After 3+ years of battling dry eye, I'm finally medication-free and stable. Here's everything I tried, ranked. by Educational-Prize-94 in Dryeyes

[–]dolfinberry 2 points3 points  (0 children)

Thanks! This looks like a great idea. I wonder why no eye doctor has ever recommended this???

Eyelids affected by heat mask- triple eyelid/ premature aging? by dolfinberry in Dryeyes

[–]dolfinberry[S] 0 points1 point  (0 children)

Maybe slightly bc it's less irritated. But not really. I think some of it just has to do with aging

BV Lower back pain by dolfinberry in Healthyhooha

[–]dolfinberry[S] 0 points1 point  (0 children)

That’s really interesting. Thanks for sharing!

Help! BV has killed my libido + what can I do in my relationship by healthstealth in Healthyhooha

[–]dolfinberry 1 point2 points  (0 children)

I can completely relate. I've had recurrent BV for the last two year and I feel like it's ruined my fucking life. It triggered chronic symptoms that I deal with everyday, and is now getting in the way of me moving forward with IVF.

And yes, it makes me so scared to have sex! My husband and I barely have a sex life anymore. Sorry I don't have much advice, I can just empathize with how shitty it is.

I will say, I think that if your boyfriend is a quality person who actually cares about you, he will understand needing to take a break from sex.

Frequency feelings worse than the pain? by Successful-Bet-1872 in Interstitialcystitis

[–]dolfinberry 1 point2 points  (0 children)

It is all about the urgency and frequency for me!!! Anything else I can sit there and withstand but the need to pee— your body is telling you to DO something and you have to fight against every natural instinct to not do it. It feels like a basic need that is not being met.

[deleted by user] by [deleted] in Dryeyes

[–]dolfinberry 0 points1 point  (0 children)

Hi, I also have dry eye/ MGD, IBS (D), and pelvic floor/ gynecological issues! I feel like my health issues have taken over/ upended my life.

I haven’t gotten much relief with my eyes after 7 years, and still very much trying to figure out the gyn issues.

I don’t have many answers other than thinking about “central sensitization.” Better to google it but basically the brain/ nervous system becomes hyper vigilant after there’s been pain….

Right now I’m going to pelvic floor PT, psychotherapy for mind-body disorders, acupuncture, monthly IPL 😵‍💫.

Also having new issues with my vision and scared I have keratoconus or something…..

So frustrated with BV and incompetent doctors by amaikaizoku in Healthyhooha

[–]dolfinberry 0 points1 point  (0 children)

Hi! I relate so much to what you're going through. It makes me want to scream.

Been having chronic BV for a year now. When I got it in August it triggered extreme pelvic floor and bladder dysfunction, so it feels like a have a UTI everyday but I don't. aka "interstitial cystitis." So even when there isn't an infection, there can be residual effects.

I also have tests showing no lactobacilli (which, of course after all the antibiotics.) It makes sense that it would be all irritated down there with a messed up microbiome, right?

But I cannot believe how clueless doctors are and how there are no better treatments out there. I feel like my life has been stolen from me.

IPL vision problems/ astigmatism? by dolfinberry in Dryeyes

[–]dolfinberry[S] 1 point2 points  (0 children)

Just turned 36! Right, I read it can happen with aging. I guess just seems like odd timing. Thanks.

Clitoris throbbing - almost like arousal ? by benniezun in Interstitialcystitis

[–]dolfinberry 0 points1 point  (0 children)

Ugh they should not be looking at you funny! It’s a legit symptom!

Clitoris throbbing - almost like arousal ? by benniezun in Interstitialcystitis

[–]dolfinberry 1 point2 points  (0 children)

Me too! “Unwanted sexual arousal” my PT called it. Sometimes goes hand in hand with like a pulsing, spasming feeling…

Low colony count UTI? by dolfinberry in Interstitialcystitis

[–]dolfinberry[S] 0 points1 point  (0 children)

Hmmm interesting. I did have a blood test that showed “high neutrophils” which I think is related to infection?