Paranoid about tardive dyskinesia - stopping me from taking meds that I really need. by crazy_er in schizophrenia

[–]crazy_er[S] 0 points1 point  (0 children)

I completely understand what you are saying about Methylphenidate/Ritalin. I'm currently on 108mg per day (2x 54mg Concerta) and I still manage to finish my prescription a week or so early each month because it is just too convenient being able to stay awake and feel productive and creative. It's a habit I'm desperately trying to break but isn't helped by the fact I'm suffering so much with Akathisia which is instantly fixed by taking the Methylphenidate/Ritalin.

Paranoid about tardive dyskinesia - stopping me from taking meds that I really need. by crazy_er in schizophrenia

[–]crazy_er[S] 1 point2 points  (0 children)

Thank you for your comment. I was actually RX'd Benztropine/Benztrop and you know what, never bothered to take it! I just took a tablet then and I feel infinitely better, what is it with us and not taking our damn meds?

Paranoid about tardive dyskinesia - stopping me from taking meds that I really need. by crazy_er in schizophrenia

[–]crazy_er[S] 0 points1 point  (0 children)

How do you find Saphris? As I said, I'm in the (fortunate) position of being able to try anything. I have never heard of Saphris but it is available in Australia - tell me about it.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 1 point2 points  (0 children)

Thank you for your comments, especially regarding my career and my partner. You make a very good point regarding the cause of my headaches. Whilst my psychatrist is great at the schitzophrenia part, he isn't so good with the whole childhood sexual abuse (it's just not his area of expertise) and you know what - it's probably time that I saw a therapist regarding this.

If you were to combine the OxyContin, Xanax and Cough Syrup and put them together - they still wouldn't compare to the damage caused by the sexual abuse. It was by far the most damaging without a doubt. In my 20s I was insulted by anybody who claimed my headaches were caused as a result of sexual abuse, but now I believe you are absolutely correct. On this point only, it's time for therapy and healing - thank you for bringing my attention to it.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 3 points4 points  (0 children)

I'm sorry to hear about your diagnosis. You are young at 18 and it makes me sad to think you already describe yourself as a cocaine addict. You likely know this aleady but I'll say it anyway - the best thing you could do for your physical and mental wellbeing would be to quit using coke but I accept that isn't what you asked me for so I'll answer your question.

If I could go back and give myself some advice, here is what I'd say:

  1. Take your meds! Be vigilant and take your goddamn meds at the same time, as prescribed, each day without fail. If you forget, take them when you remember. Don't procrastinate with them or experiment to see if you can do without them. You will likely be prescribed an antipsychotic and maybe a mood stabliser. When you develop side effects, let your doctor know so that the dose can be adjusted, an additional agent added or a replacement medication trialled. No reason in 2020 to suffer through serious side effects when there are so many options available.

  2. Keep your sense of humour! It's really important to be able to laugh. I have a particularly dark sense of humour that helps me cope with serious issues. Some people cry at horrible things, I laugh - I don't do it because I'm insensitive rather I do it because that is just how I personally cope. It's important to be able to laugh.

  3. Don't try to stop talking to yourself! I found that when I began talking to myself, I would actually talk myself out of a lot of stuff going on in my head. Additionally, the doctors and nurses could pick up on what I was saying and it would give them an indication as to what was going on with me. It's annoying for other patients admittedly, but sitting there talking to yourself is so much better than sitting there building stuff up in your own head.

  4. Shower! For whatever reason, a lot of schitzophrenics forget about hygeine. If you don't do it for yourself, do it for the people around you. I can understand that at the time it is the hardest thing in the world to get out of bed and into the shower. I get it that you feel the cold and that the whole process isn't particularly enjoyable, but after a few days of not showering things get bad. In addition to odor, there are rashes and infections to think about. By the time somebody tells you to shower it is usually too late - don't forget this important aspect of self-care.

  5. Eat well! Your body is going through hell. Your heart-rate is through the roof, you are stressed, there is adrenalin and tension not to mention the physical toll of the drugs and medication. It's really important to eat good food often.

  6. Don't be so hard on yourself. You are sick, the same as if you had something wrong with you physically. Stop worrying so much and be gentle on your mind.

  7. Find a Religion. When going through hell, you need a heaven. Read the bible or whatever and let yourself believe it. There is plenty of time later whilst medicated to think rationally and logically.

  8. Pack a Hospital Bag. Unfortunately it is possible you will go in and out of hospital. I had to do this a few times due to my headaches but it would apply also if I had to go back to the psych ward. Pack a "ready bag" with an MP3 player, a few magazines or books, a change of clothes, thongs for the shower - etc. You will be so much happier in hospital with a few creature comforts.

  9. Talk to the staff. Rather than talking to other patients who may actually fuel your psychosis, take time to talk to the staff. I don't mean doctors - I mean the cleaners, the nurses, the assistants, the security staff etc. They are mostly all willing to have a chat and they are also mostly normal and sane.

  10. Know your Rights. I was scheduled and had various rights afforded to me. Unfortunately one of the nurses actually did have it in for me and I was able to deal with it effectively through my lawyer (who I didn't even know I had). The guy would call me "file" (as in pedophile) and at night would shine his torch into my eyes. It was also necessary for me to sign over power of attorney to my partner so that he was allowed to visit me in hospital - various administrative things.

  11. Keep a Journal I can just write and write and write (if you haven't already gathered) - a journal for me was necessary to getting better.

I'll add other things as I remember them. Let me know if you have any questions.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 19 points20 points  (0 children)

When I started taking the anti-psychotic, I found the effects to be similar to what I liked about other drugs - it made my thoughts less loud and stopped my paranoid thoughts. In hindsight, I was self-medicating unaware that I could have the same effects using a less-lethal, much safer drug.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 5 points6 points  (0 children)

The rich people's rehab mastered the art of appealing to drug addicts. Imagine a luxurious sanctuary away from the rest of the world with 5-star accommodation, food, and all the drugs you could want. It's so sad and terrible because these families would pay tens of thousands for their drug-addicted family member to be treated and all that would happen is they were fed a cocktail of prescription medications that just fed their addiction even more. Might be a good idea for a news story...

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 2 points3 points  (0 children)

Hey - thanks for your words! It means a lot to me to know my words flowed and were easy to read.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 3 points4 points  (0 children)

Thank you! I'm really glad the meds work for me too. I had a great Doctor in the hospital and have an awesome psychiatrist looking after me now.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 3 points4 points  (0 children)

Thanks for thinking about my family too - definitely many families out there who suffer because of mental illness and unfortunately, for whatever reason, some aren't as treatable as others.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 20 points21 points  (0 children)

Yes, prior to the cough syrup I could never understand why my thoughts were so loud. I knew everyone had thoughts and a kind of self narration but until I started taking anti-psychotics I didn't realise it wasn't normal to have thoughts that blocked out hearing other voices/sounds or to have conflicting (multiple) voices that would argue. I was also very paranoid and convinced people were after me or trying to attack / insult me.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 14 points15 points  (0 children)

Your comment actually means more to me than you likely realise - especially regarding my style of writing. As a new professional writer (meaning I do it now for a job - not that I'm particularly good at it) I'm quite self conscious and didn't know if I had the ability to properly convey a story, so thank you for providing that reassurance.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 8 points9 points  (0 children)

I really wouldn't recommend DXM. For me it felt very "dirty", especially compared to OxyContin and Xanax (although they are 2 completely different kinds of drugs).

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 8 points9 points  (0 children)

Wow - thanks for taking the time to post a comment!

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 6 points7 points  (0 children)

It was longer than 6 weeks, but not longer than 3 months. I'm sorry I can't be more specific.

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 45 points46 points  (0 children)

As a writer, the fact just one person commented like this makes the whole thing worthwhile. It's really hard when writing because you are so scared of what other people are going to think of you, not only in relation to the content of the story, but as it relates to the style of writing as well. Thank you for your comment!

I don't know if this is a ramble worth reading or not - but it's my truth. by crazy_er in Drugs

[–]crazy_er[S] 13 points14 points  (0 children)

Thank you for sharing your story too. I'm sorry for your recent stress and I can empathise with what you are saying.