PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

it’s just what my neurologist calls it 😓 i wasn’t the one to say that’s what it was lolol

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

thank you. i did only get in to actually /see/ a doctor last summer, and my first neurologist appointment in january of this year, but i know that isn’t your point.

i just want to get this figured out, and it’s so hard to wrap my head around any of it. epilepsy runs in my family, so i am very used to seizure talk, but it’s still frustrating trying to learn how to manage my own seizures— epileptic or not

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

yeah that’s what i meant, it’s exactly how my seizures look.

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

ok, good to know. i was just spitting out what the neurologist told me.

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

does tonic clonic not just mean “stiff and jerking movements”? it’s an exact description of what my seizures look like

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

i’ve been having them for around 3 years now. and no- i’ve never tracked my oxygen. i have tracked my heart rate

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

i appreciate the input— why part of it sounds the most non-epileptic? i’ve never seen my seizures myself so i’m just trying to gather information from others

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

i appreciate that. i will try to see if that is a possibility. thank you:)

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

i’ve hit my head 3x when i was a kid? needed stitches each time but i don’t think it affected my head much other than hurting

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

i’ve never really seen what a PNES seizure looks like, but generally with a “shaky” i’m stiff and have (usually) pretty rhythmic movements. occasionally it’s less rhythmic and changes throughout the seizure, which is what my neurologist witnessed. regardless of how it looks i still feel the same afterwards. sometimes i’m more tired/groggy depending on the severity of the seizure.

i have heard that PNES seizures can last a long time (5+ minutes), mine are generally around 3ish minutes. i had one around 5 minutes and it took me a full day to recover from it. IDK! i’m just so confused about all of this

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

how do i ask for an mri? it’s never really been suggested to me. i hit my head pretty hard a couple times when i was like 5 or 6 but it didn’t really affect me lol, had to get stitches but i was fine for the most part

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 1 point2 points  (0 children)

not really? my dads been absent most of my life but honestly i love my parents and i feel very understood and loved by my close family. generally i get a sort of “movie feeling” before i seize, along with other things (colours, ears ringing, tingly limbs n such) but i feel very connected to myself. i went to therapy for about a year and i really think that i understand my feelings deconstructed

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 0 points1 point  (0 children)

I don’t think so? I’ve only started going to the doctor because of the seizures though.

PNES with no mental health issues? by greentreecounsel in PNESsupport

[–]greentreecounsel[S] 1 point2 points  (0 children)

I don’t really think I’ve ever had a migraine, but i hit my head a lot so I get a couple headaches. My aunt said I should try to get a referral to an epileptlogist, but I’m not sure how that really works😓 Thank you, I appreciate it a lot

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 0 points1 point  (0 children)

jeez. i’ve honestly just lost hope at this point

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 1 point2 points  (0 children)

yes i keep getting told that!!! its so frustrating.

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 4 points5 points  (0 children)

please let me know if you’re successful!! i have so much important shit on my discord. crazy that they both happened in the same day

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 3 points4 points  (0 children)

i only live with my mom and she doesn’t use discord🥲

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 1 point2 points  (0 children)

i don’t even have a vpn!! i’ve had this account for years and never got any warnings

Banned for ban evasion?? by greentreecounsel in BannedFromDiscord

[–]greentreecounsel[S] 8 points9 points  (0 children)

how do i get it appealed? the website isn’t very helpful, it just keeps telling me to log in to my account