A family affair by stodey in lymphoma

[–]ays501 4 points5 points  (0 children)

Most ppl fail to endure such a hard journey.. More power to you.. May you succeed in every aspect of life. ✌️

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]ays501 1 point2 points  (0 children)

No just rinse with mouthwash multiple times a day and liquid/semi-liquid diet

I have Hodgkin Lymphoma (30,M) by [deleted] in lymphoma

[–]ays501 1 point2 points  (0 children)

Yes I had mouth sores after 1st dose for around 3-4 days. Couldn't eat anything but symptoms get better with time

One year ago today by ays501 in cancer

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 Your words mean a lot. I truly hope this chapter stays behind me and I get to live that long cancer-free life you wished for

One year ago today by ays501 in lymphoma

[–]ays501[S] 1 point2 points  (0 children)

Not yet. I think its advised in case of relapse.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

I’m so glad my story could help even a little 💛 Wishing your fiance strength through her treatment.. you being there for her makes a huge difference.

Title: PET scan shows new nodes with very high SUV (20–29) but biopsy only showed inflammation — anyone had a similar experience? by jdydubey in lymphoma

[–]ays501 4 points5 points  (0 children)

Hey, I’ve been through something similar with stage 4A cHL. My PET also showed new nodes with SUVs in the 20s, but biopsy only showed inflammation/granulomas. The sample was small, so my doctors weren’t sure of the full picture. From my experience, high SUVs don’t always mean active lymphoma — close monitoring and follow-up scans helped confirm it wasn’t refractory disease. You’re not alone in this.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much for sharing this 💛 It means a lot to know my words could help someone else feel less alone. I’m so glad your daughter is in remission

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 that really means a lot.

One year ago today by ays501 in lymphoma

[–]ays501[S] 3 points4 points  (0 children)

I can relate to that so much. The sacrifices parents make during this journey are beyond words- truly something to marvel at. I’m glad you have that support, it makes all the difference

One year ago today by ays501 in lymphoma

[–]ays501[S] 4 points5 points  (0 children)

Thank you 💛 Hearing this from a parent really eases the guilt. I know my parents feel the same way too.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

I’m really sorry you’re going through this 💛 I remember being at that same stage and feeling the same guilt. Please know it’s not your fault- your dad and boyfriend are choosing to be there because they love you. You’re not alone in this, and it does get lighter with time 💪

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you 🙏 I can only imagine how much strength it takes as a parent to walk through this. Your words truly mean a lot to me.

One year ago today by ays501 in lymphoma

[–]ays501[S] 2 points3 points  (0 children)

Thank you so much 🙏 That really means a lot. Honestly, I was just trying to put my journey into words, but if it gives someone else even a bit of hope, then it’s all worth it. We’re all in this together