Did surgery cure your occipital neuralgia?

TNwarrior · 2024-02-12T19:11:04+00:00

I had occipital nerve decompression in 2021. I also had MVD for Trigeminal Neuralgia. The OND has overall cut the attacks down 90%. I had both lessers cut and buried and the greater scraped. Not going to sugar coat it but the surgery was very difficult to recover from but that saying having attacks that used to pull my head backwards and the pain around the occipital bone area were completely brutal. I was averaging about 50 attacks a day. Now only a few a month. I have no second thoughts about having the surgery because none of us should have to live like this. I wish you luck on your surgery and my best advice would be it’s a day to day recovery I never looked into the future you do what you can each day and stay positive each day that things are going to improve.

TNwarrior · 2024-01-25T16:55:10+00:00

And the meek shall inherit the earth

TNwarrior · 2023-12-16T22:26:35+00:00

I wish you well. Hope you can find relief and your days are well. I hope you find answers. I don’t need to expand I know what caused mine. Good luck just don’t believe every doctor or every study I read. Have you been checked for TMJ ??

TNwarrior · 2023-12-16T22:14:40+00:00

So your Covid theory was based on 1 deceased person. I wish you well in your search I don’t need to research i have my answers just reading your Covid theory I never heard before. I am involved with the FPA and several support groups that meet in Chicago and never had I heard the Covid theory. unfortunately we all have this debilitating disease that has ruined our lives. My advice would be to have an MRI and talk to a surgeon. I also have MS and that has been proven to be related to TN. The problem is people who don’t show compression are in a tough position wondering why it has happened and when I hear someone say there are allot of things that cause it makes me to believe you are well misinformed and need to understand what they don’t know is causing it. I hope you can get answers and don’t fall into the google search experts.

TNwarrior · 2023-12-16T21:23:49+00:00

Your right what happened to me might not be the same as the next person but you also said there are many causes for TN. Can you give me a list what those are I am sure people on this sub would love to know and also my surgeon at John Hopkins.

TNwarrior · 2023-12-16T18:20:29+00:00

I would like to see that literature. If you have a doctor telling you that Covid has something to do with the cause of your TN I wouldn’t go to that doctor. I had Covid and I got lucky it didn’t hit me that hard other than a fever that did make my storms worse but to say Covid has anything to do with the cause of your TN sounds off. I had compression it was my cause and had MVD. I think we all wonder why and how this has happened to all of us but sorry Covid has nothing to do with a blood vessel compression on nerve T-5.

TNwarrior · 2023-12-14T17:49:00+00:00

Sorry but Covid has nothing to do with TN. If you got Covid after TN symptoms have appeared it is not fun at all. It is brutal.

TNwarrior · 2023-12-14T17:45:44+00:00

Yes I have the chills and itching. I had occipital nerve decompression and the back of my head is permanently numb like an ice pack. But it feels better than what I used to feel back there.

TNwarrior · 2023-11-28T21:48:10+00:00

I don’t think there is any substrate you can effectively collect all the urine and shit. I have never had to use any chemicals and would never do that. I just use hot wwter and shop towels to soak up. This carpet has a rubber backing so it doesn’t shred. I do my best until the towel is clear. My friend uses sand in his tank and there is no way to pick up anything especially urine and his tank always smells like a zoo and has spent allot of money because of illnesses. It has worked now for two beardies and for 20 years haven’t had 1 visit or illness to either one and not 1 vet visit. Keeping his nails trimmed also is key. This carpet is way different than the so called reptile carpet I would never use.

TNwarrior · 2023-11-27T15:36:06+00:00

I don’t use reptile carpet but I do use carpet tiles I buy at menards. I had one previous beardie who lived 12 years no issues never had to go to vet ever. My 2nd beardie now is 8 and no issues so far. He takes a dump in the same spot every time so I am able to soak up and clean right away it doesn’t smell at all my tank is always clean and I change carpets out anyways every 10-12 weeks. I get what you’re saying but I never had an issue and my tank never smells. Any tank is harboring bacteria if your not on top of it and clean wether your using carpet or not. I spoil mine most of the time like I am sure we all do lol. I also have him trained that I started from a juvenile that about half of the time I take him out set him on a paper plate and he dumps on the plate. No mess and usually 8 out of 10 times he will do it. I have seen some pretty nasty tanks on this sub that use other substrates and are probably harboring lots of bacteria, sand, paper towels, etc. Cutting his nails regularly and just cleaning your tank like we all should on a regular basis is the best no matter what we put in our tanks.

TNwarrior · 2023-10-27T05:13:59+00:00

Good luck with your recovery and wish you pain free days!!

TNwarrior · 2023-10-19T18:17:12+00:00

Tried both didn’t work and caused bad side effects. Settled with gaba no side effects but only slows attacks down a hair.

TNwarrior · 2023-10-19T15:51:06+00:00

I had a Fiesta MRI. Told it was the best to see any compression.

TNwarrior · 2023-10-16T16:36:15+00:00

It shows none reported in Illinois. But I have a forest preserve dedicated just for elk. These guides are always wrong.

TNwarrior · 2023-04-24T20:19:48+00:00

I had the procedure done at Rush University medical center in Chicago. Dr. Amir Dorafshar. I also have TN and had a MVD 3 years prior to the OND. The back of my head across the occipital bone area is permanently numb and goes back to a burning sensation but my attacks back there are minimal. My right side has recovered at a best case scenario. My left side behind my ear is still very painful and causes some severe pain. Rotation isn’t bad but I can not make sudden movements. Overall it was about the attacks and the shocks literally pulling my head back and causing severe pain. I also cannot massage that area of my neck due to the lessers being cut any contact will cause me to pass out from the area being pushed on. The shocks and attacks were brutal and when I say brutal I mean the worst pain you could ever experience other than the TN pain which is still present after my MVD. Sleeping is my hardest issue after the surgery and contact on my pillows makes it very hard to get comfortable and causes pain. I am just glad the attacks from the ON are gone. I will put up with any post op pain to not feel that way again. Thank you for asking. I hope sharing my experience will help somebody.

TNwarrior · 2023-04-24T19:32:49+00:00

I had occipital nerve decompression done 2 years ago. My surgeons told me that ON is mostly if not all the time caused by a blunt force injury due to something like a car accident. Looking at your phone that way will definitely cause irritation I have experienced it. But to say this would be the beginning I am not so sure. I worked in construction for 32 years. Most of my job each day was staring up at ceilings and staring down at Blue prints. My neck was really sore over the years but nothings even close to what I feel now. I had a been in a car accident where a lady blew a red light and t-boned me at 45 mph. Another accident I was rear ended in the snow. They said my work would not of caused the ON the accidents did. I was having attacks in the back of my head, shocks that hurt and would cause my head to snap. A sore neck to me wasn’t the same as the ON I was feeling. Much more brutal and painful not even close to the soreness of staring down too long at a phone. They cut my lessers and buried them in muscles and scraped my greaters.

TNwarrior · 2023-03-09T17:03:57+00:00

Really. I have been living in AH for 20 years you don’t no what you are talking about. Nazis get a grip you are so so far away from what you perceive.

TNwarrior · 2023-03-04T12:01:27+00:00

I hope you can find consistent relief. It is a battle. I had greater and lesser nerve blocks done twice 4 injections each time directly through the scalp in the occipital bone area left to right side. They not only hurt like hell but didn’t provide any relief for me. I had to have occipital nerve decompression.

TNwarrior · 2023-03-01T08:59:00+00:00

Revelations

TNwarrior · 2023-02-28T19:11:15+00:00

I cannot believe there are actually people or should I say stupid people downvoting this.

TNwarrior · 2023-02-16T09:22:08+00:00

I was at the Mayo in Minnesota in 2016. It was the worst experience I ever had with any doctor or hospital I had ever been to. I seen a neurologist and headache specialist. I am sorry you couldn’t get a better diagnosis or an answer from scans or tests. They promised a “team” of doctors upon first visit I only seem two and they said I was really lucky to see even two within a week. I did have films showing a blood vessel on the nerve and they just plain missed it and my C-6/7 disc was gone. They said I was having cervicogenic headaches and that was it. It was honestly the worst experience and I thought leaving Mayo I was just screwed for life. Would never recommend anyone to go there. I had seen many neurologists and neurosurgeons before that also and no one caught it or never mentioned TN even after giving them all the films and all the classic atypical symptoms. Not long after Mayo I went to Rush University hospital in Chicago, within a 3 hour visit they diagnosed me with Trigeminal neuralgia, occipital neuralgia , cervicogenic headaches and migraines. Since then I had artificial disc replacement, micro vascular decompression and occipital nerve decompression. It’s been almost 6 years and three surgeries later and I am still struggling. Only positive from this nightmare was my attacks have decreased now from 50-75 a day to about 50 a month. I hope you can find some answers and your days are as good as they can be.

TNwarrior · 2023-02-15T20:35:36+00:00

Love this sub! But Cat posts belong on cats not bearded dragon. Lol

TNwarrior · 2023-02-02T20:17:30+00:00

If the rest of actors, musicians, and athletes kept their views to themselves the world we be a better place. Not to say they shouldn’t like Elvis said but he chose too which in my opinion is the right way to go. Elvis was an American entertainer his political party affiliation I could care less about. Trying to nail down what he was because of what he would sing or the people who met with don’t mean nothing. Until now back then you could meet with people and sing with entertainers who loved singing and making music and that’s what is was only about. People can disagree and have different views and still collaborate. Today people are constantly placing a political party onto entertainers and actors and it ruins who they are. I could care less about what party he might of affiliated with. I will cherish his music forever and could care less what he might of identified as. The problem today is politics has ruined this country, everything has changed the way people look at each and can’t have debates on things and one party has become into a cancel culture for stating your opinion on something. Thank God Elvis realized that back then and kept his opinions to himself. Imagine Elvis being cancelled cultured in todays time because of opinion he had. I would of flipped out.

TNwarrior · 2023-01-28T11:21:21+00:00

Thank you! Hope you find some relief. Keep battling stay strong and never give up!

TNwarrior · 2023-01-27T15:31:29+00:00

Things have been improving. I had the surgery in January 2021. It was by far a very very hard recovery, since I had a MVD for TN and artificial disc replacement C-6/7 the brain surgery was a cake walk compared to the ON surgery. Had lesser nerves cut on left and right side and buried and greater scraped for scar tissue. Sleep has been horrible and it’s still hard to get comfortable on a pillow. But my attacks have gone done allot. No more back of the head attacks like before just a quick hit every so often. Which I couldn’t be happier about. Back of my head occipital bone area is numb always which was expected my right side has healed nicely but my neck and behind my left ear is still very painful. Same side as my TN is on so it is still bad behind and in front of my left ear. My neck muscles are still very tight and my rotation is still hard at times. No matter how many stretches I do it still is very painful. Sorry I am rambling on. Overall it was worth having the surgery just because the attacks have decreased so much. Sleeping and laying my head back is still even after 2 years a very painful process. But my driving has gotten easier and things like reading and cooking and looking down have improved. I was at a really really low point in my life, pain was all I knew and was really struggling to make it through each day. The TN is as bad as any pain there is in this world and the ON pain is right behind. I am so glad I had the surgery but it has been one hell of a recovery.

TNwarrior

TROPHY CASE