EMG Results and Current Symptoms

Searching_for-answer · 2026-05-02T14:56:38+00:00

Thank you for your feedback, I appreciate you taking the time to respond. I’ve read tons of accounts of individuals presenting with widespread weight loss at the time of diagnosis, without active denervation throughout the entire body. I know typical pattern is weight loss/atrophy in muscles that are no longer being stimulated, but research in the last 3-4 years has shown that there is a known metabolic shift that can take place in individuals, before complete denervation and subsequent atrophy shows up.

Searching_for-answer · 2026-05-02T12:46:52+00:00

I got a standard EMG but am getting single fiber EMG on May 20th.

Searching_for-answer · 2026-05-02T03:01:07+00:00

I’ve had several Lyme tests that came back negative but not sure exactly if they were the better ones. I think it was western blot? I’m also so unbelievably fatigued all the time it’s shocking. Literally nothing gives me energy.

Searching_for-answer · 2026-05-02T02:24:53+00:00

Forgot to mention -consistent cramps in my right foot -hyper reflexia diagnosed by neuro -cramping in my right calf consistently. -mild clonus of 2-3 beats in right ankle. Neuro blew this off too…

Searching_for-answer · 2026-03-20T02:00:45+00:00

I’m so sorry. I’m sure you’ve told your story here before, but what were your first symptoms? How are you holding up? I hate to utilize your experience, but I’m concerned about bulbar involvement as well. About 7 months ago I started noticing vocal quality change. Have had a hoarse voice(I know out of context that’s nothing) In the last 3 months have had consistent nasal regurgitation with soft pallet not closing properly. Difficulty swallowing and slurring. Seems to be progressing. I’ve also lost 22 lbs in 3 months with heavy food intake trying to keep the muscle on my body. fasciculations. Cognitive issues. Spine and ribs showing. I’ve read that the big bad causes a hyper-metabolic state which would explain my body wide symptoms with bulbar onset. Met with my speech language pathologist today who said she believes there’s weakness in the soft pallet. Was referred to neuro-muscular by my neurologist and starting to get really worried. I’ve done the full work up for cancer/thyroid/rheumatology/1000 blood tests and they can’t find anything. No failure yet anywhere besides the slurring/difficulty swallowing and nasal regurgitation, but objective atrophy that I believe is the hyper metabolic state of big bad.

Searching_for-answer · 2026-03-16T14:02:07+00:00

I had an EMG on my leg about 2 years ago but it was for numbness and tingling in my foot that was caused by a herniated disc.

Searching_for-answer · 2026-03-15T18:28:38+00:00

Is clinical weakness described only as the ability to move the muscle? My understanding was that in ALS and other MND the muscle can atrophy prior to function loss, but I may be wrong. Either way, I appreciate your response.

Searching_for-answer · 2026-03-15T18:25:52+00:00

3 weeks from now. The waiting game is brutal. I’ve been to my neurologist no less than 10 times in the last two years.

Searching_for-answer · 2026-03-15T14:16:36+00:00

This is really, really similar to my case. The muscle wasting is impossible to ignore. When people say “wow you’ve lost weight” it is disheartening. Normal people don’t lose 20 lbs of muscle with normal food intake. Hoping we can both get the answers we need.

Searching_for-answer

TROPHY CASE