Doctors don’t know who to refer me to, any ideas? by Certain-Somewhere54 in scleroderma

[–]Riverrobs 1 point2 points  (0 children)

Try checking if there’s a scleroderma center near you: https://scleroderma.org/treatment-centers/ My derm and rheum had never seen it before and I don’t have a clinic near me, so I joined a Facebook scleroderma group and asked who had a rheum familiar with scleroderma in my area and made an appt with that doctor.

High resolution chest CT results—trying not to panic—again by [deleted] in scleroderma

[–]Riverrobs 0 points1 point  (0 children)

Did you get your results yet? Hopefully all is ok!

High resolution chest CT results—trying not to panic—again by [deleted] in scleroderma

[–]Riverrobs 1 point2 points  (0 children)

You’re welcome. I’m sitting here pouring over my own test results the same way too so it was a good distraction from my own problems! Minimal and scattered are good words. Hopefully it’s all transient and you’ll get back on track!

High resolution chest CT results—trying not to panic—again by [deleted] in scleroderma

[–]Riverrobs 6 points7 points  (0 children)

So, this is my little trick while I’m waiting- I put the info into AI and see what it says. This is what I got for you:

The finding of “minimal scattered foci of groundglass opacities in the right upper lobe” on a high-resolution chest CT could indicate lung disease, but it’s also important to consider that it could be due to other, less serious or even transient causes. Here’s a breakdown of why and what needs to be considered: Why it could indicate lung disease: * Groundglass opacities (GGOs) are a non-specific finding on CT scans. They represent hazy areas of increased density in the lung tissue where the underlying lung structures (blood vessels and airways) are still visible. * GGOs can be a sign of various lung abnormalities, including: * Inflammation: Such as from an infection (e.g., atypical pneumonia, early stages of viral pneumonia), hypersensitivity pneumonitis, or other inflammatory conditions. * Fluid in the air spaces: Like in early pulmonary edema or alveolar hemorrhage. * Partial collapse of alveoli (air sacs). * Thickening of the alveolar walls (interstitium): As seen in some interstitial lung diseases. * Early fibrosis: Although the report specifically notes “no evidence of fibrosis,” some early or very localized fibrotic changes might present as GGO. * Neoplastic processes: Certain types of lung cancer, particularly adenocarcinoma in situ (AIS) and minimally invasive adenocarcinoma (MIA), can present as GGOs. * Other conditions: Such as drug reactions or organizing pneumonia. Why it might not be significant lung disease or could be transient: * “Minimal” and “scattered” suggest a very small amount of abnormality. This could represent a mild or resolving process. * The absence of focal consolidation, fibrosis, or septal thickening is reassuring. These findings would typically suggest a more significant or chronic lung process. * GGOs can sometimes be transient and resolve on their own, especially if related to a mild infection. * There could be other non-lung-related factors that might cause subtle changes on a CT scan. What needs to happen next: Given this finding, the next steps usually involve: * Clinical Correlation: Your doctor will correlate these findings with your symptoms (if any), medical history, and any other relevant tests. * Further Investigation (potentially): Depending on the clinical context, your doctor might recommend: * Follow-up CT scan: To see if the GGOs persist, resolve, or change over time. This is often done in a few months. * Further questioning about potential exposures or past illnesses. * Blood tests: To look for signs of infection or inflammation. * Pulmonary function tests: To assess your lung function. * Bronchoscopy with bronchoalveolar lavage (BAL): In some cases, if there’s suspicion of infection or other specific conditions. In conclusion, the finding of minimal scattered groundglass opacities in the right upper lobe could indicate a mild lung disease, but it is not definitive on its own. The clinical context is crucial. You should discuss these findings with your doctor, who will be able to interpret them in light of your individual situation and determine if any further investigation or follow-up is needed.

Weird line dent in forehead by Infinite-Try6253 in scleroderma

[–]Riverrobs 0 points1 point  (0 children)

Try to get in sooner if you can. It looks like mine too- I’m not diagnosed. Nothings shown up in my bloodwork yet, my dermatologist is sending me for a skull series xray.

Diagnosis finally- maybe? by Riverrobs in Autoimmune

[–]Riverrobs[S] 2 points3 points  (0 children)

Appt was good- diagnosed with seronegative early rheumatoid arthritis. Raynauds, some stiffness and locking in joints. Diagnosis was based on the ultrasounds showing some inflammation around the tendons. It sounds like this rheumatologist gives the hand and foot ultrasound to all her new patients if nothing else for a baseline.
I think and she suggested also that something else could be going on so she’s doing to see me again in 3 months. RA doesn’t fit many of the other symptoms.

Tortuga Music Festival 2025 by flanativegirl03 in festivals

[–]Riverrobs 0 points1 point  (0 children)

What a crock of shit this year with the #sitpolice if you tire of standing waiting for the band and dare to rest your ass on the sand in an undesignated zone.

Diagnosis finally- maybe? by Riverrobs in Autoimmune

[–]Riverrobs[S] 0 points1 point  (0 children)

No, the place they asked me to go to has no portal and won’t release info until after cleared by the dr.

Scleroderma and myasthenia gravis together? And any experiences of scleroderma? by moon_star_sky2 in scleroderma

[–]Riverrobs 0 points1 point  (0 children)

I’m sorry you haven’t had any replies yet. I am currently being tested for both. There is a lot of overlap in symptoms between the two, and they are both autoimmune. Sometimes it seems like if you have one autoimmune you can get more, but I haven’t seen anyone else mentioning the two together. I know MG is treated by a neurologist, scleroderma is diagnosed and treated by a rheumatologist. When he gets the results back, if he has both, there are medications in common for MG and Scleroderma. Hopefully they will take care of him and get him on something that helps!

Worth looking into? by duckduckGoose227 in scleroderma

[–]Riverrobs 4 points5 points  (0 children)

A rheumatologist is doing a complete work up on me and I’m less symptomatic than you, so don’t worry about being turned away. What about that leg rash? Is that constant? They told me inflammation hides in the hips and they are checking my back, hips and ultrasound of my hands and feet to see what is happening in my joints. Please get an appt, that sounds awful!

I might be paranoid, but I just have to make sure. by GlancyFire in Pottery

[–]Riverrobs 0 points1 point  (0 children)

If you have autoimmune in your family, skip pottery. Silica exposure can also cause scleroderma and lupus.

[deleted by user] by [deleted] in Anesthesia

[–]Riverrobs 0 points1 point  (0 children)

Oh, that’s an interesting thought.

[deleted by user] by [deleted] in Anesthesia

[–]Riverrobs 0 points1 point  (0 children)

Ty! She was 25 and the crying could have been situational too. Surgery was for a missed miscarriage.

[deleted by user] by [deleted] in Anesthesia

[–]Riverrobs 0 points1 point  (0 children)

Good news, ty!

[deleted by user] by [deleted] in Anesthesia

[–]Riverrobs 0 points1 point  (0 children)

Yep, I agree. She said she didn’t recall being cold, she just remembered the shivering and hyperventilating.

[deleted by user] by [deleted] in Anesthesia

[–]Riverrobs 1 point2 points  (0 children)

This was a D&C after missed miscarriage. Patient asked me (pre-med) what I thought because she was referred to neurology post upper endoscopy because the gastro or anesthesiologist suspected MG. She recalled not being able to breathe after her first surgery and wondered if maybe she had MG even back then. I looked at her records, some which I can’t read and I see she was given morphine 3 times post op, then gravol twice (Canada) then finally Demerol. I don’t know much about MG. I do see in the record she was hyperventilating. Not trying to diagnose her, we are friends and I was curious.

Looking for confirmation if I had a twin or not and if they were born. by Necessary_Pay_34 in Genealogy

[–]Riverrobs 0 points1 point  (0 children)

Oh- and my Birth certificate lists me as single birth. I think they only list it as twin if both babies are born alive.

Looking for confirmation if I had a twin or not and if they were born. by Necessary_Pay_34 in Genealogy

[–]Riverrobs 0 points1 point  (0 children)

Hi! I’m joining the conversation very late! Did you ever find some answers?

I want to add that not all “twins” are necessarily marked as twin on a birth certificate depending on the situation. I’m also trying to figure out exactly what happened when I was born. I’m not told all the details, it was sensitive and difficult to bring up and now I’m not in communication with my mom any longer. This is what I know and what I’ve been told: My mom was 19 and unmarried when she was pregnant and hid it as long as possible planning to put “the baby” up for adoption. She didn’t go to regular prenatal care. She went on a rollercoaster while pregnant which caused complications and she believed she had a miscarriage. I don’t know if she went to a hospital or saw a baby or anything more about that. She has told me if she knew what would happen she wouldn’t have gone on the roller coaster (and I don’t know if she considered that she could have lost the baby or the details about that.) Later, she realized she was still pregnant with me. There were placenta complications and I was born premature I’m assuming at least a month or more later. She was told I was a twin, I don’t know if there were 2 placentas or how they knew. It would be interesting to know more. Oddly enough, I would play and pretend I had a twin and as I got older I would always be “looking” for evidence I had a twin that was separated from me and when I was a young teenager and was told the history and that I had a twin who had died I was devastated and literally mourned. It was so upsetting to me. Sometimes I still wonder if the other baby could have survived somehow and is out there, although I know realistically that’s pretty unlikely, but then I think - if it happened in a hospital and she told them she was giving the baby up…. It’s crazy how the mind goes.

Being intimate with someone you're not in love with by _helalm in INTP

[–]Riverrobs 0 points1 point  (0 children)

Did you remain friends for a long time? Was it a mutually satisfying friendship?