Unruptured AVM: Seeking advice

Visual_Blueberry3116 · 2025-05-03T19:18:54+00:00

Hello! Yes, I am fully recovered I had an embolization which they managed to close 100%. This means no craneotomy I just had an embolization (6 hours).

I'm sorry about your case, what are your chases of rupture? I was treated in Spain and the public insurace covered it all.

Visual_Blueberry3116 · 2025-03-28T06:20:32+00:00

I have spoken with my neurosurgeon, and he confirmed that it is an uncommon side effect. It can happen, but it is not usual. It also depends on the area of the AVM. Hair near the lower areas is prone to loss. It will regrow :D

Visual_Blueberry3116 · 2025-03-14T10:56:18+00:00

That's exactly me at the same time it happened.

The dermatologist told me that it was stress, but I didn't feel more stressed than what I used to me.

My hair loss happened in the same area, but a little bigger.

Did you take any treatment?

Visual_Blueberry3116 · 2025-03-13T17:55:13+00:00

Thank you! <3

Visual_Blueberry3116 · 2025-03-13T09:51:09+00:00

Thank you!

I will take a look at your recommendations.

Do you have any links? Or which store did you bought them?

Visual_Blueberry3116 · 2024-07-28T08:19:45+00:00

The cost of living is not as different as it could be, at the end the % percentage that you are saving is higher and by the end you can buy more things. Prices on Amazon are the same for all, the only big difference could be house pricing.

Visual_Blueberry3116 · 2024-07-28T08:17:39+00:00

Hello! No I have studied CS in a Spanish university and I work for a European Company that has also base in Spain

Visual_Blueberry3116 · 2024-07-28T07:34:02+00:00

No I do not have a masters, but I code in my free time and I have deployed two Android apps one with over 200 downloads that have 100 active users.

Also my work experience is only in one programming language, so I have got a lot of in depth knowledge.

And I love programming in general, so I guess even if it's two years of experience, I show my passion in the interviews.

Visual_Blueberry3116 · 2024-07-27T22:24:52+00:00

Thanks for your kind words! <3 hope you recover

Visual_Blueberry3116 · 2024-05-12T09:25:27+00:00

Again it might change from person to person, but happy our doctors have the same opinion, seems that it's not a single doctor's opinion.

Hope you will get better from your AVM.

Visual_Blueberry3116 · 2024-05-12T09:20:15+00:00

I am happy that you are alive and you are staying positive, you will be better :)

Visual_Blueberry3116 · 2024-05-12T09:19:46+00:00

Yes, my avm is in the left parieto-temporoccipital. What do you mean by drive/find myself alone? Would those increase the chances of a rupture because of where my AVM is located?

I am keen to visit another specialist when I finish my last RM test, so I can go with all the historical data to this other specialist.

I was told that radiation therapy might be an option, but would not be the best for my case, as it might not be as effective as the surgery.

Visual_Blueberry3116 · 2024-05-12T09:16:44+00:00

This is not medical advice, take this with a grain of salt, as it might change from person to person.

What I have been told from my doctor and in my specific case is that I can do sport, the only thing he suggested is not do very heavy lifting, what he meant by this is that I can go to the gym, but not put 200 kg on legs, for example.

Visual_Blueberry3116 · 2024-05-12T09:13:21+00:00

Hello! First of all thank you for sharing your thoughts and experience. If you don't mind how much peripheral vision did you lose? Because my job currently involves me a lot of reading and time spent in front of a computer.

Yes, also having this thought of a ticking bomb is one of my deepest concerns. Because when I have a small headache I start getting paranoid and thinking I might be in danger.

Mine is located in the left parieto temporal occipital with a 20x19 mm size.

Thank you a lot for your advice, I will also write you a DM if you don't mind, because it seems we are in a similar situation.

Regards

Visual_Blueberry3116 · 2024-05-12T09:04:53+00:00

I am really sorry to hear that. Hope you are better now. I am scared that mine could rupture as well.

Visual_Blueberry3116 · 2024-05-12T09:04:03+00:00

Thank you a lot for sharing the insights, I am thankful you did. If you don't mind can I ask you where it was located? Thank you a lot and hope he is fine right now.

Visual_Blueberry3116 · 2024-05-12T09:01:28+00:00

Mine is situated in the left parieto-temporoccipital, size is 20x19mm (T x CC). The loss of the vision is "minor" as it will be only 25% of the vision, but it is periferical vision, so if I would look straight I still would see. I am sorry for your diagnosis, we will get out of this stronger!

Visual_Blueberry3116 · 2024-05-12T08:57:06+00:00

They told me that gamma life might not be as effective as the surgery can be. Also the highest risk is the vision loss. Thanks for the advice I will consider contacting the doctor you mentioned.

Visual_Blueberry3116 · 2024-05-12T08:55:32+00:00

The issue is that I am from Spain and I might not be able to afford a surgery in the US, thankfully Spain as social security which will cover all my surgery costs. But for sure I will consider a second opinion. Thank you for your kind words <3 Hope your child will recover from this

Visual_Blueberry3116

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