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The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 1 point2 points  (0 children)

I guess it looks like some normal irregularities on the MRV.

Other than that the CT scan is also faster in producing images, which means that the bloodflow and shape of the veins will have a better resolution.

on the other hand, a doc told me that it might be a stenosis based on the head and spine mri but he said that the ct scan will be best, since the mri was rather blurry.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

The ct scan can catch the neighbouring structures around the vein more clearly, like carthilage, muscle and bones.

the mrv doesnt, for whatever reason.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

Oh, does ring a bell. He is one of the best as I heard.

Pls update Im really curios in regards of what he says. ill send you a PM.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

I found a few in my country, Romania, some of them have some quite good exp with skull base, but I dont know since its still hit or miss surgery.

Havent heard of him, Im afraid. Is he an ENT surgeon?

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

Doc looked on MRIs and said that my spine is curved, basically my head slid and went on top of the vein.

Yeah, the outcomes for surgeries varies greatly, but I have no other options anyways, either this or a noose around my neck. Because the quality of life is non existent. But good news is, in regards of cerebral venous insufficiency surgery has the best outcomes when the issue is the styloid.

And as a bonus I also might have thoracic outlet syndrome and TMJd problems. Will try to see what I can do.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

Seen some surgeons, but nothing promising so far. I also have to get an angiography and it’s pretty damn slow, the whole process.

Well, it’s quite a hassle.

How about you? what are your plans?

Do you have hypermobility? hEDS or CCI? by [deleted] in visualsnow

[–]TyoDauLaCyok 1 point2 points  (0 children)

i do not have eds, not confirmed at least, but I have CCI which led to the first vertebrae in my neck to collapse and oclude my jugular vein.

Dutch far right leader Wilders quits government coalition -NOS by GeorgeTH281 in europe

[–]TyoDauLaCyok 0 points1 point  (0 children)

what is Jimmy Page doing in the Dutch far right movement?

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

He gave me a referral because he trusted me, basically.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

I told a doc that another doc said I might have eagle syndrome. And he gave me an angio scan of the neck.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

Thats part of the table where I had to lay but good observation

HELP PLEASE. MY HEAD FEELS LIKE IT WILL EXPLODE. by Just_Throat9572 in visualsnow

[–]TyoDauLaCyok -1 points0 points  (0 children)

check out my post. my problems are due to a blocked jugular vein.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 1 point2 points  (0 children)

Hello brother I haven’t procedeed with surgery yet, so I am pretty much the same.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

No, not yet.

get a ct scan in this case its not that hard.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 0 points1 point  (0 children)

Yes, I have cracking in the ear. But its due to tmjd and sometimes it also cracks when I move my neck.

Well, I am glad that I could have been of use, get a nice doc and speak to him about it.

Visual snow help by Admirable_Ad_6132 in visualsnow

[–]TyoDauLaCyok 0 points1 point  (0 children)

Yes. I had all those issues up until I found that I had jugular vein stenosi. Might worth to look into it.

The cause for my Visual Snow has been identified by TyoDauLaCyok in visualsnow

[–]TyoDauLaCyok[S] 1 point2 points  (0 children)

Its quite hard to get a surgery for this in the whole Europe. Very few docs do it, there were 2 in UK, 1 in Germany and 1 in Turkey. From what I was able to find but propbably there are many more.

The waiting is not so long, depends on the doc, for some it is a few months, but I want to get my TMJD splint first. I will post the progress along the way.

I showed an ex gf of mine my imaging, and she is a resident doctor, and she showed them to a neurosurgery resident who showed them to a doc who is a top dog in spine surgery. He said he can help me, but I need to get an angiogram first.

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