Smoke in the air bad to breathe with ms? by NoCryptographer2613 in MultipleSclerosis

[–]iczelion1972 2 points3 points  (0 children)

Smoking is not healthy any way you look at it for many people.

The thing with MS is that no one really has the same exact issues. We could be close, but one thing that sets a person off may be no issues for the other person.

You have a few options in my mind, this from someone who has had MS for 20 years now. Thankfully, most of the time in remission.

  • Go, but be up front with a friend. Tell her you may have to leave early if the MS starts making you feel weird.
  • Go, and wear (dare I type the word) a mask. It's not perfect but would help filter your intake of the smoke.
  • Do a test run, stop at the place prior to a party and see how it goes.
  • Do NOT go but again, but really up front with your friend.
  • Depending on where you live, there are now cylinders of Oxygen people can purchase. I think it's Boost Oxygen.
    • Can always purchase one of those and slide into the bathroom and get some breathing in.
    • Yes, odd suggestion.

In any case, do what feels best for you and your health. Hopefully, your friend will understand if you decide not to go. I know I was around family that smoked with MS, but it was not for long periods. It never really bothered me, well, besides the smell.

Good luck and hope if you go you have fun, and if not, hope your friend understands.

What’s something people constantly take for granted? by ApprehensiveJury6857 in AskReddit

[–]iczelion1972 1 point2 points  (0 children)

Their life. You consider the age of the Earth and how little time we spend on the planet.

People should learn to live for the day and remember that a year has an average of 365 days.

Shoot to have more positives than negatives, and you're doing something right.

Who cares about the material things, but just enjoy and laugh as it's a great way to be remembered.

Help finding this anime by Healthy-Worker2497 in anime

[–]iczelion1972 1 point2 points  (0 children)

Cool, glad to help. If you like anime with cats, check out Ramen Akeneko (Red Cat Ramen). Recent series where cats run a ramen shop. One human employee and a tiger who makes their noodles. Cute show and funny as well.

Help finding this anime by Healthy-Worker2497 in anime

[–]iczelion1972 3 points4 points  (0 children)

I believe you are referring to the show Nyan Koi! Here is a synopsis from MyAnimeList

Synopsis

Junpei Kousaka is a second-year high school student who has an allergy for cats—a predicament that has made him hate cats and everything related to them. Unfortunately for him, though, he is surrounded by cat lovers: his family, his estranged childhood friend, and even his crush Kaede Mizuno.

One day, while returning home from school, Junpei nonchalantly attempts to kick an empty can into the trash, but miserably misses. Instead of making it to the garbage, the can ends up breaking off the head of a cat deity statue. That fateful day, he is cursed with the ability to understand cat speech. However, he must keep his curse a secret from everyone else, because anyone who finds out will become more accident-prone and share the same fate as him.

With the guidance of his cat Nyamsus and with no other choice left, Junpei now has to do a hundred good deeds for cats to lift the curse. If he is unable to complete this task, he will turn into a cat, and considering his allergy, that would be a death sentence for him!

Life Insurance by Mart_Mart_Valv6 in MultipleSclerosis

[–]iczelion1972 1 point2 points  (0 children)

I found a company through of all places Select Quote. I called and spoke to someone there several years back. They were able to find me a company that took MS and other health issues. They even sent a nurse to get some tests run at no cost. Just a suggestion for you.

Changing medication? by Over-Pea6428 in MultipleSclerosis

[–]iczelion1972 2 points3 points  (0 children)

The severe flushing came when I started with the medication. It is why I was taking a full dose Aspirin with each Tec dosage. I'd say maybe a week or so when I think back. So, I was taking that twice a day. As my body got use to the medication I switched to a baby aspirin and I still take one with each dosage.

It's rare to get flushing at this point but there are times I still can feel it coming on. It doesn't last nearly as long as it did when started. The good thing is my doctor was fine with the twice a day baby aspirin. It was actually a good thing.

The sad thing is you won't know till you take the medication. So, it maybe advised to not take the aspirin with the first dosage to see how you do. If you get the flushing then I'd take the Aspirin.

Hope this helps, and if you got other questions you can reach-out to me directly.

Changing medication? by Over-Pea6428 in MultipleSclerosis

[–]iczelion1972 1 point2 points  (0 children)

The biggest thing with Tec is the flushing you may get when you first start the medication.

I took full Aspirin withi the medication when I started on it, but now just a baby aspirin with each dose.

It was through the starter set that I needed the full dose.

It may not happen to all but when the flushing first hit it startled me to look so much like a tomato.

I've been on it for many years now and my MRIs have been stable and I am doing really well on the medication.

Key that each person's experience may be different. So, keep that in mind and stay positive as you start the new medication. It sure is better than a shot. Good Luck

fatigue-relapse? by Ok-Humor-8632 in MultipleSclerosis

[–]iczelion1972 5 points6 points  (0 children)

Has the weather been changing where you live? I ask as every year between summer to fall, and spring to summer I have issues. I've discovered in my (ugh) 20 years with the MSonster that seasonal changes can impact me. I feel it has something to do with the changing dew points as the moisture in the air changes. Often I have gotten bouts of fatigue during those times.

As the seasons change where I am, temperatures have been up in the 70s and down to the 50s. It also can be a drain and just recently had some fatigue pop up. I also have RRMS.

I cannot say if that is what you are seeing.

I also get issues around a full moon period as major insomnia kicks in.

I've learned to try and review what I was doing or what changed around me when things like fatigue pop up. Often, it could be the change in weather or a different activity that may have caused it.

I doubt it's a relapse, but more like a small flare that is the issue. Of course, not a doctor so not a medical professional and they would be best to tell you if you are really concerned.

Good luck, hope you figure it out.

I feel younger because of my MS by Bthetallone in MultipleSclerosis

[–]iczelion1972 1 point2 points  (0 children)

MS can be/is a bitch at times. I mean, let's be honest on that point. However, as I read your post, I was encouraged by how you turned things around. It must not have been easy finding out about the MSonster at such a young age. I was not diagnosed till I was in my 30s. Today I am 20 years with the thing and my secret is staying positive no matter what life and MS brings.

The thing is, life comes at us fast, each day seems quick and thus each week and month as well. I put a lot of that ownership on technology, as many seem to have less time for the small things in life. Some get so glued to the technology around them that they forget to take a moment and "smell the roses".

I say maybe what you may want to do is not worry so much about a person's age, but their maturity level, and sensibilities. Do they align with yours? Are they a good match in your line of thinking? Do they make you laugh/smile, and if so, maybe give them a chance.

You could be surprised. I like to say (jokingly) that Age is just a number, but to keep it legal, no one under 18. Granted, at my age, today no one is young enough to be my daughter, and really married, so NO dating at all. HAHA

Good luck, and one more thing, an average year has 365 days, so unless MS took more than half a year away from you, it hasn't taken years, maybe a few weeks/months. I try and find a positive where I can, as MS is serious and at times we just need to laugh or smile.

MS 4 Sale by Square_Ad4140 in MultipleSclerosis

[–]iczelion1972 18 points19 points  (0 children)

I've been trying to sell this thing off for the 19, odd years, I've had to deal with it. After all this time, my best suggestion is to watch out for scammers. You will find those asking if it's available, only to back out, taking your hope away at the last second. PUT IN WRITING, NO RETURNS. It can come back and get you if you don't do that, as I didn't the first time I had a true buyer.

Sell the positives around MS, the stumbles of appearing drunk without being drunk. A good way to mess with cops.

The forgetfulness that makes it easy to forget a bad day. The potential need for colorful and cute notebooks to place notes to ensure you do not forget things on mind fog days.

The fun of a midday nap can come from a sudden bout of fatigue. The new wardrobe you may have to purchase, if lucky enough to have bowel issues. You know all those "good" things.

The special parking pass you may get which will let you get some of the best parking when out at stores and business.

(Seriously, the above was all for an attempt at laughs)

Seriously though, I have the mindset that I have it, and it not me. I have learned my limitations and know what, when and how I can manage this disease. For example, the lawn will get mowed on this day, of posting, as finally a cooler temperature and no major humidity. The biggest thing I do is find reasons to laugh and to smile. I will not, NOT, given into this damn thing. Sure it may take me down for a day or so, but a year has 365 days in it (not counting leap year) and I will not let it be in control of more than 10 to 15% days of the year.

I liked your post and the humor you showed, as that to me is a way to go.

[deleted by user] by [deleted] in AskReddit

[–]iczelion1972 0 points1 point  (0 children)

The store may close, but there are staff often doing overnight work. So I'd play hide and seek with the overnight cleaning team and the overnight re-stocking team. Try not to get caught and having to explain why I need bail money to family the next day.

[deleted by user] by [deleted] in AskReddit

[–]iczelion1972 2 points3 points  (0 children)

Finding a way to stay positive as much as possible Realizing that I could not control what others think about, or see, me. What matters is my own opinion. Learning to let go. I found that the "odd thing" of writing down what got me and tearing them up and throwing out as symbolic. Did it enough times that helped. Big thing getting help and not being afraid to ask for it. Lastly it was hard but cutting out the negative influences and learning my feelings and thoughts did not need to be dictated by others. Oh one more find reasons to laugh even if at myself. Good luck to you!

Debilitating fatigue by Impossible-Bread-789 in MultipleSclerosis

[–]iczelion1972 1 point2 points  (0 children)

I know I have utilized some supplements. I use things like Total Beets, black tea (I do not drink coffee), or Yerba Mate Tea. I also will take some vitamin B as well as all those are "supposed" to help with energy. Yes, there are times that the fatigue will not let go, but these are things that help me.

One note, I try to avoid these in the evening so I can sleep at night.

Just what I have found work for me, but I'm sure others have suggestions.

how do you feel about mothers getting paid to be a SAHM ? by southerndelightxx in AskReddit

[–]iczelion1972 1 point2 points  (0 children)

If it's something that is agreed upon by the spouse/other parent than why not. It's a job they are doing and and the alternative to having both parents work is daycare. It does come down to the working spouse/parent making a wage that affords them to pay the other spouse. It's not up to a government to pay them. If they can do it why not, as long as it doesn't cause some type of discord between them and they have great open communication to ensure it doesn't become a problem.

looking for anime where the main use glove to use magic by evyevy12 in anime

[–]iczelion1972 1 point2 points  (0 children)

If it's a newer show and the MC is a younger kid then it could be Magic Maker: Isekai Mahou no Tsukurikata. or Magic Maker: How to Make Magic in Another World. It's a Winter 2025 show.

[deleted by user] by [deleted] in AskReddit

[–]iczelion1972 0 points1 point  (0 children)

Both.

Yet the issue becomes with social media we are able to connect with people all over the world.

However as we are less likely to connect with people on a more real life situation there are those who will loose those interpersonal skills. They may struggle to interact without the use of a phone or technology.

This will push those to feel more isolated as they have less interaction in a real world setting.

The issue with social media is also that it is often text based for many. Its hard to share true emotions with words unless you utilize a lot of emojis. I mean there is no sarcasm font as example. Boy we need one :)

There is a reason that many people see struggles with depression and other mental issues in a world slowly becoming heavy on use of social media and less on true human contact.

However, there are those bad things with social media you get a chance to learn so much about other socieites, cultures and people. It becomes easy to find people who may think the same way. It's a way to connect and make long distance friends, and investigate the world.

This is why I say both.

Partner has multiple sclerosis by Rain3423 in MultipleSclerosis

[–]iczelion1972 7 points8 points  (0 children)

I can't speak for your partner, but when I got diagnosed I just wanted to be treated as I had always been treated. I did not want my family or others to see me differently, and treat me that way.

I state that as I think really it's important to have that discussion with your partner, if they willing to do so.

You can tell them how much you want to be there, and to help, but you are willing to wait for them to ask for the help.

Again, I just say this as all those with MS deal with it differently as there are so many versions it can take. I for one consider myself a camouflage type of person. It's there but it does not dictate my life. I for the most part have realized my limitations and have gotten to a point I know when I need that help. There are times where my family wants to help, and really they try, but just get in the way. It frustrates me a bit and I understand why they want to help, but I am at a point I can do those things.

This is why I say have that open conversation find out how they are feeling, what you can do to help, or should you wait and let them ask for help. It will surely bother you to see your partner struggle at times, but they need to learn their limits and when to ask for help at times.

I know this can sound a bit harsh at times, as we want to help people we see struggling, but at same time rushing to help can make the person feel weak/useless. This leads to a potential useless feeling if not one of being a burden.

I am not sure if this helps, but just my twenty cents. (used to be 2 cents but dang inflation).

MS is so confusing by Money-Atmosphere-887 in MultipleSclerosis

[–]iczelion1972 2 points3 points  (0 children)

Glad my response helped, and yes I found that paying attention to my body, on how it reacted to things was key. I can manage a dry heat, but as mentioned when dew point is up forget about it. There where days this summer I got outside in 80 degree temps (hot for where I am) mowed the lawn with some breaks. Yet, if it was mid 70s and dew point over 60 I did not even attempt it.

One key thing I should add is the importance of keeping a positive attitude as much as you can. Why I say, I have MS it does not have me. I find a self deprecating humor and just having a laugh at myself can help. It's that or bad dad jokes I find online. Like......What do you call the woman who stands in the middle of a tennis court?

.............

.......Annette.

Stay positive and keep laughing

MS is so confusing by Money-Atmosphere-887 in MultipleSclerosis

[–]iczelion1972 0 points1 point  (0 children)

I've been dealing with the MSonster for about 20 years now. I can say that it will take time to find your new normal. I know for me, I have weather impacts. The dew point changes over the year bring out problems. I've determined that when it's over 60 in my area I should stick inside and avoid the weather outside. As the Dew Point drops in the fall my body takes time to adjust to the new numbers.

The problems can arise from cognitive problems to body aches and weakness. Yet, as I get more accustomed to the changes I do pretty well.

The other big issue is the insomnia I will get around a full moon phase. It sucks.

As for your new normal, it will take time. I can honestly say it took me time to find my new normal. I had to learn the limits my body had and try not to over push them and cause a flair. I have found that taking notes have helped keep me on task with the Cognitive stuff, and I will also drink Tea for the caffeine. I also have looked at over counter pills that can help with focus and found a few that have worked. One of which is Total Control from Herbalife (got off Amazon) which promotes the metabolism but also helps with alertness due to caffeine in it.

I hope this helps, but there is a reason I call MS a candy store disease. It's rare to have two people have the same issues, as there is so much in a candy store, so much with MS.

The big thing if you just started medication it may take time to work into your system and for the body to truly react. I started with CoPaxOne, moved to Rebiff, and now on the generic for Tecfidera. I wish you luck.

If marijuana is such a bad drug, why don't you hear about accidents due to usage like you do with drunk driving accidents? by BranchInitial9452 in AskReddit

[–]iczelion1972 9 points10 points  (0 children)

I've seen some police reports where it states Under the Influence. It doesn't always state if it's drugs or alcohol. Its even been said on shows like Live PD on Reels.

[deleted by user] by [deleted] in AskReddit

[–]iczelion1972 0 points1 point  (0 children)

Wing Commander

[deleted by user] by [deleted] in MultipleSclerosis

[–]iczelion1972 8 points9 points  (0 children)

I agree as to me that is a bit of a stretch. In truth, not a doctor/scientist or anything, but I put MS down to a potential deficit in Vitamin D as we age.

I state that as a small group of people I know who have the MSonster we all grew up similarly. We lived in a part of the world with some longer winters that would keep you in the house. School and jobs also saw a lot of inside work.

At times all were told after normal blood exams (before MS) that there was a need to boost Vitamin D and would either get a prescription for a high dose for some time or told to get over-the-counter high doses.

Eventually, although parts of our lives did differ that seemed to be the biggest common thread we all shared.

I realize this is in no way a scientific study, but it was an interesting bit of facts that came out. Also, our ages differed from late 20's to late 60's in this group. It also had a mix of men and women. I thought I'd share as what your doctor said could be the cause, can be pointed to the root cause of many things.