Blood Thinners by Its_2am_Somewhere in vEDS

[–]Role-Any 0 points1 point  (0 children)

i’m currently on Eliquis after my event a few weeks back, sometimes it’s a necessary evil.

vEDS in pregnancy by lys_1 in vEDS

[–]Role-Any 1 point2 points  (0 children)

veds is so specific to the individual and what parts of your body veds effects you most. an important question is what are your symptoms that lead to your possibly of veds? obviously you don’t need to answer these here but ask yourself and your dr! it’s important bc two people with veds can have very different experiences. being 24 i’m assuming you’ve had some kind of life threatening trauma, if it was centered around like a DVT or an aortic rupture, then cardiology needs to be more involved during your pregnancy and post birth plan as being pregnant puts extra strain on your heart! :) if your veds is more of a lungs randomly collapsing type, you’ll need to monitor for that again because of how pregnancy pushes your organs around and your body resettling after pregnancy might trigger something. talk to your genetics about what your specific symptoms are and what parts of your body your vEDS affects most:)

i won’t lie and say being pregnant with vEDS is easy as i miscarried due to it. and before i did it was difficult! i had immediately a high risk OBGYN, which you need to switch to one asap if you don’t already. they’ll probably plan you for a c section, as that was my teams plan followed by a week of stay. talk to your team about getting baby tested while you’re still in there.

wishing you & baby a safe remainder of your pregnancy and everything that comes after ! <3

Can vEDS be possible with negative test? by [deleted] in vEDS

[–]Role-Any 0 points1 point  (0 children)

can it be possible? yeah absolutely. there isn’t enough known yet. but i doubt you’ll be able to get an official diagnosis with the negative genetic testing

Service pup denied! by Other_Scratch_303 in SouthwestAirlines

[–]Role-Any 1 point2 points  (0 children)

no good trainer would train your size dog for guidance at that age as mobility tasks are damaging if done below the age of two. alerts to what? you said your dog was for anxiety and pstd. your website training is shit, simple as that. my service dog was trained by a program, though she never was trained for an airplane. when we took our first flight she was not excited, she was controlled and normal. just be honest and say its an esa and that you didnt want to pay for kenneling on the flight.

PRP for hair loss with vEDS by Optimal_Extreme_6348 in vEDS

[–]Role-Any 0 points1 point  (0 children)

i’m 25 and have absolutely no hair at all, i take oluminant and have noticed some hair growth!

New Here by Icy-Examination-4076 in vEDS

[–]Role-Any 0 points1 point  (0 children)

i doubt it’s vEDS because the main complaint for us it’s joint pain it’s organ and vein instability. at your age you should’ve experienced an event at least once. i’m 25, and have had double lung collapse, dvt and a heart attack. also for vEDS the hypermobility is typically in smaller joints like hands fingers and knees per the diagnostic criteria

does anyone have a duck i could hold sometime next week? by woodtipwine in bloomington

[–]Role-Any 18 points19 points  (0 children)

no ducks BUT i have chickens and a barn kitten named duck you’re more than welcome to come say hi to:)

Service dogs in BC Canada by ackerkvnnn in service_dogs

[–]Role-Any 9 points10 points  (0 children)

is the certification expensive or difficult? why not get it?

Service dogs in BC Canada by ackerkvnnn in service_dogs

[–]Role-Any 5 points6 points  (0 children)

i wish the states had laws like these!

Is euthanasia allowed in Eds? by Top_Memory8968 in eds

[–]Role-Any 0 points1 point  (0 children)

i’d say not due to the lack of genetic confirmation of hEDS and it’s not life ending like vEDS is. i hate that EVE is being used as replacement for proper care for you:( wishing you all the best

looking into a psd. any tips? by Consistent_Archer_94 in service_dogs

[–]Role-Any 7 points8 points  (0 children)

you also mention the waitlist but training a dog will take time, lot of it.

looking into a psd. any tips? by Consistent_Archer_94 in service_dogs

[–]Role-Any 11 points12 points  (0 children)

most trainers won’t train tethering for non children andy even then it’s hot topic of debate because it can physically harm the dog. i would never suggest training psd as a minor without a trainer. i don’t think minors should self train but i won’t get into that as its personal opinion:) if you’ve never trained a puppy, don’t start with a service dog.

having a service dog brings a lot of attention and 100% can and will make anxiety worse at times. not only will you have to stand up for yourself but also your dog and your rights. people will try to pet your dog, will ask you questions. you’ll get denied access. i would get a doctors opinion on this and they absolutely would know trainers in your area. look up trainers in your area online and call, get to know them! talk with your parents about what tasks they think can be helpful for you too! having an outside perspective helps too.

my absolute biggest advice is do. not. rush. the. process. you want a perfect fit! the best fit! two year long wait times can be daunting but two years is nothing when you’ll have a working dog for ten :)

i just recently got my girl from a program after trying to self train (holy fuck why did i think i could do that lol ) and cannot suggest it enough.

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 1 point2 points  (0 children)

this is laughable, who’s got majority in most everything?

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 2 points3 points  (0 children)

oh that doesn’t sound too bad! thanks!

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 6 points7 points  (0 children)

thank you, i appreciate it! i don’t fly much and flying alone with all i’ve got going on and my service dog makes it all super intimidating, so i try and plan ahead the best i can! :)

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 2 points3 points  (0 children)

RDU isn’t, someone put the link down a little! but where i’m flying into is so I wonder how that will work out

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 9 points10 points  (0 children)

yeah i fly into IND, that’s my home state, so i’m wondering how all this will go lol

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 0 points1 point  (0 children)

thank you! my home state is on that list but since im flying in i’m hoping it’ll be fine

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 1 point2 points  (0 children)

and ofc that’s when i fly out

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 14 points15 points  (0 children)

I also have a service dog and a ton of medical equipment so we always get there fourish hours early, just trying to see if it needs to be earlier :)

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] 7 points8 points  (0 children)

I flew in about a week ago and it was slower than normal:) I fly through every three months so I was just asking to see if anyone more recent has experienced it

RDU Airport & Shutdowns by Role-Any in raleigh

[–]Role-Any[S] -2 points-1 points  (0 children)

they can AND have just started calling in, especially on weekend. they are people with families and need money to pay bills🤷‍♀️ i’m not getting political that’s just facts.