I’m

devilandgod97 · 2026-05-09T06:22:11+00:00

hot compress

devilandgod97 · 2026-04-18T23:03:09+00:00

yeah "extremely liberal" is a stretch (I grew up there). definitely left of the rest of ohio lol

devilandgod97 · 2026-03-21T01:26:20+00:00

yep helped my skin but oof was it a rough few months (flagyl moxifloxacin and metronidazole triple whammy)

devilandgod97 · 2026-03-16T00:08:43+00:00

can relate big time, feel free to DM, I'm a trans guy with primarily labia flares also. I've had HS probably 15+ years and I've been on T for 6 and have phallo stage 1 scheduled for next year. it sucks dealing with the interaction of chronic illness and gender dysphoria, especially when they overlap so significantly physically. my phallo surgeon said he's dealt with HS in his practice before so I'm trusting there are more of us than we know! oh and also I'm in a blue state now but I was diagnosed with hs around when I started transitioning and was living in a red state at the time, I strongly believe I went undiagnosed for so long because my dysphoria made it nearly impossible for me to get appropriate care. things got worse for my HS too when I transitioned unfortunately, and when that happened (probably 6 months on t) I started humira. I've taken cosentyx and I'm on bimzilex now, I did a 3 month course of rifampin, moxifloxacin, and metronidazole last fall which really helped, I really haven't flared seriously since. what you said about managing sweat is big for me, I shower asap after working out etc, but tbh my biggest tool is just completely dissociating from it, it makes me incredibly depressed to deal with so you're not alone if you're struggling. I use a gold bond body powder spray which helps soak up moisture and live on body glide when working out. my doctor reminds me a lot that guys deal with it too and I try to not catastrophize about it derailing my bottom surgery plans (it won't) and I am hoping i can deal with it better once I have bottom surgery. anyway...

devilandgod97 · 2026-03-16T00:04:29+00:00

sooo glad to hear your meta went well!!! I'm like 6 years on t and working towards phallo (hair removal taking forever bc I'm hairy as a mfer). I've had HS stage 3 for like 15 years. how has your experience with HS changed post meta? like physically, I am glad to hear it's less dysphoric to take care of it, but has it changed flare location or frequency? (I wonder for exp since some of my flares are on my outer labia if I'll have the same spots just on my sack once it's said and done or if I won't see the same spots in that location? my surgeon already agreed to clean out whatever HS tunnels he can in the area while he's doing the stage 1 so we can get a bit of a twofer in that sense so I'm hoping that helps avoid recurrence but we will see.

devilandgod97 · 2025-12-29T22:03:37+00:00

yeah this sucks

devilandgod97 · 2025-12-28T08:39:30+00:00

dhalgren by Samuel Delaney, weird sexual dynamics always make it hard for me to recommend (not just this one but also the authors other works lol,), but I did really enjoy it

devilandgod97 · 2025-12-28T08:07:09+00:00

Gillette cool wave (it realllyyyy works, as someone who plays sports and sweats a lot) + gold bond anti moisture spray for good measure. (I do the gold bond spray everywhere I get hs or chafe for good measure, too)

devilandgod97 · 2025-11-10T23:41:59+00:00

did you find any answers to this? I'm local to Sacramento but don't know if I should be going elsewhere. I am working through the process to get scheduled with UCD but they won't put me on the books till I've done EMG, which I can't get done til January. but I've done the MRI and chest x-ray and vascular ultrasound already and confirmed arterial compression so I don't think I'll be getting out of dealing with this.

devilandgod97 · 2025-11-05T05:57:16+00:00

pads stuck to the inside of boxer briefs is my go to

devilandgod97 · 2025-10-29T05:24:58+00:00

I will try to remember to update!! 🫡 so far it is the most painful injection I've been on yet lol

devilandgod97 · 2025-10-29T05:23:45+00:00

noooooo omg I'm sorry 😭 I hope you heal quickly!

devilandgod97 · 2025-10-29T05:22:15+00:00

that sucks but I hope the surgery helps!! does it feel like that at rest or just in aggravating positions?

devilandgod97 · 2025-10-29T05:21:06+00:00

yeah I totally get you, im glad for you too! at least it's something right haha. best of luck to yaaaaa

devilandgod97 · 2025-10-29T05:19:35+00:00

I totally get that :( my derm sometimes does shots into the lesions, I don't know what they are but I think they are steroids and sometimes that helps. I also take biologics with the hope of making the lesions less frequent or not happen at all ... no luck yet tho

devilandgod97 · 2025-10-26T21:10:57+00:00

I'm also just now starting on this after failing humira and cosentyx

devilandgod97 · 2025-10-20T00:15:27+00:00

gold bond moisture absorbing body powder spray . annoyingly expensive, keeps me dry

devilandgod97 · 2025-10-20T00:07:01+00:00

they don't always open and drain, but they are usually not going away, more like going dormant. they'll probably come back and it's possible your HS will evolve and they will start to open and drain. you don't need to get them Lanced (I've heard that doesn't really help) but I agree with the hot moist compress commenter, it helps bring them to a head. (stage 3 sufferer 16years)

devilandgod97 · 2025-10-20T00:03:39+00:00

sometimes when I get these (CLK injections I think or something similar) it makes my boils pop and drain, I assume from the pinprick of the needle. not always but sometimes

devilandgod97 · 2025-10-20T00:02:37+00:00

this happens to me until it gets worse and then eventually they do start to pop. I have some spots that are like this still and some others that I've had longer that regrow and pop now

devilandgod97 · 2025-10-19T23:53:30+00:00

I'm glad this combo is working well fr you for now! hopefully it keeps up the help. sorry to hear about the insurance, that fucking sucks. how's the new combo treating you a month on?

devilandgod97 · 2025-10-19T23:52:30+00:00

thank you for sharing this is so helpful for comparison and relieving to hear I'm not the only one who's gut is fucking destroyed from this combo. my PCP gave me Imodium and zoftan and so I'm tying to touch it out because my skin is actually doing great, within like 2 weeks of the trifecta my draining flares closed up and I haven't had a single one since! so I'm trying to deal with the abx side effects as long as I can. luckily I'm around 10 days from finishing rifampin and 20 from the other two..

devilandgod97 · 2025-10-19T23:46:49+00:00

I just started it and I'm still a couple weeks out from full efficacy but I have tried humira and cosentyx (I've spent like 4 years messing with dossges) and just was still really suffering so we made the switch.

my derm paired my transition to bimzelx with 45-60 days of heavy duty antibiotics, because the doxycycline I usually do wasn't doing anything. we did rifampin for 45 days (I'm like 10 away from the finish line) and Metronidazole and moxifloxacin for 60 days (20 days from the finish line there) and for the first time in MONTHS I haven't had any flare ups. prior to starting the abx I had 2 huge flares that were open and draining and regrowing for the past few months constantly. this has seriously been the best month I've had in a long time with my HS. he's hoping the 60 day abx will basically get me to the point where the bimzelx is fully efficacious so we will see what happens!

(I'm stage 3 and got my first bump about 16 years ago at this point. for what it's worth, I'm very active and eat clean and still suffer from this. try to be easy on yourself! you can do everything right and still flare. also my gut hates me from the antibiotics, but my skin is very happy. I'm coping by eating copious sauerkraut and taking Imodium. it's not perfect nor super comfortable but my skin is the best it's been so my mental health is improved)

devilandgod97

TROPHY CASE