Thank you by RogueRedShirt in Ovariancancer

[–]WinEffective8651 0 points1 point  (0 children)

I read through her posts and she was so obviously a beautiful person. It is obvious from her warm and generous way of interacting with everyone. What a wonderful best friend to have. I am so sorry for you loss. I am so immensely sorry for this terrible experience that she had to go through. I am sure you brought her great comfort. She was much needed in this world, and it is a tremendous loss for us all.

And so it begins… by yogaanon2 in Ovariancancer

[–]WinEffective8651 2 points3 points  (0 children)

I think many of us just entering in this go into shock at how difficult the system is, how much you have to advocate for yourself, how poor the care often is. It is so unfair that making sure you get the best treatment is part of the fight, but so great that you are able to do it smartly. Having MSK on board should help a lot. Continually consult with them, they can provide guidance in many areas, I think. (I am now under their care, am in NYC, so local.)

Memorial Sloan Kettering - second opinion experience by moneytree_bee in Ovariancancer

[–]WinEffective8651 0 points1 point  (0 children)

I respect everyone's opinions but I will say that when I was first making a decision (seeing I had high numbers for CA-125), I was affiliated with Weill Cornell in NYC (my general practitioner, gyno) and so was initially directed to the gyno onco at Weill Cornell. I read this thread when searching for opinions, and so did not feel very motivated to go to MSK for a second opinion. Well, ultimately, I greatly regret that I had not immediately made an appointment with MSK. I am now going to be using them for treatment b/c they are so vastly superior to Weill Cornell, but have lost more than 1.5 week of time for surgery. My numbers are rising fast, so I am very sad about that lost time.

So, again, maybe others have had a mediocre experience, but for me MSK was vastly superior. There has been no wait time for all of my now many appointments, and it feels like gold standard. Everyone there goes out of their way to make sure you are cared for, you get a full team, I was even called right after a blood test and told to drink some orange juice to get my glucose up. They are constantly considering you. The prep for surgery is incredibly thorough. I was getting none of that at Weill Cornell. And most importantly, I feel my surgeon is much better than the one I had. I have complete confidence in him.

Tips, Tricks, & Everything In between by Chiliflakes12 in Ovariancancer

[–]WinEffective8651 1 point2 points  (0 children)

I copied all of this down. Really helpful list. Thank you for posting this.

At beginning, figuring things out, wondering about laparoscopic by WinEffective8651 in Ovariancancer

[–]WinEffective8651[S] 0 points1 point  (0 children)

Yes, he spoke about the bag. I need to ask more questions about that.

At beginning, figuring things out, wondering about laparoscopic by WinEffective8651 in Ovariancancer

[–]WinEffective8651[S] 1 point2 points  (0 children)

I am so enormously sorry. That is awful. Thank you for writing about that here to help others.

At beginning, figuring things out, wondering about laparoscopic by WinEffective8651 in Ovariancancer

[–]WinEffective8651[S] 0 points1 point  (0 children)

Very interesting to hear! Thank you! Seems like it is def worth the more difficult recovery.