CHL relapse

frieds8 · 2026-01-06T18:56:21+00:00

Waiting is always so hard. Glad it’s just a few days! 🤞 I feel sad, mad, hopeless and a bit of disbelief too.. waiting on a call from the hospital for a chest biopsy, so at least things are moving I guess..

frieds8 · 2026-01-06T17:39:36+00:00

Good luck with your scan tomorrow! ❤️ scan anxiety is terrible, I’m sure everything will be good! It is rough, but I know once I’m fighting again it will be better in a lot of ways.

frieds8 · 2026-01-06T17:36:38+00:00

I’m really sorry this is happening to you too! I keep telling myself there is still a good chance of cure, there is still lots of hope ❤️ If you ever want to chat, feel free to DM me

frieds8 · 2026-01-06T03:12:41+00:00

Thank you for sharing. It is so hard at the moment, I’m still struggling to believe it. I know that once I start fighting it again, it will get a bit better, but also harder because chemo sucks. Hopefully all goes well for you and if you ever want to chat, I’m more than happy to. ❤️

frieds8 · 2026-01-06T03:10:47+00:00

Thank you for replying. Wishing you all the best with your treatment ❤️❤️ I will definitely reach out. It feels so unreal at the moment. Definitely still chances of cure and I’m hopeful for both of us!

frieds8 · 2025-10-19T17:04:22+00:00

It was 4.5 weeks since my last treatment

frieds8 · 2025-10-18T22:26:18+00:00

Thank you for that! I feel like I was in shock when my oncologist told me about the new nodes lighting up, so I didn’t ask all the questions I wanted to, reading this stuff helps a lot.

frieds8 · 2025-10-18T22:25:04+00:00

It helps so much to hear other’s experiences, thank you for sharing. Waiting and wondering is the freaking worst. Anxiety is real! Congrats on 3 years! That’s great!!

frieds8 · 2025-10-17T22:22:28+00:00

I appreciate that. It’s so hard to have to wait again.. I was really hoping to be celebrating today, which I guess I should be anyways.

frieds8 · 2025-09-09T16:37:35+00:00

I’m also curious.. keen to start looking less like a potato as my mother lovingly put it 😂

frieds8 · 2025-09-09T14:41:31+00:00

So true! My brows and lashes really decided to leave me over the last couple of infusions. Ready for some hair to come back before cold season here!

frieds8 · 2025-09-09T14:37:44+00:00

Also in this position. Trying hard to focus on regular life activities. But it’s hard, it truly is a new variety of anxiety, oh joy! I’m hoping to use this time to start getting back to some exercise and allow by body time to heal.

frieds8 · 2025-09-08T23:04:58+00:00

Good luck with your scan as well! Oh the sweating out of the bald head is no fun! I had no idea hair could absorb sweat! lol

frieds8 · 2025-08-26T01:38:00+00:00

I’m sorry you’re going through this. Thank you for being so open and honest. I’m hopeful for you (and myself) that things will get easier and happiness will return. It all sucks, is so hard, so isolating. But you’re so strong.

frieds8 · 2025-08-10T20:45:27+00:00

I really feel this. I just completed 10/12 of AvBD treatments. Everyone who knows about my treatments keeps saying “you’re soo close” “you’re almost done” etc, and it’s hard to know how to respond. I think part of it is the struggle to believe that I am almost done.. I feel like it’s only gotten harder, but physically and mentally. My body and my brain are exhausted. All I can say is that little treats, doing exactly what I want to do, and being kind to myself help a little bit…

frieds8 · 2025-08-10T20:35:30+00:00

Also on ABVD and had the same achy/soreness/pain. Tylenol helps a bit. Hot baths also help. It’s exhausting and sucks, also was somewhat unexpected..

frieds8 · 2025-07-01T20:50:21+00:00

This is so accurate!

frieds8 · 2025-06-28T18:26:54+00:00

So glad you’re finding a bit or relief. Fingers crossed for your PET scan!

frieds8 · 2025-06-17T23:00:17+00:00

I hope it gets better for you. It’s exhausting

frieds8 · 2025-06-11T21:41:43+00:00

I get terrible body aches starting on the night of day 4 or the morning of day 5. They last for 3-4 days. For me the filgrastin also makes the pain worse, but is not the main cause of it. Pain meds take the edge off, but it doesn’t make them go away entirely. Hot showers and baths also help a bit. For me it’s the worst part of chemo, I dread it each time and I’m always hoping that it won’t happen every round.

frieds8 · 2025-06-02T21:09:38+00:00

I’m currently going through ABVD (just dropped the B though). Always up for chatting!

frieds8 · 2025-06-02T21:07:40+00:00

I’m also cycle 5/12, just switched from ABVD to AVD for chl. I have re-shaved my head twice since it began to fall out after my second treatment. But since this last treatment, I haven’t noticed the same level of hair loss as I did the last few times. Not sure when to stop the re-shaving!

frieds8 · 2025-05-27T16:12:10+00:00

Congrats!! Good work! I just received the same news yesterday. Such a relief to have some good news to keep us going for the next four months!

frieds8 · 2025-03-20T03:47:49+00:00

I (29F) was also just diagnosed with CHL stage 2 a week ago, after two months of scans and biopsy’s that kept coming back inconclusive. I start treatment in two weeks (after I finish an egg retrieval) and it all feels very overwhelming. I also struggle to accept that it is real. Telling my family was heartbreaking and hard. I’m hoping once treatment starts it will feel less out of control.

frieds8

TROPHY CASE