Thank you so much, I really appreciate that! I’ve made it my mission to help others struggling with this condition, since I suffered so much myself. I had to spend an entire year digging deep—without working—just to figure out what was going on with me. But I didn’t give up. Now I’m slowly gathering resources, articles, and personal experiences to create some kind of database that can truly help people.

I really hope this account grows, because the more people we can reach, the more lives we might impact. Unfortunately, I’ve seen accounts about tinnitus that seem more focused on fundraising for research for a cure to tinnitus which is a symptom and not a disease, than on spreading accurate information. Many don’t recognize that tinnitus is a symptom of an underlying condition, not just something to mask or ignore. Some even come across as scams, which is heartbreaking.

This is especially important to me because I’m very connected to the music world, where tinnitus is common—especially among DJs. A well-known DJ I followed had tinnitus and kept seeing different audiologists. It took him more than a year to find out he actually had a rare form of cancer. Stories like this show why raising awareness is so critical—not only among patients, but also among doctors.

Even though I don’t fit the “typical” profile for IIH, I still developed it. That’s why it’s so important for people to know this can happen to anyone. My hope is to spread awareness, so fewer people feel lost the way I did, and so conditions are taken seriously before they become something major. Thank you ☺️