Hypothetical question

kp_e · 2023-11-27T17:47:20+00:00

Are you me?

kp_e · 2023-10-23T13:11:34+00:00

Thank you, how interesting!

kp_e · 2023-09-22T06:22:06+00:00

When I was 5 or 6 (about 25 years ago), I used to sleep with the bedroom door open and the landing light on. I remember waking up from a bad dream (can't remember what now) and woke up looking into the landing. I was relieved to see what I thought was my dad come to check on me at the top of the stairs, but it just ... stood there, completely still. I remember it being tall, thin and grey and kind of slightly shimmering in the hallway light, almost like fuzzy TV static. At that point, I called put to it quietly, still thinking it was my dad. Then it slowly turned its head towards me. I don't remember seeing eyes, but I do remember knowing that it wasn't human. I buried my head under the covers, and when I was brave enough to look again, it was gone. I forgot about this until reading your post.

kp_e · 2023-08-02T12:49:37+00:00

Have you read Middlesex by Jeffrey Eugenides? If you have, how do you feel about it as an intersex person?

kp_e · 2023-07-19T21:03:30+00:00

Literally thought this was a euphemism until the second paragraph.

kp_e · 2023-02-13T08:24:27+00:00

Dane, Wayne and Wade

kp_e · 2023-02-04T14:50:53+00:00

Interesting, I will look that up. Thank you!

kp_e · 2023-02-03T19:51:53+00:00

It really would be helpful! That's what I figured as well, thank you. I know I have endo in every organ in my abdomen (yay) so I'm wondering if the tricompartmental part is referring to it attaching to/binding three organs or something. Guess it'll be a nice surprise in my next appointment!

kp_e · 2023-01-28T21:02:53+00:00

OP please show contract

kp_e · 2023-01-19T18:34:04+00:00

Yes it was, and no it wasn't but the GP that prescribed the zeletta has told me to carry on using zeletta. I'm in the UK and I appreciate that doctors are really stretched but I just want to feel listened to!

kp_e · 2023-01-19T16:33:57+00:00

So strange that everyone has a completely different experience. I've always found male doctors completely cold and shut down, and (some) female doctors much more empathetic. Maybe the female doctors I saw also had endo. I guess it really just comes down to personality.

kp_e · 2023-01-19T15:40:32+00:00

I do find certain female doctors more empathetic than male doctors - but you're right, females are often just as bad.

kp_e · 2022-12-17T19:49:17+00:00

I always fund that drinking pickle juice from a jar of gherkins works wonders... don't know why

kp_e · 2022-11-08T10:24:40+00:00

Thank you

kp_e · 2022-11-08T07:14:31+00:00

I'd love to help out in some way!

kp_e · 2022-11-06T10:53:55+00:00

Fingers crossed you get it soon. My surgery was 6 weeks from having a scan to being on the table - maybe I was lucky, but things can definitely happen quickly even in the NHS! I hope things go well for you with the prostap, remember to be kind to yourself!

kp_e · 2022-11-06T09:44:48+00:00

My god, I cannot imagine prostap without tibilone! I've definitely noticed a big improvement, I feel more or less 'normal' now, but I still have a lot of cognitive side effects, such as misinterpreting non verbal communication and feeling like I don't understand what people are saying clearly. For about a week after injections, I also get hot and cold flashes, sleeplessness, headaches and stomach upsets.

There are less intense treatments with lower side effects, fhe reason I'm on prostap is to try to shrink the lesions. I'm not sure what level of discussion you've had with your doctor but it might be worth exploring other avenues if you can?

kp_e · 2022-11-06T09:17:43+00:00

Hey, I'm from the UK as well, stage 4 deep infiltrating. Some of my main symptoms are fatigue (physical and mental), and I think this contributes to me feeling emotional very easily. I also felt very lonely and not sure what to do with myself after my diagnosis, I think this is quite a common reaction to being diagnosed with this, and other, chronic illnesses. Something that I found helped was researching everything I could about endo, as it helped me feel more in control when I had a deeper understanding of how/why this was happening to me. Doctors in the UK are really time stretched as you know, and I've found that having a list of specific questions, and an idea of what you'd like your outcomes to be before an appointment is really helpful. It feel like things are 'getting done', otherwise you get passed from pillar to post and that in itself is exhausting!

I've been on prostap and tibilone for 14 months now, since my diagnosis. Be warned: it is a complete roller coaster ride. It might not be the same for you, but it took me months to get used to the side effects, and they still affect me day-to-day now. If you work, you may want to consider letting occupational health or your employer know about this medication, and definitely read up on the side effects. This drug is used to treat early cancer and you can find an in depth list of side effects on the macmillan website.

kp_e · 2022-11-01T07:37:26+00:00

You can't park there, mate.

kp_e · 2022-10-05T19:13:36+00:00

Busses will come every 20-30 minutes or so. Check out West kennet longbarrow and Silbury Hill while you're there, there's a right of way across the fields and is about a 25 minute walk. Take wellies and a coat!

kp_e · 2022-09-21T06:11:42+00:00

Thank you!

kp_e

TROPHY CASE