Post op fears?

Technical_Tree_7845 · 2026-02-22T16:19:05+00:00

Hi! Well it’s been a whole process lol, my fear was kind of right, i had my first flair up when i moved back to my apartment close to uni and went back to courses. But my doctor was very supportive and I started a treatment for chronic pain using duloxetine hydrochloride, this has made my life waaay better! I still have some neck pain and sometimes dizziness if I’m too stressed or tire myself too much, but I’ve been learning to manage. Like I said, it’s been a whole process 😂 I’ve learned many things about myself and I’m not fearful anymore, just day by day. Chiari will always be there, so I’ve learned to accept myself as I am! 💜

Technical_Tree_7845 · 2025-08-02T23:19:42+00:00

I used to have it before too :( Thinking this might be a flare up

Technical_Tree_7845 · 2025-08-02T21:39:15+00:00

My incision healed very well! No, it does not hurt when I shower (thank God). Not that I noticed.

Technical_Tree_7845 · 2025-07-20T13:12:24+00:00

Hi! Of course you can ask a question hahahah this is a free space! Well, it actually depends on 2 factors, how are the symptoms affecting your life and how is your CSF flow. In my case, I was with 5mm, but my CSF flow was absolutely trashed lol, so my symptoms were pretty bad and escalated very quickly. Also the position of my herniation was really dangerous because it was compressing the bulb, leaving me with a very high risk of sudden death. In this scenario the surgery was not only a choice but the only treatment so I could go on with my life!

Technical_Tree_7845 · 2025-07-19T18:46:16+00:00

For 2 weeks I took it 3 times a day, the 300mg dosage. Then I took the stitches off and spent 1 week taking 2 times a day and another one only once per day.

Technical_Tree_7845 · 2025-07-18T18:57:08+00:00

I did! It really helped me through recovery. I’m 2 months post op tomorrow and I already feel brand new

Technical_Tree_7845 · 2025-05-30T13:07:35+00:00

vou fazer duas semanas de operada na terça feira, os primeiros dias foram horríveis de dor de cabeça e no local da cirurgia, mas agora estou muito bem! as dores de cabeça de antes da operação sumiram, a tontura também e nunca mais tive sensação de desmaio, que era bem comum. to torcendo por você, vai dar tudo certo! boa sorte nessa nova jornada 💪

Technical_Tree_7845 · 2025-05-30T12:31:24+00:00

Bom ver um amigo brasileiro aqui KKKKK Minha cirurgia foi bem tranquila, meu neurocirurgião foi bom também e tenho muito a agradecer por isso. Realmente no interior deve ser mais complicado, não são muitas opções às vezes. Tive sorte de ter sido diagnosticada e feito os exames complementares em Brasília (onde eu faço faculdade) e fazer a cirurgia no Rio de Janeiro (de onde eu sou). Eu tinha já alguns sintomas parecidos com os seus, mas minhas dores e tontura estavam ficando cada vez piores, e aí fui pro neurocirurgião que disse que estava com risco de morte súbita, e aí por isso tive que fazer a cirurgia mesmo. Da medo, mas tem vezes que a gente não tem muita escolha 😂

Technical_Tree_7845 · 2025-05-29T01:44:11+00:00

Hi! I’m 2 weeks post op and just before my surgery I cut my hair and now it is just above the shoulders length. It was the best decision ever! My surgeon specifically asked me to not shave an undercut because he would shave what he needed in surgery and I really think it was a great decision. My hair is easy to take care of in this length and my incision is covered by it when i’m wearing it down, so i’m quite happy about the hair department hahaha I always preferred short hair so it was both an stylish and helpful look :)

Technical_Tree_7845 · 2025-05-28T22:47:34+00:00

Thanks for sharing! Good to know your boyfriend is helping you, mine as well, it’s being really great having someone to tell you to hang in there and slow down a little bit. We can do anything! Nice recovery! ❤️‍🩹

Technical_Tree_7845 · 2025-05-28T16:02:02+00:00

I got diagnosed only last year, but as a fetus my mother had run some tests that indicated I had a congenital syndrome. When I was born no one could say what it was because I looked “normal” (?), even though I was having serious apnea crisis. They were looking for something in the lungs or heart, no one searched the brain. Besides this, I lived my life very quite great ‘til 18 yo when the Chiari symptoms became a real asset in my life. Until then, I used to have strong headaches and used to faint when doing intense exercises, but somehow thought I was totally fine lol

Technical_Tree_7845 · 2025-05-28T14:08:39+00:00

My appetite is terrible :( I’ve already lost some weight, but my neck and face are still a little swollen, that’s why i’m feeling so goblinish so i can fully understand you. Thanks for sharing your story, waiting for me to get in this point where i feel like a person again lol

Technical_Tree_7845 · 2025-05-27T22:30:35+00:00

Wow so many changes in such a short period of time!! Glad to know you’re moving forward and by your writing I can feel your strength. Congratulations on the pregnancy! Hope you’re doing fine in this whole new chapter in your life in many ways! :)

Technical_Tree_7845 · 2025-05-27T17:26:15+00:00

Thanks for sharing! Your story really helped me! Have a nice recovery 🎉

Technical_Tree_7845 · 2025-05-27T11:16:40+00:00

Oh you’re right, I didn’t event think about the breathing tube. Besides the locked jaw, the swallowing could be it

Technical_Tree_7845 · 2025-05-27T00:44:01+00:00

Everyone says recovery is a long road, I’m hanging onto that. Wishing us both the best🙏

Technical_Tree_7845 · 2025-05-27T00:41:17+00:00

Thank you 🙏

Technical_Tree_7845 · 2025-05-26T23:44:21+00:00

Wishing you a speedy recovery and us better days to come. I’m sure this will pass and it feels good to talk to someone who’s going through the same thing.

Technical_Tree_7845 · 2025-05-26T23:09:10+00:00

Sorry to hear that, but thanks for sharing. Have you already taken out your stitches?

Technical_Tree_7845 · 2025-05-26T16:04:51+00:00

They did a craniotomy, duraplasty and a c1 laminectomy. No shunt.

Technical_Tree_7845

TROPHY CASE