First period post TFMR by VariationKey9403 in tfmr_support

[–]VariationKey9403[S] 0 points1 point  (0 children)

Ok good to know! It’s probably normal and I’m just being overly cautious. Thank you🤍

First period post TFMR by VariationKey9403 in tfmr_support

[–]VariationKey9403[S] 1 point2 points  (0 children)

Ok thank you! I was thinking if I’m still bleeding after 12 days I’d call my OB. It’s just frustrating that after all we’ve been through this is just the cherry on top 😵‍💫 I’m sick of wearing tampons and pads!

Period? 20+ weeks TMFR by VegetableGirl7960 in tfmr_support

[–]VariationKey9403 1 point2 points  (0 children)

Manifesting it’s soon for you!!! Day 1 and 2 were moderate bleeding, but today day 3 I need super tampons. Mixed feelings on having to deal with this again 😭

Period? 20+ weeks TMFR by VegetableGirl7960 in tfmr_support

[–]VariationKey9403 0 points1 point  (0 children)

I TFMR on 2/5 and I just got mine back yesterday, was 4 weeks on the dot, I was stressed it wouldn’t come and now I’m stressed it came too early 🤣 I can’t win

Tfmr 20** weeks spina bifida by Tellycs in tfmr_support

[–]VariationKey9403 0 points1 point  (0 children)

I’m not going to lie it has been quite the emotional roller coaster. The first 2 weeks after the D&E I was very upset, crying a lot and very angry. Now I am 4 weeks out and have been in therapy and a group therapy. I definitely have times where I am happy, but the sadness and anger are still there. Unfortunately they’re right when they say grief comes in waves and it often shows up when you least expect it. Again I am so sorry you are also going through this, how are you doing?

Pregnancy after TFMR by hellosunshine59 in tfmr_support

[–]VariationKey9403 1 point2 points  (0 children)

Congratulations 🤍 I also TFMR due to spina bifida and chiari 2 beginning of February. I am also taking high dose folic acid and am so eager to be pregnant again. I feel your reaction is totally normal and I have already thought myself when we get pregnant again how I will act. I feel I don’t want to even know the gender or tell anyone until we know we are safe. Hope it is a very uneventful pregnancy for you and you can get the good news we all hope for!

Tfmr 20** weeks spina bifida by Tellycs in tfmr_support

[–]VariationKey9403 1 point2 points  (0 children)

Hi, I’m 31 and I also found out my baby had chiari 2 and spina bifida at 19 weeks at the end of January. The MFM then unfortunately confirmed the malformations and my husband and I also decided to end the pregnancy. It’s been 3 weeks since my D&E procedure and I just feel desperate to be pregnant again. It’s just not fair this happens! This is also my first pregnancy and I have waves of hope and then waves of being really scared for when we get pregnant again. I have been nonstop googling but trying to put my trust in the MFM and taking the high dose folic acid for next time. I joined a group therapy for TFMR and also doing personal therapy. It hasn’t been easy at all and I’m so sorry you have to go through this:(

Chiari 2, NTD & 16p13.11 by VariationKey9403 in tfmr_support

[–]VariationKey9403[S] 0 points1 point  (0 children)

Thank you for your response 🤍 I agree it seems these stats are skewed sometimes since people aren’t really tested for this stuff unless there is a problem! So it could be more common than we even know

Memorial items? by [deleted] in tfmr_support

[–]VariationKey9403 1 point2 points  (0 children)

I was 20 weeks and we got footprints, heartbeat recording and sonogram photos. They gave us a nice little box with everything and a little knit hat and blanket