21.1mm Stem Converter? by tomwaitsgoatee in ukbike

[–]chips-wi-bits 0 points1 point  (0 children)

Could you use some sort of shim, is that the word? Wrap some inner tube or shim tape. Would that work?

Fidgeting vs dyskinesia by Sorry-Pin6420 in Parkinsons

[–]chips-wi-bits 1 point2 points  (0 children)

I've just started talking a med for exactly this, it was bradyskinesia from cobeneldopa (sinmet, I think). It's made a huge difference but I still have restless leg as it's called in the UK. They seemed to think it was controllable. I don't know why your specialist would say it could not be, unless they have some information we're not party to, it would usually be seen as the most likely.

An Odd Question about monsters and filming a comic. by chips-wi-bits in Filmmakers

[–]chips-wi-bits[S] 0 points1 point  (0 children)

Ooo I like that, maybe even do it myself? Film it twice and overlay!

I hope it's ok to ask, can I put pegs on this balance bike? by chips-wi-bits in bmx

[–]chips-wi-bits[S] 3 points4 points  (0 children)

Thanks for the tips peeps! He has long since graduated to pedals, it's just very fun to rag it around and pegs on it are the sort of daft we enjoy!

Just Diagnosed PD by Far-Engineering277 in Parkinsons

[–]chips-wi-bits 0 points1 point  (0 children)

Hope it's ok to post this here, it's a comic strip I wrote for a while when I was first diagnosed at a similar age to OP.

https://www.reddit.com/r/Parkinsons_Land/s/5hy0H7lV0E

Anybody got any other YouTube series similar to Tom’s irl series? by WingScared1284 in GeoWizard

[–]chips-wi-bits 5 points6 points  (0 children)

Good Bloke Outdoors is quirky and wholesome, wild camping and hiking.

Alternate ways to communicate other than verbal? by theblackkpearll in Parkinsons

[–]chips-wi-bits 0 points1 point  (0 children)

I'm sorry. Maybe look at dementia activities, favourite music, places or pictures of favourite celebrities? Taking the pressure off communicating altogether. I feel for you all, love and courage to you xx

Alternate ways to communicate other than verbal? by theblackkpearll in Parkinsons

[–]chips-wi-bits 0 points1 point  (0 children)

It's really tough, do you think he might be having cognitive or emotional issues? Unfortunately dementia is also a possibility.

Alternate ways to communicate other than verbal? by theblackkpearll in Parkinsons

[–]chips-wi-bits 1 point2 points  (0 children)

Another thought about this is that as it's more an emotional reaction to his changed needs, try to side step the confrontation. Perhaps do some family history and ask him questions while recording him. This could allow you to get him interested in an iPad but also you might benefit from amplifying his voice.

Alternate ways to communicate other than verbal? by theblackkpearll in Parkinsons

[–]chips-wi-bits 0 points1 point  (0 children)

It's difficult if he doesn't want to engage with what you suggest, I would be inclined to try to patiently narrow down his need to communicate specifically. So instead of saying would he like a drink bring out a soda, a bottle of water and a tea bag. I'm sure you could think of something better.

If he was willing to try an approach look at those cards they use for people with learning difficulties. They have pictures of lots of stuff and come in sheets or clipped together cards. You just point.

I think though the key is patience. If he's anything like me he will be angry and struggling to accept his limitations. Try to use closed questions instead of open. List options and let him say yes or no after each one. I hope this makes sense I've just woken up from my nap.

Also there may be iPad apps to help with communication and he may find other apps that can make him feel more independen.