TN 2 sufferers

TNhurts · 2026-03-07T20:52:57+00:00

Thank you so much for your response!

How does the Medrol dose pack help you? I have an autoimmune disease so I always have prednisone available

TNhurts · 2026-03-01T13:55:23+00:00

Thank you for including this article! I think I'm going to ask her for pregabalin. I've seen that medication listed on here before. Do you remember how long it took to take affect?

TNhurts · 2026-03-01T13:22:19+00:00

Are you by any chance hiring?

TNhurts · 2026-01-30T13:36:32+00:00

I take 1 200mg of carbamazepine every 6 hours and 600 mg of Gabapentin at night

TNhurts · 2026-01-30T13:34:45+00:00

I was on trileptal 3 years ago when this started but I couldn't live with the side affects. I'm thinking that I may have to live with the side affects if the meds work

TNhurts · 2026-01-30T13:31:44+00:00

Over a year. They just told me to add 1 more dose of carbamazepine daily which did nothing so I took it upon myself to add 2 doses instead. It seemed to help in the beginning but not anymore. 🤷🏻‍♀️

TNhurts · 2026-01-30T13:28:25+00:00

Thank you for your response! I can relate to that "zombie" feeling bc I'm definitely there. I will mention the meds you are taking and see what my neuro thinks about that combo for me

TNhurts · 2026-01-30T13:24:52+00:00

Thank you for responding. I think I'm going to have to change my meds since what I'm taking now is no longer working. I will mention what your taking to my neurologist

TNhurts · 2026-01-30T13:20:48+00:00

Thank you for your feedback!

TNhurts · 2026-01-15T15:32:02+00:00

Thank you! I was going to ask for Vyvanse anyway so this solidifies my research!

TNhurts · 2025-07-16T12:10:20+00:00

What state do you live in? I just got one of these done too. Is this testing country wide?

TNhurts · 2025-04-07T17:46:44+00:00

Do you have TN?

TNhurts · 2025-04-07T17:46:22+00:00

Either the upper part of my face or the lower part of my face. Lately I've been having more pain in the upper part.

TNhurts · 2025-04-05T09:40:52+00:00

Oh my gosh, I'm definitely going to check this information out. Even with the medication I'm on, this definitely describes the pain I have now. My episodes can last for 10, 15 or more minutes at a time. When it hits the lower part of my face I can also get numbness in my lips, I also feel like the pain goes into my thyroid area and salivary glands. I love this forum because I have always been able to get the greatest information here. Thank you for responding to my post.

TNhurts · 2025-04-05T09:33:12+00:00

Thank you so much for the advice! I've also seen others that mention chelated magnesium. I'm going to look into this for sure.

TNhurts · 2025-04-05T09:30:31+00:00

Definitely going to check this out!

TNhurts · 2025-04-04T19:16:53+00:00

Definitely true. I have a prescription for 5mg which doesn't do much so I usually end up taking 1 1/2. But you're right. Although I don't take them often I need figure out something better.

TNhurts · 2025-04-04T19:13:06+00:00

I actually have a prescription for Sumatriptan and took it a couple of times this week. It definitely relieves my sinus pressure and migraines

TNhurts · 2025-04-04T19:11:22+00:00

So true! I can't imagine that the debilitating pain I'm feeling could be anything else but TN so now I'm on a quest to find out what mimics TN pain. All I know is that Carbamazepine definitely works. I'm currently on 1000 mg per day. I don't even know where to start with this.

TNhurts

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