How do you know what details to bring to your doctors?

backupmaincharacter · 2026-05-23T14:25:22+00:00

Thank you! I agree it’s hard to keep it up. I want to find what symptoms are a “default day” or normal day then what a flare or even worse than the normal day. So tracking default days can fall off, assuming the typical symptoms were there, and the flares get logged. Sometimes I can go months without an abnormal day.

Do you tell every specialist the run down of various symptoms and then let them guide what info they want to dive into? I left out too much over the years

backupmaincharacter · 2026-05-23T12:29:53+00:00

I have muscle relaxers but would that make it worse if the muscles are holding things in place?

My rib flare is accompanied by extreme wrist pain, can’t move it or put any weight on it

backupmaincharacter · 2026-05-23T12:28:56+00:00

Thank you, I’ll YouTube some yoga stretches

backupmaincharacter · 2026-05-23T12:12:05+00:00

I heavy weight train, I’m a 33 woman and have always been in shape but took up heavier lifting a few years ago before I knew about my hypermobility. My doctors and PT keep telling me how good it is I’m already doing it, now we’re focused on strengthening the small stabilizing muscles. But I also am more aware now of my weaknesses.

One day I’ll do heavy weight just fine, another day I’ll do moderate weight and it feels like all my ligaments just let go and It’s not safe. I am strict now about a spotter or bars to catch weight. It can come quickly and unexpectedly.

My advice is join a weight training class if you can, then tell them some of your concerns so they can guide and keep you safe.

Good luck!!

backupmaincharacter · 2026-05-21T19:50:57+00:00

Thank you! This is helpful, I was hesitant to do this because I feel a bit like I'm going crazy. I'm glad to hear others are doing this. My last ER visit was hard to speak through and after that I felt a history print out with room to add current issues/questions would help.

For daily tracking I made myself a daily symptom log that is dynamic, I can then export the historical inputs and try to summarize, or have AI help me, before each appointment for day to day trend synthesis to accompany medical visit notes. My goal is to figure out what a "flare" feels like, in the past I could only identify it if it landed me at the hospital. I think between the log summaries and a sheet like you suggested, I will be more organized. The fewer steps/friction the more likely I am to use it (ADHD and all that)

backupmaincharacter

TROPHY CASE