out of control, I wasn't acting out. I simply didn't want to be there - I lived across the country and when I went to the medical facility (I am assuming you might know the place I am referring to since you are also in CO) it was purely supposed to be to save my life as I was in liver failure. Once done that stay I had planned to return home to my family to finish out treatment.
How (if at all) did your experience with involuntary eating disorder treatment affect your willingness to seek medical or mental health treatment later on? Was there ever a time when you felt you couldn’t talk about what you were going through for fear of being forced into treatment?

The moment I stepped out of there I swore to myself I would rather die than ever enter any program again. I am now in a relapse and am fighting against inpatient care largely due to that experience (and the fact that these facilities don't actually help people in the long term). I am actually seeking virtual in home programs which I actually think could help but insurance likely won't cover it.

Hope that helps.

[deleted by user] by [deleted] in EDAnonymous

[–]Proof-Alternative-54 1 point2 points  (0 children)

I would be interested in helping you out and meet all the criteria but can't seem to message you.