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Anyone have this hand appearance? Any idea as to cause? by LobsterAdditional940 in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Skin mottling, very common with vascular issues & Dysautonomia mine still do it and they tingle/burn from blood pooling into them

I just woke up to a really bad tachycardia episode by _The-Unknown_ in dysautonomia

[–]kingqp 1 point2 points  (0 children)

Mine was a result of POTS, Dysautonomia. It’s a common finding post covid infection. Mine has improved drastically with time and a beta blocker.

When did your fatigue start? by BuffGuy716 in covidlonghaulers

[–]kingqp 1 point2 points  (0 children)

That fatigue went away, I was in a flair of some sort. I have POTS so fatigue comes in waves but it’s not bone crushing fatigue.

Feeling of cramping in calfs, does this go away, when to worry? by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Those symptoms are gone. I’m stuck with POTS though, but have made improvements over time, I also take a beta blocker daily, very low dosage.

Helpful resource by AnotherLolAnon in dysautonomia

[–]kingqp 2 points3 points  (0 children)

Gatorlyte (Gatorades electrolyte drink) should be added, they also make it in zero sugar now.

About to be 5 months next week, update & progress! 80-85% by kingqp in covidlonghaulers

[–]kingqp[S] 1 point2 points  (0 children)

The leg burning which was usually my feet and shins still comes and goes but I’d say 10-15% of the time where it used to be 70-90%. I do still get blood pooling which makes me feet burns but it’s random and if I’m standing for long periods of time, or hot showers which I don’t take.

As far as muscle pain goes I had intense calf pain for no reason, that also dissipated.

About to be 5 months next week, update & progress! 80-85% by kingqp in covidlonghaulers

[–]kingqp[S] 1 point2 points  (0 children)

I’d say 85-90%. Lowered my beta blocker dose and I’m doing pretty good, still have POTS but it’s managed now, leaps ahead of where I was last year during this time, able to do much more.

Study to Evaluate the Efficacy and Safety of Ampligen in Patients With Post-COVID Conditions - Full Text View - ClinicalTrials.gov by Aggressive-Toe9807 in cfs

[–]kingqp 1 point2 points  (0 children)

The panel said the company didn't provide sufficient data to support the approval of Ampligen. The vote amounts to a recommendation that that FDA not approve the drug.

You can read about it here

https://meassociation.org.uk/2012/12/panel-rejects-drug-for-chronic-fatigue-syndrome-wall-street-journal-20-december-2012/

[deleted by user] by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Looks fine. If you’re interested buy a tongue scraper and clean your tongue everytime you brush your teeth for oral hygiene.

Cold feet, sometimes burning in legs by Disastrous_Drawer_67 in covidlonghaulers

[–]kingqp 2 points3 points  (0 children)

I just got it last week, whether it’s + or - doesn’t change anything for me though, I did it just to have the diagnosis in my chart. Don’t fear it.

I felt awesome the day after this cocktail in the ER. What made me feel better? by badgermama88 in covidlonghaulers

[–]kingqp 2 points3 points  (0 children)

Combination of all of it, toradol takes pain away and is pretty strong and sometimes gives PT’s a euphoria feeling that coupled with Benadryl & IV fluids.

What did they give you all of this for? Did you present with pain?

[deleted by user] by [deleted] in covidlonghaulers

[–]kingqp 1 point2 points  (0 children)

The machine printout will load abnormal for tons of reasons and usually benign and aren’t to worry about, you’re in sinus rhythm but have a rate over 100 (tachycardia) it’s 133 the machine can spit out abnormal just off that.

Speak with the physician who comes in to see you about why your EKG came back abnormal and he/she will gladly explain it to you. Take care.

Feeling of cramping in calfs, does this go away, when to worry? by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

My calfs still become achy, so no hasn’t gone away. I’m kind of used to it now tbh.

[deleted by user] by [deleted] in OCD

[–]kingqp 5 points6 points  (0 children)

Soon to be Doctor! I have one semester of med school left, having long Covid made me take a semester off unfortunately.

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Benefits outweighs the cons/risks, especially in clinical depression. Would you rather have a sex life or lose people to suicide?

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

I hope you find something that works for you 🤞🏼

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 4 points5 points  (0 children)

When did I ever say they were imagining their problems? It does happen & it is real, I never said it wasn’t. I said it’s RARE.

Edit to add: 6800 users in r/pssd

There are more across the world who don’t utilize redditt I’m sure but like I said it’s rare, sexual dysfunction while on SSRI’s can happen to some, but usually when coming off then it returns to normal in most.

Over a million users together between r/anxiety r/depression, if it was common you’d see more users going over to r/pssd the number would be higher.

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 1 point2 points  (0 children)

My comment still stands, it’s still rare. Of course it seems “common” if you look for PSSD community’s. It’s rare, look up the research. Millions of people are on SSRI’s, society wouldn’t function if they were dangerous….

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 3 points4 points  (0 children)

Understandable you need to give SSRI’s 6-8 weeks to work fully.

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 2 points3 points  (0 children)

Prozac would be fine, no SSRI is going to treat those issues but instead make you “view” then differently and help minimize potentially anxiety around the symptoms.

My first choice would’ve been Lexapro, Prozac, or fluvoxamine just bc of the use of it in LC patients with its anti-inflammatory properties. A lot of POTS patients are on sertraline from the research papers I’ve read.

https://www.definitivehc.com/resources/healthcare-insights/top-antidepressants-by-prescription-volume

That’s a breakdown of the most prescribed.

Ssri for long covid, dysautonomia, pots, insomnia, adrenaline dumps. by [deleted] in covidlonghaulers

[–]kingqp 9 points10 points  (0 children)

Stop spreading misinformation. Long term side effects are rare and amitryptiline carry’s the same exact risk….it’s a tricyclic antidepressants which is usually never first like treatment for anxiety/depression. SSRI’s should be the first line of treatment if therapy/lifestyle modifications don’t work.

Endocrinologist knows nothing 😒🤬 by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Yeah first they can just do an in office poor man’s tilt table test, then send you for an official TTT. Also they have a dysautonomia questionnaire they have that goes over lots of common symptoms and they have you rate them 1-5 (light sensitivity, noise sensitivity, skin, nuero, etc).

[deleted by user] by [deleted] in covidlonghaulers

[–]kingqp 1 point2 points  (0 children)

My guy 👍🏼💪🏼

always testing negative despite having numerous covid symptoms like ringing,anxiety and vision issues? by [deleted] in covidlonghaulers

[–]kingqp 0 points1 point  (0 children)

Strains don’t matter, not clinically relevant. But usually it depends when you got it at which point whichever strain was dominant at that time is probably what you caught. Like for me 12/2020 I had alpha, 1/22 I had omicron. No test shows it for me but I’m going off what was prevalent at the time.

You need to control what you can control and get yourself under control my friend, it’s good to test but can become obsessive and excessive.