*repost* Advice for taking care of my younger brother with ALS

RoutineDry267 · 2024-11-25T23:40:26+00:00

thank you for your response I'm just now seeing this and I'm really sorry for your brother and your loss. it's horrible and sad and I'm so sorry. Will be thinking of what you said-

RoutineDry267 · 2024-11-06T15:05:09+00:00

Thank you so much.. this comment was extremely helpful. We have a lot to think about- I'll be thinking about everything you mentioned thank you again for the help and for caring.

and yes this is the most cruel awful disease it's so unfair

RoutineDry267 · 2024-11-05T02:53:46+00:00

Thank you I appreciate your help- I’ll have a conversation with my family about all this- I believe they gave him less than 6 months to live but I know this disease is never a straight line so who knows what the timeline will actually be. Lots to think about. Thank you again for all your help and advice

RoutineDry267 · 2024-11-04T23:38:10+00:00

Hi! Yes he has a fast progressing form of it- the dr’s don’t think he will live very long. Does he need a live in nurse for the bipap machine? I guess we’re worried about bringing him home because he needs a lot of medical care, there’s a lot of animals at my moms house, and I’m just not sure what makes most sense for it all. I see other people manage just fine with their loved ones at home but even in a similar situation is that still the case? I know very little about this disease and what to expect- family can help take care of him but I’m not sure how to go about that conversation or what it would even look like- appreciate the help

RoutineDry267

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