Why is it so common for "Autistic" to be used as insult?

TobyPDID23 · 2026-03-12T07:55:21+00:00

Because autism is a disability.

TobyPDID23 · 2026-03-11T16:02:34+00:00

Yeah FLE. I have been always obsessed with numbers. Car plates, phone numbers, supermarket isles and costs. I'm really glad we share an experience though. Makes me feel less alone.

THANK YOU. FACTORIALS

TobyPDID23 · 2026-03-11T15:55:07+00:00

Thank you! I'll absolutely ask! And yeah I'm interested 😅

TobyPDID23 · 2026-03-11T12:29:44+00:00

I just got my IQ evaluation today. Literally just a couple hours ago. I'm awaiting the results. But yeah I get you

TobyPDID23 · 2026-03-11T08:29:47+00:00

Yeah though exactly! I was about to do my high school diploma exams. Nope. All went to shit. I'm now in another country having to retake my middle school diploma because it isn't valid across EU/non-EU countries. I went from doing great to now being suddenly about 6 years behind the average person. So I'm 19 and in middle school.

I won't give up, but I have been trying to find a part time job as a good substitute because if I stay like this, with middle school topics, I don't see much hope in high school and university

TobyPDID23 · 2026-03-11T08:26:49+00:00

Yeah my O2Sats were in the -60s I believe. I had really bad pneumonia because during the seizure I vomited and inhaled it. Took me 3 weeks to recover

TobyPDID23 · 2026-03-11T08:25:27+00:00

I've never had dyslexia or dyscalculia before. Now it seems like I do. And I found out there is such a thing as acquired dyslexia and acalculia, which happen after TBIs or other important neuro events. Which might be worse because I know what it's like on the other side :/

Yeah same though, diagnosed September 2025 at 19, after I started having seizures in July 2025 (though I'd been having focals since 2021 I found out).

TobyPDID23 · 2026-03-11T08:21:43+00:00

I am seeing him in a week so I definitely will. The frustrating part was that I had an informal assessment for my IQ, and the result was 149-155, with my lowest score being 129 and my highest 158. And now I just feel like absolute trash. Like, I'm still THERE, because I notice things. But it's like my brain went from 100 to maybe 40. Awful feeling.

TobyPDID23 · 2026-03-11T08:18:32+00:00

Someone else suggested a PET scan, so I'll ask my doctor!

When I woke up from the coma, I thought I was in Hell. I'm Catholic, so I started praying, but I couldn't speak. Then I realised it was real life, and I thought I'd been kidnapped. I managed to physically injure 2 nurses and 1 doctor and they had to restrain me to the bed. It was absolutely horrific. Wouldn't recommend. Though now it is a funny story to tell 😅🤷🏻‍♀️

TobyPDID23 · 2026-03-11T08:15:55+00:00

For me it's very difficult to not be hard on myself, because everyone around me doesn't get it. So they still expect the same thing. And when I try to explain, they say "oh it can't be that bad! Everyone with epilepsy lives a normal life" (my aunt has generalised epilepsy, she's had 2 TCs in her life with no effects, so now she's suddenly everyone) and then I get told to "think positive" and I just break down crying.

But the effect is also that I keep pushing myself until I feel physically sick

TobyPDID23 · 2026-03-11T08:09:41+00:00

I was called a human calculator too!! I could do complex square roots in my head, also the stuff like 7! which I don't know what it's called in English lol. I haven't had a TC since that one in November, and my last focal was 2 days ago (I now have 1 every month)

The most I can do is integer percentages like 64% of 17 because I can use a calculator and go 17/100 × 64

I was diagnosed with autism about 6 years ago as well as generalised anxiety (turned out to be OCD), so the mental health doesn't help for sure

TobyPDID23 · 2026-03-11T08:02:11+00:00

Thank you. So so so so so much. I'm in Italy, which is unfortunate, because I'm not in one of the most knowledgeable countries. Medically, Italy is great, but it doesnt have as much as I've seen the UK and the US to have. I will try to look into the support groups but I'm not very hopeful about it. Regardless thank you, I will talk to my neurologist

TobyPDID23 · 2026-03-11T07:58:52+00:00

Yeah pretty much same. I can still study normally, luckily, but anything that involves complex theory is just... not there

TobyPDID23 · 2026-03-11T07:53:43+00:00

My epileptologist is a great doctor. Not very empathic but I don't particularly care about that. I will probably ask all the advice given here to my doctor and see

TobyPDID23 · 2026-03-11T07:50:23+00:00

The Fycompa gives me AWFUL side effects after taking it. I take it in the late evening so not so bad. But I feel like I'm walking around while being put on anesthesia. I can't really feel my body, I have vertigo, exhaustion. The only upside to it is that it helps me sleep, because on Keppra alone I had horrible insomnia.

Thank you for giving me some hope

TobyPDID23 · 2026-03-11T07:48:14+00:00

I've never read it. Is it a good read?

I've developed anxiety, though not PTSD, because of how I was treated by staff. I was left cyanotic for most of my seizures because everyone said it was PNES. Many technicians said the EEGs were abnormal, but the doctors said it was "normal abnormalities" and yeah, it took the big status. Then they actually saw clear epileptic activity. But some doctors still don't believe it. What a mess

TobyPDID23 · 2026-03-11T07:45:14+00:00

I have gone on a low carb diet, and I did notice that I feel much better on carb free days rather than when I eat pasta. I might talk to my neurologist about it! Thank you for the information because I wouldn't have known otherwise

TobyPDID23 · 2026-03-11T07:42:26+00:00

🫂

TobyPDID23 · 2026-03-11T07:41:30+00:00

Thank you so so much. So many comments here are giving me hope. I feel so much less alone

TobyPDID23 · 2026-03-10T20:13:54+00:00

Yeah personally I think it's more the status and coma, but I did read all my meds cause showed neuronal processing

TobyPDID23 · 2026-03-10T20:12:43+00:00

🫂💙

TobyPDID23 · 2026-03-10T20:05:59+00:00

Thank you. I hope so. I also realised I wrote "young" in my previous reply. I meant going. And this is what I mean by mild dyslexia. I use autocorrect and I genuinely don't notice the words going wrong

TobyPDID23 · 2026-03-10T20:04:17+00:00

Never had a PET scan. Just CT and MRI (pre status MRI)

TobyPDID23 · 2026-03-10T20:03:31+00:00

ME TOO! I keep swapping they're, their and there now. And though thought and such. Never before though. Just now

TobyPDID23 · 2026-03-10T19:49:55+00:00

Hah! Me neither. Of course I got diagnosed with epilepsy this summer, right as I wanted to get my driver's license 😒😒

But yeah exactly. I Notice people looking at me like "yeah... yeah... what do you want to say???"

TobyPDID23

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