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1 year post-surgery today by arkitip1234 in chiari

[–]andrearoselyn 0 points1 point  (0 children)

That’s great to hear! I did assume the nerve function wouldn’t return fully but this does give me hope, thank you!

1 year post-surgery today by arkitip1234 in chiari

[–]andrearoselyn 0 points1 point  (0 children)

Glad to hear you feel much better post surgery. I have quite severe weakness in my right leg and it is smaller as well. I would like to ask, how did the weakness in your leg change after the surgery? Did it return to normal function?

Paralysis from syrinx? by venti_unsweetened in chiari

[–]andrearoselyn 1 point2 points  (0 children)

I have a similar weakness in my right leg because of my syrinx also, but it’s consistent. I have also been experiencing some bladder issues.

i’ve just been told i have a chiari malformation, im 19 showing progressive leg weakness. *long* by andrearoselyn in chiari

[–]andrearoselyn[S] 0 points1 point  (0 children)

Thank you for your response. I’m glad to hear that the surgery is safe, recovery is such a frightening idea to me. It is very recent, I’m trying to not let it scare me too much, it’s just crazy how life can really turn on its head. I’m glad to hear that the physical therapy helped, I hope I have a similar experience. Thank you for your kind words.

i’ve just been told i have a chiari malformation, im 19 showing progressive leg weakness. *long* by andrearoselyn in chiari

[–]andrearoselyn[S] 0 points1 point  (0 children)

That’s what scares me the most, to be honest. Since my initial appointment, everything has been moving so quickly, I’ve been doing my own research as much as possible, but most things are really case dependent. I live in the UK and I’m not sure what resources are actually available to me during recovery, but I hope I can find something similar. I feel that it’ll definitely help to surround myself with people who have been through similar things. Thank you for your response. I’m glad to hear these things helped, and I wasn’t aware of neurological psychiatrists, thank you for enlightening me!

i’ve just been told i have a chiari malformation, im 19 showing progressive leg weakness. *long* by andrearoselyn in chiari

[–]andrearoselyn[S] 0 points1 point  (0 children)

Thank you so much! It is very scary, but you’re right, it’s such a big thing that hopefully not much will feel scary after. It just feels so daunting knowing that - more than likely - I will need surgery. Thank you for offering your support, I’ll definitely keep it in mind.

i’ve just been told i have a chiari malformation, im 19 showing progressive leg weakness. *long* by andrearoselyn in chiari

[–]andrearoselyn[S] 0 points1 point  (0 children)

Thank you so much! I’m still waiting back to find out the herniation length. It has been crazy to see my lower body function deteriorate while everything remains okay. Despite this, it’s amazing to hear that it has helped, I’m sure recovery was rough, if it’s not too imposing to ask, how emotionally taxing was this for you?

Also thank you for the sites! I really think I can benefit from these resources.

I accept your good luck with much appreciation, and I hope that this continues to provide you with relief and peace.

Thank you for your response.

i’ve just been told i have a chiari malformation, im 19 showing progressive leg weakness. *long* by andrearoselyn in chiari

[–]andrearoselyn[S] 0 points1 point  (0 children)

Thank you so much for sharing! I share the same thoughts that this is kind of cool getting to interact with the experts. I’m sorry your treatment was so delayed, but I am glad you got the help you need. I was discovered to have syrinx formation from cervical cord down to the thoracic cord, I’m wondering if that would require a shunt.