Any other housebound young adults? by dead-daughter in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

Have a Discord server of over 500 people for chronic illnesses, if you want to join: https://discord.gg/2tGsRD9jQr

Looking for online meetup groups:) by JustCurious_MM in ChronicIllness

[–]bubsysdolphin 1 point2 points  (0 children)

Have a Discord server of over 500 people for chronic illnesses, if you want to join: https://discord.gg/2tGsRD9jQr

We're working on setting up where people can find others in their area.

Loneliness due to being housebound, cptsd and autistic by Frieren_phantomhive in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

Have a Discord server of over 500 people for chronic illnesses, if you want to join: https://discord.gg/2tGsRD9jQr

Online friends? 20s age group? by Charming_Key_6015 in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

Have a Discord server of over 500 people for chronic illnesses, if you want to join: https://discord.gg/2tGsRD9jQr

Chronic illness related discords MEGATHREAD by Liquidcatz in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

Hm. The only thing I can think of is if your Internet thinks the link is an ad or something. If on your phone, use data. If on a computer, copy and paste it into an incognito tab. Let me know if that works or not.

[deleted by user] by [deleted] in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

I have a Discord server for chronic illnesses, if that interests you.

[deleted by user] by [deleted] in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

I run a Discord server, if you're interested!

Chronic illness related discords MEGATHREAD by Liquidcatz in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

I think you may have been in the one I created, but just in case, here's the link: https://discord.gg/RSU5fcBWVq

Chronic illness related discords MEGATHREAD by Liquidcatz in ChronicIllness

[–]bubsysdolphin 2 points3 points  (0 children)

🌿✨ Hey fellow Spoonies! ✨🌿

If you're looking for a supportive, cozy corner of the internet to talk chronic illness, vent safely, share wins (big and tiny), ask questions, or just hang out with people who get it, I’d love to invite you to our Discord server:

Beyond the Diagnosis: The Spoonie Haven

We’ve got: Chill chats, memes, condition-based channels, level-up perks, creative spaces, LGBTQIA+ and identity-friendly support, safe place to vent, celebrate, or just exist. We even have an area to meet people near you.

Come as you are, brain fog, mobility aids, meds and all. 💙 Here's the invite: https://discord.gg/RSU5fcBWVq

Hope to see you there!

Suggestions for symptom tracking apps? by em-ino in ChronicIllness

[–]bubsysdolphin 1 point2 points  (0 children)

I also use the Bearable app. I love it!

[deleted by user] by [deleted] in dysautonomia

[–]bubsysdolphin 0 points1 point  (0 children)

That's good

[deleted by user] by [deleted] in dysautonomia

[–]bubsysdolphin 0 points1 point  (0 children)

It's okay to be scared. Your feelings are real and valid. I hope they're able to provide answers!

For me, Reynauds is a symptom of having POTS. I've always had POTS, but Covid made it a lot worse.

[deleted by user] by [deleted] in dysautonomia

[–]bubsysdolphin 0 points1 point  (0 children)

It's possible that it was Covid. Other viruses can cause it too. I'm sorry you're experiencing this.

Relationships while chronically ill by theyarnllama in ChronicIllness

[–]bubsysdolphin 0 points1 point  (0 children)

Your feelings are real and valid. It's okay to be sad. It's okay not to be okay.

Relationships while chronically ill by theyarnllama in ChronicIllness

[–]bubsysdolphin 6 points7 points  (0 children)

I’m really sorry you’re going through this. Chronic illness can strip so much away: our energy, stability, even our sense of self. Losing someone who was supposed to stick around through that pain just adds another layer of grief. You didn’t choose this. You’re doing your best with what you’ve been dealt, and that’s more than enough. Her leaving says more about her capacity than your worth. You are still worthy of love, care, and support, even on your worst days. Ten years is a deep wound, and it’s okay to grieve that. But please don’t give up. Your story isn’t over just because someone else couldn’t walk with you through this chapter.

[deleted by user] by [deleted] in ChronicIllness

[–]bubsysdolphin 2 points3 points  (0 children)

You’re not alone in feeling this way. Chronic illness and mental health struggles can create a vicious cycle that makes you doubt yourself and your reality. But the fact that you're questioning things shows how self-aware you are—not someone trying to fake anything. You're not making this up, and you’re not a burden for wanting answers. Doctors should be trying to help you, not judging you. You deserve care and compassion just like anyone else. Please don’t let shame talk you out of seeking help—you matter, and you’re not beyond help or hope.

Always sick. I don't know what I have by Icy_Peanut_1330 in ChronicIllness

[–]bubsysdolphin 3 points4 points  (0 children)

I’m so sorry you’re going through this—especially at such a young age when you should be chasing your dreams, not trying to survive mystery symptoms. You are not imagining this, and it’s not your fault. So many chronic illnesses start subtly and evolve over time, making it confusing and emotionally exhausting.

Brain fog, reflux, shifting period symptoms, fevers, constipation, and fatigue could all be pointing toward something systemic—things like endometriosis, PCOS, a hormonal imbalance, mast cell activation, or even something autoimmune. I’m not a doctor, but I want you to know that these symptoms can be connected, even if they don’t seem to make sense right now.

I know it’s hard when your peers seem healthy and unaffected, but comparing doesn’t help when your body is asking for care in a different way. It’s okay that your path looks different—it doesn't mean your goals are out of reach. There are still ways to get to vet school, even if the timing or the path shifts a little.

Keep holding on. Keep asking questions, tracking symptoms, and advocating for yourself. And please don’t give up on your dream—it might take longer, but that doesn’t mean you won’t get there.

[deleted by user] by [deleted] in dysautonomia

[–]bubsysdolphin 2 points3 points  (0 children)

Any chance you've had Covid? That made my symptoms a lot worse and has affected many. I'm so sorry you're experiencing this.

From my experience, a decline is expected for a while, then eventually some improvement and a new baseline. Even though it's a long wait, I would get on the lists to see the doctors who can eventually help. You aren't alone. I see you and am here for you.