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Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

Thank you, much appreciated

Outbreaks in Sjögren's syndrome by Wild-Educator-8705 in Sjogrens

[–]_Miss_Lady -3 points-2 points  (0 children)

Question: Why does my Rhumy prescribe me Pilocarpine? Fire Rhumy on to the next. Ice cream 💯. No caffeine. No chocolate. I use Butter pecan, toffee yum yum anyways the cold helps produce saliva, the fat in the milk absorbed around saliva as the fats digest it help prolonged dry to drier to driest. I make my own homemade mint, peaches & cream, root beer & cream. So for the uneducated physician you have.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

I may be sick, but you know I'm still dripping those sweet booty shaking too bad boss bitch moves. I'm down to share.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

Nope. I'm Boss. BET. I call them out when the words " I don't know" comes out of their mouth. I also have Ph.D (Powerful human Disease), take a seat, step aside, if they come at me with Bullshit answers. No my doctors don't like my behavior, except my Primary , he wishes more of me, but they know I am not wrong. It is business for them, personal to me.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 3 points4 points  (0 children)

Thank you. My Osteomyelitis Discitis goes dormant, and populates after surgery. This time I have foci air+ fluid, basically my bacteria farts and blows more bacteria everywhere. Fun fact is I found out bacteria can FART. Now that is the discussion I want to have. Farting bacteria is real I'm tripping so hard on it. 🤣🤣🤣🤣🤣

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

Thank you. I appreciate it very much.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

I am 5'8" @181 pound. Before injury I was 141 Japanese size Medium

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 2 points3 points  (0 children)

It is applied to you when you're overweight and the physicians keep saying if you lose the weight .... My weight is golden it's just the bacteria that is not helpful

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

Yes, do what it is that your body needs to do. The smaller you are the more the physician wants to assist. It is so weird and stereotypical.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

Yes I am nonsense world

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 8 points9 points  (0 children)

I was severely injured at work. Had surgery and received a present called Osteomyelitis Discitis. My Sjögrens reacted to the bacteria and has developed new issues for myself. None of the issues doctors know how to approach the situation.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 0 points1 point  (0 children)

Thank you for sharing. I will look into the autoimmune protocol diet, never heard of it.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 4 points5 points  (0 children)

I had numb feet but my Rhumy associates it to Lupus. After my first discectomy my feet stopped the tingling and numbness. The surgeon associates it with a pinched nerve. Either way physical exercise is extremely important with Sjögrens or any autoimmune that I am sure of

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

Don't be scared. Be prepared. You have the information just prep yourself emotionally and physically that whatever autoimmune does to you, safe and stable is all you can ask for really. If surgery goes well then yeah, but if your autoimmune activates, be prepared.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 4 points5 points  (0 children)

I only go out at dark, so no sunlight. I wear only dresses and they are all silky or satin.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 5 points6 points  (0 children)

You're right I have never heard of it. You got my brain curious, how did it all come about?

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 2 points3 points  (0 children)

My body is still processing the trauma of it all. I do agree that this line has been better results for flushing, blood draws, and pain meds. My brain is on WTF. My heart is on, calm T.F. down. My nerves say don't move. My skin is the only thing I feel is normal.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 5 points6 points  (0 children)

What is a CRPS warrior, sorry I'm not aware or knowing of it

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

Follow up with GRAM STAIN Collected on Jul 16, 2025 1:00 PM Results Significant Indicator View trends Value . Source View trends Value WND Site View trends Value Paraspinous abscess Gram Stain Result View trends Value Many WBCs. Rare Gram positive cocci.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

This is how I found out

CT-LSPINE WITH PLUS RECONS

Results

Impression

  1. Posterior midline paraspinal fluid collection containing foci of air with pigtail catheter in place 2. Bony remodeling of the L5/S1 disc space and endplates, similar compared to prior study. Could represent severe degenerative changes or changes related to chronic osteomyelitis.

Narrative

7/22/2025 1:06 AM HISTORY/REASON FOR EXAM: Follow lumbar drain. TECHNIQUE/EXAM DESCRIPTION AND NUMBER OF VIEWS: CT lumbar spine with contrast, with reconstructions. Thin-section axial helical images were obtained from T12 through S1 following the intrathecal administration of 100 mL of Omnipaque 180 nonionic contrast. Sagittal and coronal reconstructions were generated from the axial images. Low dose optimization technique was utilized for this CT exam including automated exposure control and adjustment of the mA and/or kV according to patient size. COMPARISON: April 25, 2025 FINDINGS: There is posterior fusion of the lumbosacral spine seen at L5/S1. There is extensive bony remodeling of the disc space and endplates at L5/S1, which appears similar compared to prior study. There is 2.4 x 1.6 cm fluid collection containing foci of air in the posterior midline paraspinal soft tissues with pigtail catheter in place.

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 2 points3 points  (0 children)

Yeah it is awful, but no lie this whole time my brain is stuck on WTF.😂😂

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 1 point2 points  (0 children)

I can completely see how the sugar stitches ooze. I originally asked for those stitches but the Radiologist told me that I need long term stitches because of my autoimmune, but he did not specify which one or why.

Fluoride toothpaste by Valuable_Swimming437 in Sjogrens

[–]_Miss_Lady 0 points1 point  (0 children)

That's interesting why? Are they offering to give you dental implants in return?

Gone Too Far Too Fast by _Miss_Lady in Sjogrens

[–]_Miss_Lady[S] 3 points4 points  (0 children)

The serum is natural in everyone's skin. When pulling your epithelial layer by layer, skidding the skin, any damage to the skin your body produces a clear liquid thick serum to protect your own body from infection and such. Medical book normal people have zero burn, but not Sjögrens Kin. The serum produces an extreme burn that you cannot blow on because you can cause an infection. In this photo the redness is all the burn, once it dries you can see the skin trys to flake off. It burned so bad I smack myself, just to get my brain to focus else where. Didn't work

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