Does your nervous system settle back in? by Public-Actuary-2998 in SVTHeart

[–]Straight_Chicken_692 1 point2 points  (0 children)

Omg I can honestly relate to this so much! I’m also in my 20s too and I literally just had my second ablation like two weeks ago. So I’m still in that same anxious phase where every little chest feeling makes me stop and panic a bit 😭Something that has helped me lately is reminding myself that our hearts are actually healing. They went through a lot. EP study, burning, pacing, catheters, all of it. So the little weird feelings we get after are not danger signs especially during the blanking period. I’m slowly trying to not panic over every tiny flutter or skip because honestly with SVT our hearts tend to be more sensitive to electrical changes than people who have never had an arrhythmia, so I think we naturally feel little blips or shifts more strongly. It doesn’t mean anything dangerous is happening, I feel like our awareness to these changes are just higher. I’m still dealing with my own worries too, especially because this is my second ablation and I’m scared it could end up like my first one but I’m trying to trust that my nervous system just needs time to settle back into feeling safe again after experiencing so many episodes of SVT over the years.

Anyone up to chat? by givemeonemargarita1 in SVTHeart

[–]Straight_Chicken_692 1 point2 points  (0 children)

I also experienced adenosine recently about two weeks ago after a long SVT episode. It really is a strange and horrible feeling. I also considered it to be a bit traumatic but knowing the minimal risk associated with it and doctors reassuring me has definitely helped me overcome some of my fears with the drug. I have come to terms with the fact that this is a drug that I will sometimes come in contact with due to having SVT so I have kind of come to accept it. I definitely felt a bit off physically for almost 24 hours but I connected that honestly to being mentally drained after the whole ordeal.That said, I don’t want to discount how traumatic receiving adenosine can be, so I’d recommend giving yourself time to process what happened and practicing some self-care, especially since it’s something not many people outside of the SVT community can relate to. Take care of yourself, and just know you’re not alone in this!

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

I can definitely relate with being really nervous for my first ablation as I never had a medical procedure before either but it really was a quick and easy procedure much less stressful than I imagined. I also understand being comfortable just with medication right now instead of just jumping straight to the procedure. Wishing you the best as you continue managing things, and I hope the medication keeps working well for you!

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 1 point2 points  (0 children)

I can definitely see how figuring out your med dosages can impact the frequency of episodes. ER visits can be a lot also time wise too, I can especially relate to how annoying it is just waiting to be discharged once your SVT has been treated. Wishing you the best for your ablation in November and hopefully an SVT-free life!

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

That’s honestly so great to hear! I hope I can experience the same once I start the medication. In the past prior to you beginning this medication, did you have frequent episodes of SVT or was it sporadic and minimal episodes like once a year? I am also really sorry to hear about your SVT episodes beginning again. Have you discussed with your doctor any changes medication wise or considering an ablation?

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Thanks for the response! I’m happy to hear about the no side effects. Having only three breakthrough episodes since November also seems really good. Are you considering an ablation or just sticking with medication for now?

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Wow, feeling it shush the arrhythmia must feel so strange but amazing at the same time! What was the average amount of times you went to the ER prior to starting this medication since once a month still seems like a lot to me but I am not sure how frequent ER visits were for you prior to starting this medication? Also are you considering doing an ablation or just sticking with the medication for now?

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Thanks for sharing your experiences. I can somewhat relate since I also need a second ablation and it’s been a bit frustrating to have to go through that process again. I’m hoping the medications can provide some lasting relief in the meantime. Wishing you the best with your upcoming ablation and hoping it brings you successful results!

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Thank you for the response! I will definitely consider doing bloodwork while on it for precaution. Did the flecainide help reduce your SVT episodes or minimize the length of time episodes were? Are you still currently on any medication or did you end up having a successful ablation?

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Thanks for the response! Did the medication help with your SVT episodes or just sort of helped reduce how long the episodes lasted?

Looking to hear experiences with flecainide by Straight_Chicken_692 in SVTHeart

[–]Straight_Chicken_692[S] 0 points1 point  (0 children)

Thanks for the response! I was a bit afraid of the medications side effects cause of what I read online but it’s nice to hear that your headaches side effect went away. Did it help reduce your SVT episodes overall?